2022 Speakers

 

Diego Ardigò, Head of R&D, Global Rare Diseases, Chiesi Farmaceutici SpA

Diego Ardigò | Head of R&D, Global Rare Diseases | Chiesi Farmaceutici SpA » speaking at Orphan Drug Congress

Francis Arickx, Head Of The Directorate Reimbursement Of Medicines And Pharmaceutical Policy, Riziv-Inami

Francis Arickx | Head Of The Directorate Reimbursement Of Medicines And Pharmaceutical Policy | Riziv-Inami » speaking at Orphan Drug Congress

Axel Boehnke, Director Market Access EU North, PTC Therapeutics

Axel Boehnke | Director Market Access EU North | PTC Therapeutics » speaking at Orphan Drug Congress

Thomas Bols, Head of Government Affairs and Patient Advocacy, EMEA & APAC, PTC Therapeutics

Thomas Bols | Head of Government Affairs and Patient Advocacy, EMEA & APAC | PTC Therapeutics » speaking at Orphan Drug Congress

Tresja Bolt, Senior Healthcare Advisor, Harwood Levitt Consulting

Tresja Bolt | Senior Healthcare Advisor | Harwood Levitt Consulting » speaking at Orphan Drug Congress

Matt Bolz-Johnson, ERN & Healthcare Advisor, EURORDIS

Matt Bolz-Johnson | ERN & Healthcare Advisor | EURORDIS » speaking at Orphan Drug Congress

James Bonham, President, International Society for Neonatal Screening

James Bonham | President | International Society for Neonatal Screening » speaking at Orphan Drug Congress

Angela Bonich, Business Development Director, Caligor Coghlan Pharma Services

Angela Bonich | Business Development Director | Caligor Coghlan Pharma Services » speaking at Orphan Drug Congress

Clara Campàs, Managing Partner, Asabys Partners

Clara Campàs | Managing Partner | Asabys Partners » speaking at Orphan Drug Congress

Elena Cardenal, Scientific Director, Dravet Syndrome Foundation Spain

Elena Cardenal | Scientific Director | Dravet Syndrome Foundation Spain » speaking at Orphan Drug Congress

Vittoria Carraro, Associate Director Government Affairs, European Confederation of Pharmaceutical Entrepreneurs (Belgium)

Vittoria Carraro | Associate Director Government Affairs | European Confederation of Pharmaceutical Entrepreneurs (Belgium) » speaking at Orphan Drug Congress

Manuel Carrondo, Director, iBET: Instituto de Biologia Experimental e Tecnológica

Manuel Carrondo | Director | iBET: Instituto de Biologia Experimental e Tecnológica » speaking at Orphan Drug Congress

Fleur Chandler, Head of Market Access, Sanofi

Fleur Chandler | Head of Market Access | Sanofi » speaking at Orphan Drug Congress

Charlotte Chanson, Director Global Diagnostics, Orchard Therapeutics

Charlotte Chanson | Director Global Diagnostics | Orchard Therapeutics » speaking at Orphan Drug Congress

Mimi Choon-Quinones, Former Vice-Director, Clinical Operations Eemea, Roche

Mimi Choon-Quinones | Former Vice-Director, Clinical Operations Eemea | Roche » speaking at Orphan Drug Congress

Angela Columbano, Head Of Business Development And Partnership, Genethon

Angela Columbano | Head Of Business Development And Partnership | Genethon » speaking at Orphan Drug Congress

Jean-Philippe Combal, Co-Founder And Chief Executive Officer, Vivet Therapeutics

Jean-Philippe Combal | Co-Founder And Chief Executive Officer | Vivet Therapeutics » speaking at Orphan Drug Congress

Andrea Corazza, Head of Brussels Liaison Office, Biogen

Andrea Corazza | Head of Brussels Liaison Office | Biogen » speaking at Orphan Drug Congress

Toon Digneffe, Head Public Affairs & Public Policy, Europe & Cana, Takeda

Toon Digneffe | Head Public Affairs & Public Policy, Europe & Cana | Takeda » speaking at Orphan Drug Congress

Anne Douar, Chief Development Officer, Vivet Therapeutics

Anne Douar | Chief Development Officer | Vivet Therapeutics » speaking at Orphan Drug Congress

Marcus Droege, Vice President, Global Value & Market Access, Passage Bio

Marcus Droege | Vice President, Global Value & Market  Access | Passage Bio » speaking at Orphan Drug Congress

Mercedes Echauri, VP Market Access Europe and Canada, Takeda

Mercedes Echauri | VP Market Access Europe and Canada | Takeda » speaking at Orphan Drug Congress

Karen Facey, Senior Research Fellow, University of Edinburgh

Karen Facey | Senior Research Fellow | University of Edinburgh » speaking at Orphan Drug Congress

Michela Gabaldo, Head Of Alliance Management, Fondazione Telethon

Michela Gabaldo | Head Of Alliance Management | Fondazione Telethon » speaking at Orphan Drug Congress

Maciej Gajewski, Executive Director, Head of International Government Affairs and Policy, Alexion

Maciej Gajewski | Executive Director, Head of International Government Affairs and Policy | Alexion » speaking at Orphan Drug Congress

Caridad Pontes García, Pharmacotherapeutic Harmonization, Catalan Health Service

Caridad Pontes García | Pharmacotherapeutic Harmonization | Catalan Health Service » speaking at Orphan Drug Congress

Mary Gelovich, Senior Manager, Global Events & Paid Media, Worldwide Clinical Trials

Mary Gelovich | Senior Manager, Global Events & Paid Media | Worldwide Clinical Trials » speaking at Orphan Drug Congress

Bernard Grimm, Director, Healthcare Technology, EuropaBio

Bernard Grimm | Director, Healthcare Technology | EuropaBio » speaking at Orphan Drug Congress

Brad Groves, Associate Director, Managed Access, National Institute for Health & Care Excellence (NICE)

Brad Groves | Associate Director, Managed Access | National Institute for Health & Care Excellence (NICE) » speaking at Orphan Drug Congress

Niklas Hedberg, Head Of Pharmacy, Tandvards och Lakemedelsformansverket

Niklas Hedberg | Head Of Pharmacy | Tandvards och Lakemedelsformansverket » speaking at Orphan Drug Congress

Victoria Hedley, Rare Disease Policy Manger, Newcastle University

Victoria Hedley | Rare Disease Policy Manger | Newcastle University » speaking at Orphan Drug Congress

Kirsty Hoyle, CEO, Metabolic Support UK

Kirsty Hoyle | CEO | Metabolic Support UK » speaking at Orphan Drug Congress

Wills Hughes-Wilson, Chief Patient Access & Commercial Planning, Mereo Biopharma

Wills Hughes-Wilson | Chief Patient Access & Commercial Planning | Mereo Biopharma » speaking at Orphan Drug Congress

Carlo Incerti, Operating Partner, Forbion

Carlo Incerti | Operating Partner | Forbion » speaking at Orphan Drug Congress

Ken Kengatharan, Managing General Partner, Atheneos Ventures

Ken Kengatharan | Managing General Partner | Atheneos Ventures » speaking at Orphan Drug Congress

Robin Kenselaar, Senior Vice President And General Manager EMEA, Orchard Therapeutics

Robin Kenselaar | Senior Vice President And General Manager EMEA | Orchard Therapeutics » speaking at Orphan Drug Congress

Diane Kleinermans, President of the Commission of Drugs Reimbursement, Belgian National Institute for Health and Disability Insurance (INAMI-RIZIV)

Diane Kleinermans | President of the Commission of Drugs Reimbursement | Belgian National Institute for Health and Disability Insurance (INAMI-RIZIV) » speaking at Orphan Drug Congress

Anna Kole, Public Health Policy Advisor, EURORDIS

Anna Kole | Public Health Policy Advisor | EURORDIS » speaking at Orphan Drug Congress

John Lagus, EVP, Business Development, Tanner Pharma Group

John Lagus | EVP, Business Development | Tanner Pharma Group » speaking at Orphan Drug Congress

Yann Le Cam, Chief Executive Officer, EURORDIS

Yann Le Cam | Chief Executive Officer | EURORDIS » speaking at Orphan Drug Congress

Stephanie Leouzon, Partner and Head, Torreya

Stephanie Leouzon | Partner and Head | Torreya » speaking at Orphan Drug Congress

Robin Levis, Deputy Director, Division of Viral Products, U.S. Food and Drug Administration

Robin Levis | Deputy Director, Division of Viral Products | U.S. Food and Drug Administration » speaking at Orphan Drug Congress

Rosie Lovett, Head of Medicines Repurposing, NHS England

Rosie Lovett | Head of Medicines Repurposing | NHS England » speaking at Orphan Drug Congress

Flaminia Macchia, Executive Director, Rare Diseases International

Flaminia Macchia | Executive Director | Rare Diseases International » speaking at Orphan Drug Congress

Thomas MacDonald, Clinical Professor, Molecular and Clinical Medicine, University of Dundee

Thomas MacDonald | Clinical Professor, Molecular and Clinical Medicine | University of Dundee » speaking at Orphan Drug Congress

Paolo Martini, Chief Scientific Officer, Rare Diseases, Moderna Therapeutics

Paolo Martini | Chief Scientific Officer, Rare Diseases | Moderna Therapeutics » speaking at Orphan Drug Congress

Jane Matthews, Sales Support Officer, Charles River Laboratories

Jane Matthews | Sales Support Officer | Charles River Laboratories » speaking at Orphan Drug Congress

Bruno Montanari, Partner, Seroba VC

Bruno Montanari | Partner | Seroba VC » speaking at Orphan Drug Congress

Marisol Montolio Del Olmo, Scientific Director, Duchenne Parent Project Spain

Marisol Montolio Del Olmo | Scientific Director | Duchenne Parent Project Spain » speaking at Orphan Drug Congress

Paolo Morgese, EU Director Market Access & Member Relations, Alliance for Regenerative Medicine

Paolo Morgese | EU Director Market Access & Member Relations | Alliance for Regenerative Medicine » speaking at Orphan Drug Congress

Herve Nabarette, Deputy Director of Public Affairs, AFM-Telethon

Alexander Natz, Secretary General, European Confederation of Pharmaceutical Entrepreneurs (Belgium)

Alexander Natz | Secretary General | European Confederation of Pharmaceutical Entrepreneurs (Belgium) » speaking at Orphan Drug Congress

Daniel O'Connor, University Research Lecturer | Senior Bioinformatician, University of Oxford

Daniel O'Connor | University Research Lecturer | Senior Bioinformatician | University of Oxford » speaking at Orphan Drug Congress

Francis Pang, VP Global Market Access, Orchard Therapeutics

Francis Pang | VP Global Market Access | Orchard Therapeutics » speaking at Orphan Drug Congress

Samantha Parker, Chief Patient Access Officer, InnoSkel

Samantha Parker | Chief Patient Access Officer | InnoSkel » speaking at Orphan Drug Congress

Lisa Parker, VP, Medical, emotive

Lisa Parker | VP, Medical | emotive » speaking at Orphan Drug Congress

Seren Phillips, Senior Director, EMEA Health Economics and Outcomes Research, Real World Evidence and Market Access, Novartis Gene Therapies

Seren Phillips | Senior Director, EMEA Health Economics and Outcomes Research, Real World Evidence and Market Access | Novartis Gene Therapies » speaking at Orphan Drug Congress

Vinciane Pirard, Senior Director Government Relations, Orchard Therapeutics

Vinciane Pirard | Senior Director Government Relations | Orchard Therapeutics » speaking at Orphan Drug Congress

Christopher Rudolf, CEO, volv global

Christopher Rudolf | CEO | volv global » speaking at Orphan Drug Congress

Dirk Schmitt, Senior Director Medical Affairs, Taysha Gene Therapies

Dirk Schmitt | Senior Director Medical Affairs | Taysha Gene Therapies » speaking at Orphan Drug Congress

Sophie Schmitz, Managing Partner, Partners4Access

Sophie Schmitz | Managing Partner | Partners4Access » speaking at Orphan Drug Congress

Nick Sireau, Chair and Chief Executive Officer, AKU Society

Morten Sogaard, Head of Research, Astellas Pharma

Morten Sogaard | Head of Research | Astellas Pharma » speaking at Orphan Drug Congress

Pietro Sternini, Market Access & Marketing Lead EMEA, Astellas

Pietro Sternini | Market Access & Marketing Lead EMEA | Astellas » speaking at Orphan Drug Congress

Magali Taiel, Chief Medical Officer, GenSight Biologics

Magali Taiel | Chief Medical Officer | GenSight Biologics » speaking at Orphan Drug Congress

Tina Taube, Director, Market Access and Orphan Drug Policy Lead, EFPIA

Tina Taube | Director, Market Access and Orphan Drug Policy Lead | EFPIA » speaking at Orphan Drug Congress

Rick Thompson, Chief Executive Officer, Findacure

Rick Thompson | Chief Executive Officer | Findacure » speaking at Orphan Drug Congress

Josep Torrent-Farnell, Professor, Universitat Autònoma de Barcelona

Josep Torrent-Farnell | Professor | Universitat Autònoma de Barcelona » speaking at Orphan Drug Congress

Sheela Upadhyaya, Accelerated Access Collaborative Relationship & Delivery Lead & HST Specialist, National Institute for Health and Care Excellence

Sheela Upadhyaya | Accelerated Access Collaborative Relationship & Delivery Lead & HST Specialist | National Institute for Health and Care Excellence » speaking at Orphan Drug Congress

Sander Van Deventer, Operating Partner, Forbion Capital Partners

Sander Van Deventer | Operating Partner | Forbion Capital Partners » speaking at Orphan Drug Congress

Katya Vert-Wong, Vice-President of Research & Development Operations, Sabin Vaccine Institute

Katya Vert-Wong | Vice-President of Research & Development Operations | Sabin Vaccine Institute » speaking at Orphan Drug Congress

Scott Williams, Head, Global Public Affairs, Specialty Care, Sanofi Genzyme

Scott Williams | Head, Global Public Affairs, Specialty Care | Sanofi Genzyme » speaking at Orphan Drug Congress

Elisabetta Zanon, Director, European Policy and Advocacy, Alliance for Regenerative Medicine

Elisabetta Zanon | Director, European Policy and Advocacy | Alliance for Regenerative Medicine » speaking at Orphan Drug Congress

Martine Zimmermann, Global Head Of Regulatory Affairs, Alexion Pharmaceuticals

Martine Zimmermann | Global Head Of Regulatory Affairs | Alexion Pharmaceuticals » speaking at Orphan Drug Congress