Kim Angel | Executive Director
International MPS Network
Kim Angel is the Executive Director of the International MPS Network (IMPSN) and a committed advocate for individuals and families affected by mucopolysaccharidoses (MPS) and related rare diseases. With a background in organizational leadership and a deep passion for driving meaningful change, Kim has been instrumental in advancing global collaborations, strategic initiatives, and impactful programs that promote access to care, innovative research, and support services for the MPS community. Her visionary leadership continues to shape the future of the IMPSN and the broader rare disease landscape, uniting voices worldwide to ensure a better quality of life for all those impacted by MPS.
Kim was the Executive Director of the Canadian MPS Society from 2016 to 2024. Under her leadership, the Canadian MPS Society has seen significant growth in its programs and services, expanded its advocacy efforts, and enhanced its support for individuals and families affected by mucopolysaccharidoses (MPS) across Canada.
Appearances:
Pre-Congress Workshops - Monday 27th October @ 14:00
Enabling Digitally-Enhanced Care for Rare Diseases in Europe
Lysosomal Storage Disorders (LSDs) present significant challenges, including delayed diagnoses, fragmented care pathways, and limited access to specialist care. Digital health technologies offer a transformative opportunity to address unmet needs by enabling earlier intervention, enhancing care coordination, and empowering patients and healthcare providers with innovative tools.
Utilizing interactive tools and featuring multi-stakeholder perspectives from patients to industry and policymakers, this discussion will explore the integration of digital health innovations ranging from AI to telemedicine, digital medical devices, and other connected care technologies into care pathways for rare diseases across Europe
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