Patient Advocacy Groups
27-29 October 2025
RAI Congress Center, Amsterdam
We’re pleased to invite patient advocacy groups to the World Orphan Drug Congress - an essential gathering of researchers, industry leaders, regulators, and fellow advocates focused on advancing treatments for rare diseases.
PAG representatives which have joined us include members from Beacon for Rare Diseases, Dravet Syndrome Foundation, EURORDIS, FEDER , and many more!
If you represent a patient advocacy group, you can apply for a complimentary pass below.
Join us to exchange ideas, build meaningful connections, and ensure the patient perspective remains at the center of every discussion.
Please note that all applications are subject to approval by Terrapinn. If your application is successful, a confirmation will be sent to the email address provided.
CONNECT
directly with the scientists, regulators, and funders driving rare disease innovation
SHARE
your community’s lived experiences in interactive panels to shape trial designs and meaningful outcomes
LEARN
the latest on regulatory pathways, reimbursement models, and access strategies
COLLABORATE
on creative solutions that accelerate development and ensure therapies reach patients equitably
Confirmed Patient Advocacy Speakers
Participating Patient Advocacy Groups
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