WHY ATTEND

 

27-29 October 2025
RAI Congress Center, Amsterdam

 

 

Premium Conference

Learn from world KOLs in rare diseases on the latest in diagnosis, AI, NBS, gene therapy, clinical trials and patient access. Ensure that you are equipped with the most recent policy and governmental changes in OMP legislation and EUHTA.

Busy Exhibition 

With a footfall of 2000+ attendees, exhibitors will get to speak directly to their target market, expand sales leads, strengthen and establish their brand and close deals with customers on-site.

Limitless Networking

Get access to our dedicated event app (3 weeks before the event), see all of our 2000+ attendees and set up 1-2-1 meetings to maximise your ROI in attending the congress.

Start-up & Biotech Zone

Meet start-ups or pitch your company at the leading rare disease congress. Meet new companies that can help your business or investors that can take you to the next level.

Workshops 

Host or participate in our pre-congress workshops where we deep dive into topics including AI, early access, patient journey, RD action plan and EU joint clinical assessment with all stakeholders.

Working Groups 

Be part of a NEW format – our working groups. Replacing roundtables, these sessions are intimate discussions and one of the best ways to find out what your target audience wants.

Patient Zone

Our patient zone provides you with the unique opportunity to engage with Patient Advocacy Groups and ERNs who are at the heart of the rare disease community.

Media Zone 

The media zone will be bustling with all of the who’s who in the rare disease world. Witness live interviews and use our zone to announce press releases and social media outreach to maximise your presence.

Amsterdam

We’re moving to Amsterdam! The heart of where the EMA, RIVM and ZIN are, as well as some of the strongest ERN networks and biotech hubs. Join us at our newest venue for a state of the art experience.

 

Super Early Bird Tickets Available - Save €2,300


Join 2,000 attendees at the world's largest orphan drug and rare disease event.

This is your best opportunity in 2024 to network with like-minded professionals.

 

Speaker Hall Of Fame | 250 Subject Matter Experts

 

  • Alicia Gil at World Orphan Drug Congress 2024
    Alicia Gil
    CEO&Owner
    OMAKASE CONSULTING
    Christopher Rudolf at World Orphan Drug Congress 2024
    Christopher Rudolf
    Founder and Chief Executive Officer
    Volv Global
  • José Ángel Aibar at World Orphan Drug Congress 2024
    José Ángel Aibar
    President
    Dravet Syndrome Foundation
    Fabienne Bartoli at World Orphan Drug Congress 2024
    Fabienne Bartoli
    Inspector General
    French National Authority for Health
  • Anne-Sophie Chalandon at World Orphan Drug Congress 2024
    Anne-Sophie Chalandon
    Head of Global Public Affairs, Rare Diseases and CGT Policies
    Sanofi
    Charlotte Chanson at World Orphan Drug Congress 2024
    Charlotte Chanson
    Director Global Diagnostics
    Orchard Therapeutics
  • Toon Digneffe at World Orphan Drug Congress 2024
    Toon Digneffe
    Head, Public Affairs & Public Policy, Europe & Canada
    Takeda
    Josie Godfrey at World Orphan Drug Congress 2024
    Josie Godfrey
    Director
    JG Zebra Consulting
  • Alexandra Heumber Perry at World Orphan Drug Congress 2024
    Alexandra Heumber Perry
    Chief Executive Officer
    Rare Diseases International
    Daria Julkowska at World Orphan Drug Congress 2024
    Daria Julkowska
    Scientific Coordination, European RD Research Alliance
    IRDiRC
  • Yann Le Cam at World Orphan Drug Congress 2024
    Yann Le Cam
    Founder and past-CEO
    EURORDIS
    Lucy Mckay at World Orphan Drug Congress 2024
    Lucy Mckay
    Chief Executive Officer
    Medics4RareDiseases
  • Alexander Natz at World Orphan Drug Congress 2024
    Alexander Natz
    Secretary General
    EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
    Daniel O'Connor at World Orphan Drug Congress 2024
    Daniel O'Connor
    Director, Regulatory Policy & Early Access
    ABPI
  • Kacper Rucinski at World Orphan Drug Congress 2024
    Kacper Rucinski
    Executive Committee Member
    SMA Europe
    Adrien Samson at World Orphan Drug Congress 2024
    Adrien Samson
    Healthcare Policy Senior Manager
    EuropaBio
  • Maurizio Scarpa at World Orphan Drug Congress 2024
    Maurizio Scarpa
    Director, Coordinating Center For Rare Diseases
    MetabERN
    Sophie Schmitz at World Orphan Drug Congress 2024
    Sophie Schmitz
    Managing Partner
    Partners4Access
  • Nick Sireau at World Orphan Drug Congress 2024
    Nick Sireau
    Chair and Chief Executive Officer
    AKU Society
    Claire Skentelbery at World Orphan Drug Congress 2024
    Claire Skentelbery
    Director General
    EuropaBio
  • Anton Ussi at World Orphan Drug Congress 2024
    Anton Ussi
    Operations Director
    EATRIS ERIC
    Leon van Wouwe at World Orphan Drug Congress 2024
    Leon van Wouwe
    Clinical Innovation Director
    Volv Global
  • Mary Wang at World Orphan Drug Congress 2024
    Mary Wang
    Global Programme Director
    Rare Diseases International
    Durhane Wong-Rieger at World Orphan Drug Congress 2024
    Durhane Wong-Rieger
    President, Chief Executive Officer
    Canadian Organisation for Rare Disorder & Rare Diseases International
  • Enrico Piccinini at World Orphan Drug Congress 2024
    Enrico Piccinini
    Senior Vice President, EU & International, Rare Diseases
    Chiesi Group
    Sheela Upadhyaya at World Orphan Drug Congress 2024
    Sheela Upadhyaya
    Life Science Advisor in Rare Diseases & Special Advisor
    Openflex Ltd
  • Dennis Akkaya at World Orphan Drug Congress 2024
    Dennis Akkaya
    Chief Commercial Officer
    myTomorrows
    Stelios Kympouropoulos at World Orphan Drug Congress 2024
    Stelios Kympouropoulos
    MEP
    European Parliament
  • Virginie Bros-Facer at World Orphan Drug Congress 2024
    Virginie Bros-Facer
    CEO
    EURORDIS
    Avril Daly at World Orphan Drug Congress 2024
    Avril Daly
    President
    Eurordis - Rare Diseases Europe
  • Kate Holliday at World Orphan Drug Congress 2024
    Kate Holliday
    Chief Executive
    CCDR/Pathways Telehealth Nurse Service
    Matt Bolz-Johnson at World Orphan Drug Congress 2024
    Matt Bolz-Johnson
    Mental Health Lead & Healthcare Advisor
    EURORDIS
  • Ken Kengatharan at World Orphan Drug Congress 2024
    Ken Kengatharan
    Managing General Partner
    Atheneos Ventures
    Tim Leest at World Orphan Drug Congress 2024
    Tim Leest
    Clinical Assessor Efficacy and Safety & Chair of COMP EMA
    F.A.M.H.P
  • Frauke Naumann-Winter at World Orphan Drug Congress 2024
    Frauke Naumann-Winter
    Head of Unit
    BfArM
    Francis Pang at World Orphan Drug Congress 2024
    Francis Pang
    SVP Global Market Access and International Geographic Expansion
    Orchard Therapeutics
  • Samantha Parker at World Orphan Drug Congress 2024
    Samantha Parker
    Patient Advocacy and Communication Lead Rare Diseases
    Italfarmaco
    Karen Malone at World Orphan Drug Congress 2024
    Karen Malone
    CEO
    GeneScape
  • Andrew Mumford at World Orphan Drug Congress 2024
    Andrew Mumford
    Chief Executive Officer
    Initiate Consultancy
    Rachel Smith at World Orphan Drug Congress 2024
    Rachel Smith
    Global Head, Rare Disease
    Parexel
  • Soraya Bekkali at World Orphan Drug Congress 2024
    Soraya Bekkali
    SVP, EUCAN & International Business of Alexion, AstraZeneca Rare Disease
    Alexion Pharmaceuticals
    Stefano Portolano at World Orphan Drug Congress 2024
    Stefano Portolano
    CEO
    Azafaros
  • Lara Bloom at World Orphan Drug Congress 2024
    Lara Bloom
    President and CEO
    The Ehlers-Danlos Society
    Beatriz Carmona-Hidalgo at World Orphan Drug Congress 2024
    Beatriz Carmona-Hidalgo
    Postdoctoral Researcher
    Junta de Andalucía
  • Burcu Eryilmaz at World Orphan Drug Congress 2024
    Burcu Eryilmaz
    Global Rare Diseases Franchise Head
    Sanofi
    Vinciane Pirard at World Orphan Drug Congress 2024
    Vinciane Pirard
    Medical - SAI
    Sanofi
  • Manuel Carrondo at World Orphan Drug Congress 2024
    Manuel Carrondo
    Professor
    iBET: Instituto de Biologia Experimental e Tecnológica
    Angela Columbano at World Orphan Drug Congress 2024
    Angela Columbano
    Head Business Development Partnership
    Genethon
  • Giorgio Iotti at World Orphan Drug Congress 2024
    Giorgio Iotti
    Head Of Pipeline and Portfolio Leadership, Global Rare Diseases R&D
    Chiesi Farmaceutici SpA
    Paolo Morgese at World Orphan Drug Congress 2024
    Paolo Morgese
    Vice President, Public Affairs, Europe
    Alliance for Regenerative Medicine
  • Jonathan Neal at World Orphan Drug Congress 2024
    Jonathan Neal
    Head Pipeline & Portfolio Europe & Canada
    Takeda
    Nicole Verdun at World Orphan Drug Congress 2024
    Nicole Verdun
    Super Office Director
    Food and Drug Administration
  • Elisabetta Zanon at World Orphan Drug Congress 2024
    Elisabetta Zanon
    Director, European Policy and Advocacy
    Alliance for Regenerative Medicine
    Lauren Kopsick at World Orphan Drug Congress 2024
    Lauren Kopsick
    Founder and Executive Director
    The Healthcare Navigation Project
  • Victor Maertens at World Orphan Drug Congress 2024
    Victor Maertens
    Government Affairs Manager
    European Confederation of Pharmaceutical Entrepreneurs
    Jessica Roberts at World Orphan Drug Congress 2024
    Jessica Roberts
    Director, Pharmacometrics
    Allucent
  • Nicky Wisener at World Orphan Drug Congress 2024
    Nicky Wisener
    Vice-President of Business Development
    Clinigen Group
    Debra Bellon at World Orphan Drug Congress 2024
    Debra Bellon
    Strategic Engagement Manager
    Rare Diseases International
  • Emma James at World Orphan Drug Congress 2024
    Emma James
    VP Clinical/Medical Affairs
    Encoded Therapeutics
    Kirsten Johnson at World Orphan Drug Congress 2024
    Kirsten Johnson
    Chair of Council RDI & Board Member, EURORDIS
    EURORDIS
  • Marisol Montolio at World Orphan Drug Congress 2024
    Marisol Montolio
    Director of Research
    Duchenne Parent Project Spain
    Alicia Granados at World Orphan Drug Congress 2024
    Alicia Granados
    Head, Global Rare Diseases Medical Scientific Advocacy
    Sanofi
  • Corinne Blanchet at World Orphan Drug Congress 2024
    Corinne Blanchet
    Executive Director, Program Delivery
    Premier research
    Davelyn Eaves Hood at World Orphan Drug Congress 2024
    Davelyn Eaves Hood
    Senior Director of Medical & Patient Affairs
    Rezolute, Inc.
  • Elise Evers at World Orphan Drug Congress 2024
    Elise Evers
    Senior Consultant
    Initiate
    Anabel Granja Dominguez at World Orphan Drug Congress 2024
    Anabel Granja Dominguez
    Researcher
    Junta de Andalucía
  • Gillian Molloy at World Orphan Drug Congress 2024
    Gillian Molloy
    VP, Market Access
    AscellaHealth
    Manzi Ndamukunze at World Orphan Drug Congress 2024
    Manzi Ndamukunze
    Chairman
    CENTRE-ALLIANCE FOR RARE DISEASES IN RWANDA
  • Juan Dario Ortigoza Escobar at World Orphan Drug Congress 2024
    Juan Dario Ortigoza Escobar
    Paediatric Neurologist Consultant
    Hospital Sant Joan de Déu
    Georgia Roberts at World Orphan Drug Congress 2024
    Georgia Roberts
    Senior Consultant
    Initiate
  • Laura Rodriguez Gallego at World Orphan Drug Congress 2024
    Laura Rodriguez Gallego
    Partner
    Invivo Partners
    Ana Tediosi at World Orphan Drug Congress 2024
    Ana Tediosi
    Head of Expanded Access Program Strategy
    WEP Clinical
  • Rachel Yang at World Orphan Drug Congress 2024
    Rachel Yang
    Senior Advisor
    Zhongshan Hospital Fudan University
    Manuel Toledo Argany at World Orphan Drug Congress 2024
    Manuel Toledo Argany
    Epileptologist
    Vall d’Hebron Institute of Research
  • Sarka Kubinova at World Orphan Drug Congress 2024
    Sarka Kubinova
    Medical evaluator, MoCA coordinator
    Czech Republic State Institute for Drug Control
    Juliet Moritz at World Orphan Drug Congress 2024
    Juliet Moritz
    Senior VP Strategic Solutions and Patient Centricity
    Ergomed
  • Nadiah Hanim Abdul Latif at World Orphan Drug Congress 2024
    Nadiah Hanim Abdul Latif
    President
    Malaysian Rare Disorders Society
    Iolanda Arbiol at World Orphan Drug Congress 2024
    Iolanda Arbiol
    Cofunder and Director
    Fundació Dr. Torrent-Farnell
  • Mariam Bibi at World Orphan Drug Congress 2024
    Mariam Bibi
    Practice Lead
    Remap Consulting
    Lindsay Birrell at World Orphan Drug Congress 2024
    Lindsay Birrell
    Co-CEO
    Realise Advocacy
  • Thomas Bols at World Orphan Drug Congress 2024
    Thomas Bols
    Head of Government Affairs and Patient Advocacy, EMEA
    PTC Therapeutics
    Nicholas Brooke at World Orphan Drug Congress 2024
    Nicholas Brooke
    Executive Director
    Patient Focused Medicines Development
  • Darren Callanan at World Orphan Drug Congress 2024
    Darren Callanan
    Global Digital Lead
    Partners4Access
    Helene Cederroth at World Orphan Drug Congress 2024
    Helene Cederroth
    Founder, President
    Wilhelm Foundation
  • Joana Claverol at World Orphan Drug Congress 2024
    Joana Claverol
    Clinical Research Director
    Barcelona Children's Hospital Sant Joan de Deu, Research foundation
    Catriona Crombie at World Orphan Drug Congress 2024
    Catriona Crombie
    Head of Rare Disease
    LifeArc
  • Daniel De Vicente Corbeira at World Orphan Drug Congress 2024
    Daniel De Vicente Corbeira
    Board Member of FEDER
    FEDER
    Julien Delaye at World Orphan Drug Congress 2024
    Julien Delaye
    Patient Engagement Manager – HTA, EURORDIS
    EURORDIS
  • João Duarte at World Orphan Drug Congress 2024
    João Duarte
    Vice President, Regulatory Excellence
    Ipsen
    Adaeze Eze at World Orphan Drug Congress 2024
    Adaeze Eze
    Senior Research Consultant Strategic Market Access
    OPEN Health
  • Laura I. Furlong at World Orphan Drug Congress 2024
    Laura I. Furlong
    Co-Founder & Scientific Director
    MedBioinformatics
    Félix Hugo Galarza Delgado at World Orphan Drug Congress 2024
    Félix Hugo Galarza Delgado
    Executive President
    Federacion Ecuatoriana de enfermedades raras o poco frecuentes FERPOF
  • Viviana Giannuzzi at World Orphan Drug Congress 2024
    Viviana Giannuzzi
    Head of Research and Innovation Department
    Gianni Benzi Pharmacological Research Foudation
    David Hipkiss at World Orphan Drug Congress 2024
    David Hipkiss
    Executive Chair
    AlveoGene
  • Ritu Jain at World Orphan Drug Congress 2024
    Ritu Jain
    President
    DEBRA Singapore
    Mohit Jain at World Orphan Drug Congress 2024
    Mohit Jain
    VP Global Head, Value, Access & Strategic Pricing
    Biomarin
  • Annika Jodicke at World Orphan Drug Congress 2024
    Annika Jodicke
    Senior Researcher in Pharmacoepidemiology
    University of Oxford NDORMS
    Olivia Johns at World Orphan Drug Congress 2024
    Olivia Johns
    Associate Consultant
    Partners4Access
  • Ron Jortner at World Orphan Drug Congress 2024
    Ron Jortner
    Founder & CEO
    Aspire Biosciences
    Tomasz Kluszczynski at World Orphan Drug Congress 2024
    Tomasz Kluszczynski
    Strategy Consultant & Founder
    ACESO Healthcare
  • Hasan Kobat at World Orphan Drug Congress 2024
    Hasan Kobat
    Global Business Development Lead, Real World Data
    Clinigen Group
    Jonathan Kornstein at World Orphan Drug Congress 2024
    Jonathan Kornstein
    Vice President, Rare Disease and Pediatrics
    CAIDYA
  • Evert Kueppers at World Orphan Drug Congress 2024
    Evert Kueppers
    CEO
    BOOST Pharma ApS
    Kieron Lewis at World Orphan Drug Congress 2024
    Kieron Lewis
    Director of Strategic Consulting
    Clinigen Group
  • Flaminia Macchia at World Orphan Drug Congress 2024
    Flaminia Macchia
    Head Global Rare Disease Policy
    Alexion – AstraZeneca Rare Disease
    Owen Male at World Orphan Drug Congress 2024
    Owen Male
    Senior Associate
    CRA, Charles River Associates
  • Sicily Ifpa at World Orphan Drug Congress 2024
    Sicily Ifpa
    Scientific Officer
    International Federation Of Psoriasis Associations
    Susanne Michel at World Orphan Drug Congress 2024
    Susanne Michel
    Vice President Market Access
    Clinigen
  • Bojana Mirosavljevic at World Orphan Drug Congress 2024
    Bojana Mirosavljevic
    Director, Patient Advocacy Strategy, Center for Rare Diseases
    ICON PLC
    Cristina Montané at World Orphan Drug Congress 2024
    Cristina Montané
    Patient Advocate
    Acaf
  • Meghan Morgan-Smith at World Orphan Drug Congress 2024
    Meghan Morgan-Smith
    Director, Therapeutic Area
    ICON PLC
    Emilie Neez at World Orphan Drug Congress 2024
    Emilie Neez
    Director
    Dolon
  • Sue O'Leary at World Orphan Drug Congress 2024
    Sue O'Leary
    Executive Vice President, Evidence and Access
    Prime Global
    Amrita Ostawal at World Orphan Drug Congress 2024
    Amrita Ostawal
    Senior Director, Market Access
    OPEN Health
  • Bhavesh Patel at World Orphan Drug Congress 2024
    Bhavesh Patel
    Principal, Life Sciences Strategy Consulting
    CRA, Charles River Associates
    Michele Pistollato at World Orphan Drug Congress 2024
    Michele Pistollato
    Principal
    Charles River Associates
  • Charlotte Poon at World Orphan Drug Congress 2024
    Charlotte Poon
    Senior Associate
    CRA, Charles River Associates
    Xenia Proton de la Chapelle at World Orphan Drug Congress 2024
    Xenia Proton de la Chapelle
    CEO
    AtmosR
  • Lauren Roberts at World Orphan Drug Congress 2024
    Lauren Roberts
    Head of Development
    Rareminds
    Ulrike Schwerdfeger at World Orphan Drug Congress 2024
    Ulrike Schwerdfeger
    Executive Officer
    WHO
  • Elizabeth Taylor at World Orphan Drug Congress 2024
    Elizabeth Taylor
    Senior Regulatory Affairs Manager
    Clinigen Group
    Luca Trentin at World Orphan Drug Congress 2024
    Luca Trentin
    Patient Engagement Senior Consultant
    Alira Health
  • Sonia Valero at World Orphan Drug Congress 2024
    Sonia Valero
    Head Of Clinical Operations - Patient Advocacy Leader
    Vivet Therapeutics
    Gabriella Almberg at World Orphan Drug Congress 2024
    Gabriella Almberg
    Head of Health System Policy & Public Affairs
    UCB
  • Derek Ansel at World Orphan Drug Congress 2024
    Derek Ansel
    Vice President, Therapeutic Strategy Lead, Rare Disease
    Worldwide Clinical Trials
    Neil Bertelsen at World Orphan Drug Congress 2024
    Neil Bertelsen
    Patient Engagement Specialist
    Neil Bertelsen Consulting
  • Alison Cave at World Orphan Drug Congress 2024
    Alison Cave
    Chief Safety Officer
    Medicines and Healthcare products Regulatory Agency
    Peter Fish at World Orphan Drug Congress 2024
    Peter Fish
    Chief Executive Officer
    Mendelian
  • Ella Fitzpatrick at World Orphan Drug Congress 2024
    Ella Fitzpatrick
    Senior Public Involvement Adviser
    National Institute for Health and Care Excellence
    Daniel-Anibal Garcia Diego at World Orphan Drug Congress 2024
    Daniel-Anibal Garcia Diego
    President
    Federacion Espanola De Hemofilia
  • Marcus Guardian at World Orphan Drug Congress 2024
    Marcus Guardian
    CEO
    International Horizon Scanning Initative
    Nitin Mahadev at World Orphan Drug Congress 2024
    Nitin Mahadev
    Vice President, Global Franchise Lead, Rare Disease
    Pfizer
  • Shawn Ritchie at World Orphan Drug Congress 2024
    Shawn Ritchie
    Chief Executive Officer
    Med-Life Discoveries
    Clara Romero at World Orphan Drug Congress 2024
    Clara Romero
    Account Director
    FIPRA/ Together for rare diseases
  • Tara Smith at World Orphan Drug Congress 2024
    Tara Smith
    Exec VP, Innovative Therapies
    Med-Life Discoveries
    Gloria M. Palomo Carrasco at World Orphan Drug Congress 2024
    Gloria M. Palomo Carrasco
    Head of Service ATMPs and Vaccines, NonClinical Division, Medicines for Human Use Department
    AEMPS
  • Monica Ferrie at World Orphan Drug Congress 2024
    Monica Ferrie
    Chief Executive
    Genetic Support Network of Victoria
    Manel Fontanet at World Orphan Drug Congress 2024
    Manel Fontanet
    Pharmacotherapeutic Harmonization Technician
    Catalan Health Service
  • Cesar Hernandez at World Orphan Drug Congress 2024
    Cesar Hernandez
    General Director of Pharmacy
    Spanish Ministry of Health
    Farzana Malik at World Orphan Drug Congress 2024
    Farzana Malik
    Managing Partner
    Independent Market Access Expert
  • Mónica Climente at World Orphan Drug Congress 2024
    Mónica Climente
    Head of Pharmacy Service
    Hospital Universitario Doctor Peset
    Silvia Martin Lluesma at World Orphan Drug Congress 2024
    Silvia Martin Lluesma
    Head of Advanced Therapies Program
    VHIO
  • Trudy Nyakambangwe at World Orphan Drug Congress 2024
    Trudy Nyakambangwe
    Director
    Child and Youth Care
    Ian Rentsch at World Orphan Drug Congress 2024
    Ian Rentsch
    GM Pharma
    Centogene
  • Toni Roberts at World Orphan Drug Congress 2024
    Toni Roberts
    Patient & NPO Co Founder
    DEBRA South Africa
    Arantxa Sancho at World Orphan Drug Congress 2024
    Arantxa Sancho
    Medical Director
    Farmaindustria
  • Johan van Eldere at World Orphan Drug Congress 2024
    Johan van Eldere
    secretary-general
    European University Hospital Alliance
    Jordi Carreras-Puigvert at World Orphan Drug Congress 2024
    Jordi Carreras-Puigvert
    CSO
    Phenaros Pharmaceuticals AB
  • Robin Marcus at World Orphan Drug Congress 2024
    Robin Marcus
    Head of Global DCT Market Development
    Marken
    Ina Sarel at World Orphan Drug Congress 2024
    Ina Sarel
    Director of QA, RA
    NurExone Biologic
  • Rachel Paiva Petean Abu Taleb at World Orphan Drug Congress 2024
    Rachel Paiva Petean Abu Taleb
    Medical Monitor
    Veristat
    Vinciane Quoidbach at World Orphan Drug Congress 2024
    Vinciane Quoidbach
    Manager, Public Health And Policy, Research Project
    European Brain Council
  • Matteo Scarabelli at World Orphan Drug Congress 2024
    Matteo Scarabelli
    Market Access, Associated Director
    EFPIA - European Federation of Pharmaceutical Industries and Associations
    Alex Artyomenko at World Orphan Drug Congress 2024
    Alex Artyomenko
    Global Patient Affairs Director of Rare Diseases
    Ipsen
  • Thomas Butt at World Orphan Drug Congress 2024
    Thomas Butt
    Executive Director, Health Economics & Outcomes Research
    Biomarin
    Kyle Clifton at World Orphan Drug Congress 2024
    Kyle Clifton
    Senior Director, Pricing & Market Access
    Red Nucleus
  • Islam ElTantawy at World Orphan Drug Congress 2024
    Islam ElTantawy
    General Manager
    IROS CRO
    Michael Epstein at World Orphan Drug Congress 2024
    Michael Epstein
    VP and Head, Pricing and Commercial Strategy
    Clinigen Group
  • Roser Francisco at World Orphan Drug Congress 2024
    Roser Francisco
    Head of the Clinical Accreditation Unit
    Hospital Sant Joan de Déu
    Almenia Garvey at World Orphan Drug Congress 2024
    Almenia Garvey
    Sr. Director Global Feasibility/Site Engagement
    Allucent
  • Anna Gilmore at World Orphan Drug Congress 2024
    Anna Gilmore
    Director of Patient Engagement
    FSHD Society
    Christian Hendriksz at World Orphan Drug Congress 2024
    Christian Hendriksz
    Medical and Strategic Advisor
    A Rare Cause
  • Julian Isla at World Orphan Drug Congress 2024
    Julian Isla
    Director
    Foundation 29
    Maciek Klein at World Orphan Drug Congress 2024
    Maciek Klein
    Global Chief Business Officer
    Saventic Health GmbH
  • James Levine at World Orphan Drug Congress 2024
    James Levine
    President
    Fondation Ipsen
    Milan Marinkov at World Orphan Drug Congress 2024
    Milan Marinkov
    Executive Medical Director, TA Medical Lead
    Allucent
  • Stuart Mealing at World Orphan Drug Congress 2024
    Stuart Mealing
    Associate Director (HEOR)
    York Health Economics Consortium
    David Morrow at World Orphan Drug Congress 2024
    David Morrow
    Senior Scientific Program Manager
    EATRIS
  • Begonya Nafria Escalera at World Orphan Drug Congress 2024
    Begonya Nafria Escalera
    Patient Engagement in Research Coordinator
    SJD Children's Hospital
    Petra Nathan at World Orphan Drug Congress 2024
    Petra Nathan
    CRMA
    Novartis Pharma GmbH
  • Louise Perrault at World Orphan Drug Congress 2024
    Louise Perrault
    President & Chief Executive Officer
    International Market Access Consulting, GmbH
    Jennifer Schranz at World Orphan Drug Congress 2024
    Jennifer Schranz
    SVP, Global Head Rare Diseases
    Ipsen
  • Simon Shohet at World Orphan Drug Congress 2024
    Simon Shohet
    VP International Market Access and HEOR
    Amicus Therapeutics
    Oskar Smrzka at World Orphan Drug Congress 2024
    Oskar Smrzka
    CEO/CSO
    Ablevia biotech Gmbh
  • Oriol Solà-Morales at World Orphan Drug Congress 2024
    Oriol Solà-Morales
    Chief Executive Officer
    HiTT
    Bob Stevens at World Orphan Drug Congress 2024
    Bob Stevens
    Group CEO
    MPS Society
  • Daniel Vidal Moreira at World Orphan Drug Congress 2024
    Daniel Vidal Moreira
    Co-Founder
    Cellbyte GmbH
    Genevieve Wills at World Orphan Drug Congress 2024
    Genevieve Wills
    Associate Director, Biostatistical Consulting
    Allucent
  • Mila Zaballos at World Orphan Drug Congress 2024
    Mila Zaballos
    Senior Manager, Clinical Operations
    Allucent
    Inês Alves at World Orphan Drug Congress 2024
    Inês Alves
    President of the board
    ANDO Portugal
  • Wendy Erler at World Orphan Drug Congress 2024
    Wendy Erler
    Vice President, Global Head Patient Experience & Insights
    Alexion – AstraZeneca Rare Disease
    Monica Ines at World Orphan Drug Congress 2024
    Monica Ines
    HEOR Team Leader, Hemophilia
    Pfizer
  • Stefan Neudoerfer at World Orphan Drug Congress 2024
    Stefan Neudoerfer
    Executive Director, Head Market Access & Pricing Europe
    C.S.L. Behring Gmbh
    Stefano Romanelli at World Orphan Drug Congress 2024
    Stefano Romanelli
    Senior Government Affairs Manager
    European Confederation of Pharmaceutical Entrepreneurs (Belgium)
  • Ross Selby at World Orphan Drug Congress 2024
    Ross Selby
    Value, Access & External Affairs Director
    Italfarmaco
    Aldona Zygmunt at World Orphan Drug Congress 2024
    Aldona Zygmunt
    Public Affairs Director
    Pfizer
  • Manel Cascallo at World Orphan Drug Congress 2024
    Manel Cascallo
    General Director
    Theriva Biologics
    Colin O'Donnell at World Orphan Drug Congress 2024
    Colin O'Donnell
    Head of EUCAN & International Government Affairs
    Alexion – AstraZeneca Rare Disease
  • Allison Watson at World Orphan Drug Congress 2024
    Allison Watson
    CEO
    Ring20 Research and Support UK CIO
    Elizabeth Estes at World Orphan Drug Congress 2024
    Elizabeth Estes
    Executive Director
    Open Source Imaging Consortium
  • Jorge Mestre-Ferrandiz at World Orphan Drug Congress 2024
    Jorge Mestre-Ferrandiz
    Associate Professor
    Universidad Carlos III de Madrid
    Lesley Perkin at World Orphan Drug Congress 2024
    Lesley Perkin
    Patient Engagement & Policy Lead, UK & Ireland
    UCB
  • Leire Solis at World Orphan Drug Congress 2024
    Leire Solis
    Health Policy and Advocacy Manager
    IPOPI
    Andrea Wilkinson at World Orphan Drug Congress 2024
    Andrea Wilkinson
    Global Head of Epilepsy Patient Engagement
    UCB
  • Sofie Alverlind at World Orphan Drug Congress 2024
    Sofie Alverlind
    Coordinator and Project Leader
    Tandvards och Lakemedelsformansverket
    Xavier Badia at World Orphan Drug Congress 2024
    Xavier Badia
    Chief Executive Officer & Partner
    OMAKASE CONSULTING
  • Maria Molnar at World Orphan Drug Congress 2024
    Maria Molnar
    Professor of Neurology, Psychiatry, Clinical Genetics and Clinico-pharmacology
    Semmelweis University
    Parvathy Krishnan at World Orphan Drug Congress 2024
    Parvathy Krishnan
    Executive Director
    Krishnan Family Foundation
  • David Pearce at World Orphan Drug Congress 2024
    David Pearce
    Chair
    Sanford Health

 

Past Sponsors & Exhibitors | 130 Leading Solution Providers

 

  • Title Sponsor

    Alexion – AstraZeneca Rare Disease at World Orphan Drug Congress 2024

    Diamond Sponsor

    Clinigen Group at World Orphan Drug Congress 2024
  • Platinum Sponsor

    Ipsen at World Orphan Drug Congress 2024

    Platinum Sponsor

    Pfizer at World Orphan Drug Congress 2024
  • Platinum Sponsor

    Sanofi at World Orphan Drug Congress 2024

    Platinum Sponsor

    UCB at World Orphan Drug Congress 2024
  • Platinum Sponsor

    Red Nucleus at World Orphan Drug Congress 2024

    Platinum Sponsor

    Volv Global at World Orphan Drug Congress 2024
  • Gold Sponsor

    Allucent at World Orphan Drug Congress 2024

    Gold Sponsor

    AscellaHealth at World Orphan Drug Congress 2024
  • Gold Sponsor

    Chiesi Global Rare Diseases at World Orphan Drug Congress 2024

    Gold Sponsor

    CRA, Charles River Associates at World Orphan Drug Congress 2024
  • Gold Sponsor

    ICON PLC at World Orphan Drug Congress 2024

    Gold Sponsor

    OMAKASE CONSULTING at World Orphan Drug Congress 2024
  • Gold Sponsor

    Parexel at World Orphan Drug Congress 2024

    Gold Sponsor

    Partners4Access at World Orphan Drug Congress 2024
  • Gold Sponsor

    Takeda at World Orphan Drug Congress 2024

    Silver Sponsor

    Dolon at World Orphan Drug Congress 2024
  • Silver Sponsor

    Ergomed at World Orphan Drug Congress 2024

    Silver Sponsor

    Initiate at World Orphan Drug Congress 2024
  • Silver Sponsor

    IROS CRO at World Orphan Drug Congress 2024

    Silver Sponsor

    Marken at World Orphan Drug Congress 2024
  • Silver Sponsor

    Mendelian at World Orphan Drug Congress 2024

    Silver Sponsor

    OPEN Health at World Orphan Drug Congress 2024
  • Silver Sponsor

    Pharma Business Partners at World Orphan Drug Congress 2024

    Silver Sponsor

    Premier Research at World Orphan Drug Congress 2024
  • Silver Sponsor

    Prime Global at World Orphan Drug Congress 2024

    Silver Sponsor

    Remap Consulting at World Orphan Drug Congress 2024
  • Silver Sponsor

    Veristat at World Orphan Drug Congress 2024

    Silver Sponsor

    WEP Clinical at World Orphan Drug Congress 2024
  • Silver Sponsor

    Worldwide Clinical Trials at World Orphan Drug Congress 2024

    Bronze Sponsor

    Alira Health at World Orphan Drug Congress 2024
  • Bronze Sponsor

    Cascador Health at World Orphan Drug Congress 2024

    Bronze Sponsor

    conect4children at World Orphan Drug Congress 2024
  • Bronze Sponsor

    GeneScape at World Orphan Drug Congress 2024

    Bronze Sponsor

    International Market Access Consulting, GmbH at World Orphan Drug Congress 2024
  • Bronze Sponsor

    MedBioinformatics at World Orphan Drug Congress 2024

    Bronze Sponsor

    Open Source Imaging Consortium at World Orphan Drug Congress 2024
  • Bronze Sponsor

    Uniphar at World Orphan Drug Congress 2024

    Associate Sponsor

    Azafaros at World Orphan Drug Congress 2024
  • Associate Sponsor

    NurExone Biologic at World Orphan Drug Congress 2024

    Exhibitor

    Alchemist Consulting Ltd at World Orphan Drug Congress 2024
  • Exhibitor & Supporting Partner

    Associació síndrome de Turner de Catalunya at World Orphan Drug Congress 2024

    Exhibitor

    BAP Pharma at World Orphan Drug Congress 2024
  • Exhibitor

    Centogene at World Orphan Drug Congress 2024

    Exhibitor

    CTI Clinical Trial & Consulting at World Orphan Drug Congress 2024
  • Exhibitor

    Decisive Consulting Ltd at World Orphan Drug Congress 2024

    Exhibitor & Supporting Partner

    Dravet Syndrome Foundation Spain at World Orphan Drug Congress 2024
  • Exhibitor

    Envoya Inc. at World Orphan Drug Congress 2024

    Exhibitor & Supporting Partner

    ERDERA at World Orphan Drug Congress 2024
  • Exhibitor & Supporting Partner

    ERICA - European Rare Diseases Coordination and Support Action at World Orphan Drug Congress 2024

    Exhibitor

    ERN ITHACA at World Orphan Drug Congress 2024
  • Exhibitor & Supporting Partner

    EURORDIS at World Orphan Drug Congress 2024

    Exhibitor

    GlobalData Plc at World Orphan Drug Congress 2024
  • Exhibitor

    HomeNurse4U at World Orphan Drug Congress 2024

    Exhibitor

    IDEA Regulatory at World Orphan Drug Congress 2024
  • Exhibitor

    Ikris Pharma Network at World Orphan Drug Congress 2024

    Exhibitor

    Syneos Health at World Orphan Drug Congress 2024
  • Exhibitor

    Inbeeo at World Orphan Drug Congress 2024

    Exhibitor & Supporting Partner

    IRDiRC – International Rare Diseases Research Consortium at World Orphan Drug Congress 2024
  • Showcase Sponsor

    NurExone Biologic at World Orphan Drug Congress 2024

    Exhibitor

    Only Orphans Cote at World Orphan Drug Congress 2024
  • Exhibitor

    Onyx Scientific at World Orphan Drug Congress 2024

    Exhibitor

    PCM Trials at World Orphan Drug Congress 2024
  • Exhibitor

    PDC CRO at World Orphan Drug Congress 2024

    Exhibitor

    Phoenix CR at World Orphan Drug Congress 2024
  • Exhibitor

    QuickSTAT A Kuehne + Nagel Company at World Orphan Drug Congress 2024

    Exhibitor & Supporting Partner

    Rare Diseases International at World Orphan Drug Congress 2024
  • Exhibitor

    SKC Consulting at World Orphan Drug Congress 2024

    Exhibitor

    Tekkare at World Orphan Drug Congress 2024
  • Exhibitor

    Valid Insight at World Orphan Drug Congress 2024

    Startup

    Ablevia biotech Gmbh at World Orphan Drug Congress 2024
  • Startup

    Adigens Health at World Orphan Drug Congress 2024

    Startup

    Aptadel Therapeutics at World Orphan Drug Congress 2024
  • Startup

    Àvida Biotech at World Orphan Drug Congress 2024

    Startup

    Cellbyte GmbH at World Orphan Drug Congress 2024
  • Startup

    EveryONE Medicines at World Orphan Drug Congress 2024

    Startup

    MuSigmas Consultants S.L at World Orphan Drug Congress 2024
  • Startup

    ProtForge at World Orphan Drug Congress 2024

    Startup

    Rarus Health at World Orphan Drug Congress 2024
  • Startup

    Red Thread Market Access Ltd at World Orphan Drug Congress 2024

    Startup

    Trisk Bio at World Orphan Drug Congress 2024
  • Startup

    White Raven at World Orphan Drug Congress 2024

 

Get involved at World Orphan Drug Congress Europe 2025

 

 

TO SPONSOR


Kieran Duffin

Kieran.Duffin@terrapinn.com

 

Adam Mayar
Adam.Mayar@terrapinn.com

 

TO SPEAK


Abdu Kauroo
Abdu.Kauroo@terrapinn.com

 

MARKETING & PRESS


Jasper Cameron

Jasper.Cameron@terrapinn.com