Alberta Spreafico is a global health innovation pioneer with 15 years of experience advancing digital health policy and systemic innovation strategies. She has co-founded and led international development programmes integrating digital technologies across health systems in both high- and low-income settings, contributing to NASA’s Benefits to Humanity programme and UN expert initiatives. As SVP of Health Innovation at EVERSANA, she drives end-to-end innovation — from co-ideation and development to commercialization and system readiness. A TEDx speaker on enhancing access to quality care worldwide, she serves on the EHDS HealthData@EU Board and advices the American Telemedicine Association (former Digital Therapeutics Alliance) on digital health policy in Europe. Working at the intersection of research, policy, and practice, she is also an Academic Fellow in the Government, Health and Not for Profit Division at SDA Bocconi School of Management and Adjunct Professor of Policy and Economics at the University of Pavia.
Lysosomal Storage Disorders (LSDs) present significant challenges, including delayed diagnoses, fragmented care pathways, and limited access to specialist care. Digital health technologies offer a transformative opportunity to address unmet needs by enabling earlier intervention, enhancing care coordination, and empowering patients and healthcare providers with innovative tools.
Utilizing interactive tools and featuring multi-stakeholder perspectives from patients to industry and policymakers, this discussion will explore the integration of digital health innovations ranging from AI to telemedicine, digital medical devices, and other connected care technologies into care pathways for rare diseases across Europe