ADVISORY BOARD

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Yann Le Cam
CEO
EURORDIS
Yann Le Camat World Orphan Drug Congress
Daniel O’Connor
Expert Medical Assessor in Licensing Division
Medicines and Healthcare Products Regulatory Agency
Daniel O’Connorat World Orphan Drug Congress
Rick Thompson
CEO
Beacon
Rick Thompsonat World Orphan Drug Congress
Durhane Wong-Rieger
President & CEO
Canadian Organization for Rare Disorders
Durhane Wong-Riegerat World Orphan Drug Congress
Alastair Kent
Former Director
Genetic Alliance UK
Alastair Kentat World Orphan Drug Congress
Sheela Upadhyaya
Life Science Advisor in Rare Diseases & Special Advisor
FIPRA
Sheela Upadhyayaat World Orphan Drug Congress
Dr Pedro Franco
Director of Europe for Global Regulatory & Scientific Policy (GRASP)
Merck KGaA
Dr Pedro Francoat World Orphan Drug Congress
Josie Godfrey
Former Associate Director
NICE
Josie Godfreyat World Orphan Drug Congress
Anna Bucsics
Project Advisor
MoCA
Anna Bucsicsat World Orphan Drug Congress
Dr Alexander Natz
Secretary General
EUCOPE
Dr Alexander Natzat World Orphan Drug Congress
Dr Diego Ardigo
IRDiRC Chair & R&D Rare Diseases Unit Head
Chiesi Group
Dr Diego Ardigoat World Orphan Drug Congress
Samantha Parker
Chief Patient Access Officer
InnoSkel
Samantha Parkerat World Orphan Drug Congress
Wills Hughes-Wilson
Head of Patient Access & Commercial Planning
Mereo BioPharma
Wills Hughes-Wilsonat World Orphan Drug Congress
Dr Carlo Incerti
Operating Partner
Forbion
Dr Carlo Incertiat World Orphan Drug Congress
Dr M Ken Kengatharan
Managing Director
Atheneos
Dr M Ken Kengatharanat World Orphan Drug Congress
Dr Josep Torrent-Farnell
Former Head of the Medicines Divison Licensing Division
Universitat Autònoma de Barcelona
Dr Josep Torrent-Farnellat World Orphan Drug Congress
 
Karen Facey
Senior Research Fellow
University of Edinburgh
Karen Faceyat World Orphan Drug Congress
 
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