2026 Supporting Partners

Biopharma Asia serves as a premier platform for sharing knowledge and information related to the biopharmaceutical sector in Asia. It focuses on various aspects of the industry, including drug development, manufacturing, quality...

Rare Diseases Are Our Focus, Expertise, and Passion Our Mission is to improve patient outcomes through awareness and education. At CheckRare, we recognize all rare disease definitions. We established our platform to share differing perspectives...

EATRIS is the European infrastructure for translational medicine. We bring together resources and services for research communities to translate scientific discoveries into benefits for patients. We are a non-profit organisation that provides...

The European Reference Network on rare endocrine conditions (Endo-ERN) aims to improve access to high-quality healthcare for patients with rare hormonal disorders. For this purpose the education of Reference Centres (RCs) across Europe will be...

ERN BOND brings together all rare diseases, essentially congenital, chronic and of genetic origin, that affect cartilage, bones and dentine. This considerable group of diseases present a significant variation in clinical outcomes and limited...

ERN eUROGEN is the European Reference Network (ERN) for rare uro-recto-genital diseases and complex conditions. ERN eUROGEN’s activities are essential to advance innovation in medicine, address gaps and collect evidence at the European...

The European FH Patient Network actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal...

IRDiRC exists to make rare disease research efforts more efficient and collaborative, around the world. IRDiRC members are dedicated to the mission of progressing research for the 300 million people and families living with rare disease...

Our mission is to unite LMNA experts, key opinion leaders, and patients in order to accelerate research and development, aiming to discover an effective treatment for LMNA-related cardiac diseases. LMNA is a gene that produces proteins essential...

Market Access Today is the premier platform dedicated to providing comprehensive coverage on the ever-evolving landscape of Market Access and Health Economics and Outcomes Research (HEOR). As the healthcare industry undergoes rapid...

Pathways to Trust focuses on advocating for rare disease patients and improving access to care. They aim to eliminate biases in healthcare by fostering collaboration among patients, healthcare providers, and advocates. The organization provides...

Patient Worthy® is an online publication that provides relevant information to rare disease patients, caregivers and advocates alike. We connect those impacted by rare conditions with educational resources, advocacy groups, and news updates...

Screen4Care offers an innovative research approach to accelerate rare disease diagnosis, which is based on two central pillars: genetic newborn screening and digital technologies. People living with rare diseases often find themselves on a...

The Evidence Base® is a leading online platform curating the latest news, expert opinion, and multimedia content on real-world evidence (RWE), market access and the broader aspects of health economics and outcomes research. We provide in-depth...