Advisory Board

 

27-29 October 2025
RAI Congress Center, Amsterdam

 

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Yann Le Cam
Founder & Former CEO
EURORDIS  - Rare Diseases Europe
Yann Le Cam World Orphan Drug Congress
Daniel O’Connor
Director Regulatory and Early Access Policy
ABPI
Daniel O’Connor at World Orphan Drug Congress
Rick Thompson
CEO
Beacon
Rick Thompson at World Orphan Drug Congress
Durhane Wong-Rieger
President & CEO
Canadian Organization for Rare Disorders
Durhane Wong-Rieger at World Orphan Drug Congress
Toon Digneffe
Head Public Affairs & Public Policy
Takeda
Toon Digneffe World at Orphan Drug Congress
Sheela Upadhyaya
Life Science Advisor in Rare Diseases & Special Advisor
Former FIPRA
Sheela Upadhyaya at World Orphan Drug Congress
Charlotte Chanson
Director, Global Diagnostics & Newborn Screening
Orchard Therapuetics
Charlotte Chanson at World Orphan Drug Congress
Josie Godfrey
Former Associate Director of NICE
Rare Disease, Market Access, JG Zebra Consulting
Josie Godfrey at World Orphan Drug Congress
Anna Bucsics
Project Advisor
MoCA
Anna Bucsics at World Orphan Drug Congress
Dr Alexander Natz
Secretary General
EUCOPE
Dr Alexander Natz at World Orphan Drug Congress
Giorgio Lotti, PhD
Vice President, Global Rare Diseases R&D Pipeline and Portfolio
Chiesi Group
Giorgio Lotti at World Orphan Drug Congress
Samantha Parker
Patient Advocacy and Communication Lead Rare Diseases Europe
Italfarmaco
Samantha Parker at World Orphan Drug Congress
Wills Hughes-Wilson
Head of Patient Access & Commercial Planning
Mereo BioPharma
Wills Hughes-Wilson at World Orphan Drug Congress
Anne-Sophie Chalandon
Head of Global Affairs, Rare Diseases & CGT Policy Speciality Care
Sanofi
Anne-Sophie Chalandon at World Orphan Drug Congress
Marcus Guardian
General Manager
International Horizon Scanning Initiative
Marcus Guardian at World Orphan Drug Congress
Martine Zimmermann
Senior Vice President, Head of Regulatory Affairs, R&D Quality
Ipsen
Martine Zimmermann at World Orphan Drug Congress
Karen Facey
Senior Research Fellow
University of Edinburgh
Karen Facey at World Orphan Drug Congress
Dr Violeta Stoyanova-Beninska
Chair of Committee for Orphan Medicinal Products, EMA
Policy, Regulatory and International Affairs, CBG -MEB
Dr Violeta Stoyanova-Beninska at World Orphan Drug Congress
Fabienne Bartoli
Inspector General for Social Affairs
French Ministry of Health
Fabienne Bartoli at World Orphan Drug Congress
Dr Soraya Bekkali
Senior Vice President, International Commerical Operations
Alexion, AstraZeneca Rare Diseases
Dr Soraya Bekkali at World Orphan Drug Congress
 
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Get involved at World Orphan Drug Congress Europe 2025

 

 

TO SPONSOR


Kieran Duffin
Kieran.Duffin@terrapinn.com

 

Adam Mayar
Adam.Mayar@terrapinn.com

 

TO SPEAK


Abdu Kauroo
Abdu.Kauroo@terrapinn.com

 

MARKETING & PRESS


Jasper Cameron
Jasper.Cameron@terrapinn.com

 

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