Advisory Board

We’re proud to work alongside a stellar line up of Orphan Drug and Gene Therapy Professionals who have helped us curate the most up to date and relevant program for you.

Daniel O'Connor Advisory Board at World Orphan Drug Congress

Daniel O’Connor

Expert Medical Assessor in Licensing Division

Medicines and Healthcare Products Regulatory Agency

Rick Thompson Advisory Board at World Orphan Drug Congress

Durhane Wong-Rieger Advisory Board at World Orphan Drug Congress

Durhane Wong-Rieger

President & CEO

Canadian Organization for Rare Disorders

Former Director

Genetic Alliance UK

Sheela Upadhyaya

Former Associate Director Highly Specialised Technologies

Dr Pedro Franco

Director of Europe for Global Regulatory & Scientific Policy (GRASP)

Josie Godfrey Advisory Board at World Orphan Drug Congress

Former Associate Director

Project Advisor

Dr Alexander Natz Advisory Board at World Orphan Drug Congress

Dr Alexander Natz

Secretary General

Dr Diego Ardigo

IRDiRC Chair & R&D Rare Diseases Unit Head

Samantha Parker Advisory Board at World Orphan Drug Congress

Samantha Parker

Chief Patient Access Officer

Wills Hughes-Wilson Advisory Board at World Orphan Drug Congress

Wills Hughes-Wilson

Head of Patient Access & Commercial Planning

Mereo BioPharma

Dr Carlo Incerti Advisory Board at World Orphan Drug Congress

Dr Carlo Incerti

Operating Partner

Dr M Ken Kengatharan

Managing Director

Dr Josep Torrent-Farnell Scientific Advisory Board at World Orphan Drug Congress

Dr Josep Torrent-Farnell

Former Head of the Medicines Divison Licensing Division

Universitat Autònoma de Barcelona

Senior Research Fellow

University of Edinburgh