Advisory Board

 

We’re proud to work alongside a stellar line up of Orphan Drug and Gene Therapy Professionals who have helped us curate the most up to date and relevant program for you.

Yann Le Cam Advisory Board at World Orphan Drug Congress
Yann Le Cam
CEO
EURORDIS 
Rick Thompson Advisory Board at World Orphan Drug Congress
Rick Thompson
CEO
Findacure
Durhane Wong-Rieger Advisory Board at World Orphan Drug Congress
Durhane Wong-Rieger
President & CEO
Canadian Organization for Rare Disorders
Dr Ségolène Aymé Advisory Board at World Orphan Drug Congress
Dr Ségolène Aymé
Founder of Orphanet, Emeritus Research Director
INSERM
Steve Groft Advisory Board at World Orphan Drug Congress
Steve Groft
Senior Advisor to Director, NCATS
NIH
Dr Josep Torrent-Farnell Advisory Board at World Orphan Drug Congress
Dr Josep Torrent-Farnell
Former Head of the Medicines Divison
CatSalut  
Alastair Kent Advisory Board at World Orphan Drug Congress
Alastair Kent
Former Director
Genetic Alliance UK
Sheela Upadhyaya Advisory Board at World Orphan Drug Congress
Sheela Upadhyaya
Former Associate Director Highly Specialised Technologies
NICE
Dr Bruno Sepodes Advisory Board at World Orphan Drug Congress
Dr Bruno Sepodes
Chair of COMP
EMA
Dr Pedro Franco Advisory Board at World Orphan Drug Congress
Dr Pedro Franco
Former Scientific Administrator
EMA   
Josie Godfrey Advisory Board at World Orphan Drug Congress
Josie Godfrey
Former Associate Director
NICE
Anna Bucsics Advisory Board at World Orphan Drug Congress
Anna Bucsics
Project Advisor
MoCA   
Dr Alexander Natz Advisory Board at World Orphan Drug Congress
Dr Alexander Natz
Secretary General
EUCOPE
Dr Diego Ardigo Advisory Board at World Orphan Drug Congress
Dr Diego Ardigo
IRDiRC Chair & R&D Rare Diseases Unit Head,
Chiesi Group
Professor Michael Linden Advisory Board at World Orphan Drug Congress
Professor Michael Linden
Former VP Gene Therapy & Head, GMI
Pfizer
Wills Hughes-Wilson Advisory Board at World Orphan Drug Congress
Wills Hughes-Wilson
Head of Patient Access & Commercial Planning
Mereo BioPharma
Dr Carlo Incerti Advisory Board at World Orphan Drug Congress
Dr Carlo Incerti
SVP, Former Head of Global Medical Affairs, CMO,
Genzyme
Dr Mathew Pletcher Advisory Board at World Orphan Drug Congress
Dr Mathew Pletcher
Head of Rare Disease Discovery
Roche  
Dr M Ken Kengatharan Advisory Board at World Orphan Drug Congress
Dr M Ken Kengatharan
Managing Director
Atheneos
Dr Birgitte Volck Advisory Board at World Orphan Drug Congress
Dr Birgitte Volck
President, R&D
AVROBIO 

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