Attendee List
 

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Organisation
Job Title
  • 161 Consulting Ltd
    Advocate and Advisor
  • 2 Park Ave
    President
  • A Rare Cause
    Medical and Strategic Advisor
  • Aayam Therapeutics LLC
    Chief Executive Officer
  • Ablevia biotech Gmbh
    CEO/CSO
  • Ablevia biotech Gmbh
    CEO/CSO
  • Ablevia biotech Gmbh
    Sr. Scientist
  • ABPI
    Director, Regulatory Policy & Early Access
  • Acaf
  • ACAH
    Pharm
  • Acanthamoeba Keratitis Eye Foundation
    Rare Disease Patient Advocate & Chairwoman
  • Acctia consulting
    Directir & fiunder
  • ACESO
    Principal Consultant, Founder
  • ACESO Healthcare
    Strategy Consultant & Founder
  • ACOPEL
    Directora Ejecutiva
  • Acuity Strategic Partners
    Network Partner
  • Acuity Strategic Partners
    Founding Partner
  • Acuity Strategic Partners LLC.
    Partner
  • Adcum - association of urea and metabolic cycle disorders Peru
    Prexident
  • Adelphi Values PROVE
    Associate Director
  • Adigens Health
    CEO
  • Adigens Health
    Coo
  • admedicum Patient Driven Solutions
    Managing Partner, admedicum GmbH & Co KG
  • ADNP Kids Research Foundation
    Founder/CEO
  • Advanz Pharma
    Senior Manager, Portfolio Strategy
  • Advanz Pharma
    Portfolio Manager
  • AEMPS
    Head of Service ATMPs and Vaccines, NonClinical Division, Medicines for Human Use Department
  • AEMPS
    HTA Project Manager
  • AFaDOC
    Presidente associazione
  • AFM Téléthon
    public affairs
  • AGSD-UK - PATIENT GROUP
    GSD 1 Coordinator AGSD-UK
  • Ahead Therapeutics S.L.
    Business Development Manager
  • AIFP
  • AISAC ODV
    President
  • AKU Society
    Chair and Chief Executive Officer
  • Alamera
    Project Manager
  • Alan Boyd Consultants Ltd
    Chief Medical Officer
  • Alchemist Consulting Ltd
    Managing Director
  • Alchemist Consulting Ltd
    Business Development
  • Alchemist Consulting Ltd
    Business Development
  • Alex Therapeutics
    Director of Growth
  • Alexion
    Global medical director pharmacovigilance
  • Alexion
    Director, epidemiology
  • Alexion
    Sr Mgr Global Medical Training
  • Alexion
    IT R&D
  • Alexion
    Global ESE Head Pipeline - Neurology/Ophthalmology & Genomics Meds
  • Alexion
    International HEOR
  • Alexion
    Medical Director Patient Safety
  • Alexion
    Director, Medical Information Medical Review
  • Alexion
    Associate Director HEOR
  • Alexion
    Patient Advocacy Director
  • Alexion – AstraZeneca Rare Disease
    Project Manager
  • Alexion – AstraZeneca Rare Disease
    International Patient Services Director
  • Alexion – AstraZeneca Rare Disease
    Drug project coordinator
  • Alexion – AstraZeneca Rare Disease
    Senior Specialist, Regulatory Affairs Management
  • Alexion – AstraZeneca Rare Disease
    Communications Director
  • Alexion – AstraZeneca Rare Disease
    Start up Manager
  • Alexion – AstraZeneca Rare Disease
    RA Senior Manager
  • Alexion – AstraZeneca Rare Disease
    International Patient Services Manager
  • Alexion – AstraZeneca Rare Disease
    HEAD OF FINANCE & STRATEGY
  • Alexion – AstraZeneca Rare Disease
    International Patient Support Programs Director
  • Alexion – AstraZeneca Rare Disease
    Regulatory Affairs
  • Alexion – AstraZeneca Rare Disease
    Associate Director, International Regulatory Affairs
  • Alexion – AstraZeneca Rare Disease
    Associate medical director
  • Alexion – AstraZeneca Rare Disease
    Head Of Patient Services
  • Alexion – AstraZeneca Rare Disease
    Senior Manager, Iberia Quality
  • Alexion – AstraZeneca Rare Disease
    Senior Specialist, Regulatory Affairs Management
  • Alexion – AstraZeneca Rare Disease
    Head of EUCAN & International Government Affairs
  • Alexion – AstraZeneca Rare Disease
    Head of EUCAN & International Government Affairs
  • Alexion – AstraZeneca Rare Disease
    Global Program Director
  • Alexion – AstraZeneca Rare Disease
    Regulatory Affairs Specialist
  • Alexion – AstraZeneca Rare Disease
    Associate Director Epidemiology
  • Alexion – AstraZeneca Rare Disease
    Senior Director Government Affairs
  • Alexion – AstraZeneca Rare Disease
    Country Operation Management
  • Alexion – AstraZeneca Rare Disease
    Global Study Manager
  • Alexion – AstraZeneca Rare Disease
    Patient Advocacy Director
  • Alexion – AstraZeneca Rare Disease
    Director, Global Regulatory Strategy
  • Alexion – AstraZeneca Rare Disease
    International, Regulatory Affairs Manager
  • Alexion – AstraZeneca Rare Disease
    Senior Director, Regulatory Science
  • Alexion – AstraZeneca Rare Disease
    Director Clinical Outsourcing
  • Alexion – AstraZeneca Rare Disease
    Head, Global Rare Disease Policy
  • Alexion – AstraZeneca Rare Disease
    Head, Global Rare Disease Policy
  • Alexion – AstraZeneca Rare Disease
    National Market Access Lead
  • Alexion – AstraZeneca Rare Disease
    Head of Country Operations
  • Alexion – AstraZeneca Rare Disease
    Commercial Operations & Insights
  • Alexion – AstraZeneca Rare Disease
    Associate Director, Global Regulatory Affairs
  • Alexion – AstraZeneca Rare Disease
    Vice President Clinical Development
  • Alexion – AstraZeneca Rare Disease
    Head of Iberia Regulatory Affairs and Quality
  • Alexion – AstraZeneca Rare Disease
    Talent Acquisition Partner
  • Alexion – AstraZeneca Rare Disease
    Global Study Manager
  • Alexion – AstraZeneca Rare Disease
    Associate Director Project Manager
  • Alexion – AstraZeneca Rare Disease
    Senior Specialist, Regulatory Affairs Management
  • Alexion – AstraZeneca Rare Disease
    Medical diretor
  • Alexion – AstraZeneca Rare Disease
    Commercial Operations Manager
  • Alexion – AstraZeneca Rare Disease
    Senior Director - Global Regulatory Affairs
  • Alexion – AstraZeneca Rare Disease
    Patient Advocacy Director
  • Alexion – AstraZeneca Rare Disease
    Associate Director RA Iberia
  • Alexion – AstraZeneca Rare Disease
    Patient Affairs Manager
  • Alexion – AstraZeneca Rare Disease
    VP and General Manager Spain and Portugal
  • Alexion – AstraZeneca Rare Disease
    Director, Communications
  • Alexion – AstraZeneca Rare Disease
    Associate Director
  • Alexion – AstraZeneca Rare Disease
    Medical Affairs Support
  • Alexion – AstraZeneca Rare Disease
    Head of HR, European R&D HUB, Iberia & Markets Expansion
  • Alexion – AstraZeneca Rare Disease
    Global Head of Launch
  • Alexion – AstraZeneca Rare Disease
    Clinical Development, Associate Medical Director
  • Alexion – AstraZeneca Rare Disease
    Director Communications Italy
  • Alexion – AstraZeneca Rare Disease
    Senior Legal Counsel
  • Alexion – AstraZeneca Rare Disease
    Senior Specialist, Regulatory Affairs Management
  • Alexion – AstraZeneca Rare Disease
    Global Study Associate Director
  • Alexion – AstraZeneca Rare Disease
    Head EU Government Affairs
  • Alexion – AstraZeneca Rare Disease
    Global Regulatory Affairs - International
  • Alexion – AstraZeneca Rare Disease
    Global Study Associate Manager
  • Alexion – AstraZeneca Rare Disease
    Patient Services Governance Lead - International
  • Alexion – AstraZeneca Rare Disease
    VP, Global Head of Country Operations
  • Alexion – AstraZeneca Rare Disease
    Medical Advisor
  • Alexion – AstraZeneca Rare Disease
    Director of Epidemiology
  • Alexion – AstraZeneca Rare Disease
    Global Clin Dev Lead
  • Alexion – AstraZeneca Rare Disease
    Global Program Director
  • Alexion – AstraZeneca Rare Disease
    GRA
  • Alexion – AstraZeneca Rare Disease
    Vice President, Development, Productivity & Quality
  • Alexion – AstraZeneca Rare Disease
    Global Program Director
  • Alexion – AstraZeneca Rare Disease
    Head of Commercial Operations, EUCAN & International
  • Alexion – AstraZeneca Rare Disease
    talent acquisition partner
  • Alexion – AstraZeneca Rare Disease
    VP, Head of Clinical Development
  • Alexion – AstraZeneca Rare Disease
    Market Access Director
  • Alexion – AstraZeneca Rare Disease
    Regulatory Intelligence & Policy Specialist
  • Alexion – AstraZeneca Rare Disease
    Head of Communications Central & Northern Europe
  • Alexion – AstraZeneca Rare Disease
    Project manager
  • Alexion – AstraZeneca Rare Disease
    EUCAN & International Communications, Alexion
  • Alexion – AstraZeneca Rare Disease
    Medical Director
  • Alexion – AstraZeneca Rare Disease
    VP Medical, EUCAN, Intl, Japan
  • Alexion – AstraZeneca Rare Disease
    VP, Head of Rare Disease Markets Expansion
  • Alexion – AstraZeneca Rare Disease
    Head of International Government Affairs and Policy
  • Alexion – AstraZeneca Rare Disease
    Head of International Patient Advocacy
  • Alexion – AstraZeneca Rare Disease
    Government Affairs Director Spain
  • Alexion – AstraZeneca Rare Disease
    Director, Regulatory Affairs
  • Alexion Astra Zeneca Rare Disease
    Senior Marketing Manager
  • Alexion Pharma
    Associate Director Global Strategic Sourcing, R+D Clinical Outsourcing, Metabolics+
  • Alexion Pharmaceuticals
    SVP, EUCAN & International Business of Alexion, AstraZeneca Rare Disease
  • Alexion Pharmaceuticals, Inc
    GHEOR Senior Director
  • Alexion, AstraZeneca Rare Diseases
    Associate Director, RWE Center of Excellence - HEOR
  • Alexion, AZ
    Talent Scout
  • Alexion, AZ Rare Disease
    Associate Director Strategic Evaluation
  • Alexion/AstraZeneca
    Senior Director
  • Aliath Bioventures
    ASSOCIATE
  • Aliath Bioventures
    Senior Investment Analyst
  • Alira Health
    Engagement Manager
  • Alira Health
    Senior Consultant
  • Alira Health
    Managing Partner Global Access and Pricing
  • Alira Health
    Partner of Market Access & Pricing
  • Alira Health
    SVP, Global Marketing
  • Alira Health
    Director, Regulatory and Clinical Development
  • Alira Health
    EVP, Pharma
  • Alira Health
    Director, Real-World Solutions
  • Alira Health
    Senior Director, Global Campaigns
  • Alira Health
    Senior Director, Global Campaigns
  • Alliance for Regenerative Medicine
    Director, European Policy and Advocacy
  • Alliance for Regenerative Medicine
    Vice President, Public Affairs, Europe
  • Allucent
    Sr. Director Global Feasibility/Site Engagement
  • Allucent
    Senior Director, Business Development
  • Allucent
    Associate Director, Biostatistical Consulting
  • Allucent
    Director, Pharmacometrics
  • Allucent
    Director, Business Development
  • Allucent
    Senior Manager, Clinical Operations
  • Allucent
    Executive Medical Director, TA Medical Lead
  • Allucent
    Associate Director, Business Development
  • Allucent
    Senior Manager, Account Development
  • Allucent
    Events Manager
  • Allucent
    Senior Manager, Clinical Operations
  • Almac Clinical Services
    Business Development Manager
  • Almac Group
    Business Development Manager
  • Almirall
    Executive Director Global Clinical Operations
  • Almirall
    Licensing Associate Director
  • Almirall
    Global Early Market Access Manager
  • Almirall
    Global Market Access
  • Almirall
    Early market access strategist
  • Almirall
    Licensing Associate Director
  • Almirall, S.A.
    Global Head Market Access and Pricing
  • AlveoGene
    Executive Chair
  • AlveoGene
    Executive Chair
  • American university of Athens
    pharmaceutial researcher
  • Amicus Therapeutics
    VP International Market Access and HEOR
  • Amicus Therapeutics
    VP International Market Access and HEOR
  • Amivas
    VP, R&D
  • Amivas
    COO
  • Ampleia
    Head of Development
  • Amplity Health
    Director of Business Development
  • Andalusian Health Technology Assessment Area (AETSA), Progress and Health Foundation (FPS).
    Area Coordinator
  • Andalusian Health Technology Assessment Area (AETSA), Progress and Health Foundation (FPS).
    Senior researcher
  • Andemax Consulting
    Principal
  • ANDO Portugal
    President of the board
  • Angelini Pharma
    Global P&R
  • Angiotensin Therapeutics
    Physician/Researcher
  • Annabelle's Challenge Vascular EDS Charity
    CEO
  • ANSEDH Asociación Nacional del Síndrome de Ehlers-Danlos e Hiperlaxitud
    Vice-president and ePAG Advocate
  • ANSEDH Asociación Nacional Síndrome Ehlers Danlos e Hiperlaxitud
    Delegación Cataluña
  • APHP, Pitié-Salpêtrière Hospital, ALS reference center
    MD, PhD, neurologist
  • Aptadel Therapeutics
    CEO
  • Aptadel Therapeutics
    COO
  • Aptadel Therapeutics
    Head of Research And Development
  • Aristea International S.r.l.
  • ARPA-H
    Program Manager
  • Arthur's Quest/ SLC6A1 Connect UK
    Founder and Chief Executive Officer
  • Arthur's Quest/ SLC6A1 Connect UK
    Founder and Chief Executive Officer
  • AS WE KNOW
    CEO
  • AS WE KNOW
    CEO
  • AS WE KNOW
    Senior business advisor
  • AS WE KNOW
    VP Business Development
  • AscellaHealth
    Director of Business Development
  • AscellaHealth
    Director of Business Development
  • AscellaHealth
    President
  • AscellaHealth
    Sr. VP Trade and Specialty Strategy
  • AscellaHealth
    Executive VP, Business Development
  • AscellaHealth
    Director Supply Chain Management
  • AscellaHealth
    VP, Market Access
  • AscellaHealth
    VP, Market Access
  • AscellaHealth
    CFO
  • AscellaHealth
    Director of Marketing
  • AscellaHealth
    Consultant
  • AscellaHealth
    Marketing Manager
  • AscellaHealth
    Marketing Manager
  • Ascendis Pharma
    Senior Professional
  • Ascendis Pharma
    Market Access Director
  • Ascendis Pharma Iberia
    General Manager
  • AseBio
    Head of Health Area
  • Asociacion CTNNB1
    Scientific Advisor @ ePAG ERN Ithaca
  • Asociacion CTNNB1 España
    Trabajo social
  • ASOCIACIÓN CTNNB1 ESPAÑA
    TEACHER / MOTHER / ASSOCIATION BOARD MEMBER
  • Asociacion CTNNB1 Spain
    President
  • Asociación FFPaciente
    Presidente Asociación FFpaciente.
  • Asociación Gaucher de México
    Contador
  • Asociacion SAMS
    manager
  • Asociación síndrome de Turner Andalucía
    Presidenta de la Asociación síndrome de Turner Andalucía
  • asociacion sindrome persona rigida
    secretari organitzacio
  • Asociacion Síndrome Phelan McDermid
    Delegat
  • Asociación Síndrome Phelan-McDermid
    Coordinadora general
  • Asociación Síndrome STXBP1
    President
  • Asphalion, S.L.
    Business Strategy and Innovation Director
  • Aspire Biosciences
    Founder & Chief Executive Officer
  • Assistance Publique Hôpitaux de Paris
    Project Manager ERN ITHACA
  • ASSOCIACIO SINDROME DE TURNER
    Representative
  • Associació Sindrome de Turner Catalunya
    Communication
  • Associació Síndrome de Turner Catalunya
    Member
  • Associació Síndrome de Turner Catalunya
    Enfermero
  • Associació síndrome de Turner de Catalunya
    Presidenta
  • Associació síndrome de Turner de Catalunya
    Presidenta
  • Association Aux Pas du Coeur
    Caregiver
  • Association Aux Pas du Coeur
    Founder
  • AST
    Assistant
  • AST - Turner Syndrome Association of Catalonia
    Social integrator
  • AST - Turner Syndrome Association of Catalonia
    Board Member
  • AstraZeneca
    Talent Acquisition Lead Barcelona Hub
  • AstraZeneca
    Global Medical Director
  • AstraZeneca
    EXECUTIVE GLOBAL TALENT SCOUT
  • AstraZeneca
    Business Unit Director Rare Diseases Balkans
  • AstraZeneca
    VP Corporate Affairs Alexion AZ EUCAN
  • ATaK
    Trabajadora Social
  • Atheneos Ventures
    Managing General Partner
  • AtmosR
    CEO
  • AtmosR
    CEO
  • Aurora Healthcare Communications
    Senior Account Executive
  • Aurora Healthcare Communications
    Senior Account Manager
  • AVet Health
    CEO & Managing Director
  • Àvida Biotech
    CEO & Founder
  • Àvida Biotech
    CEO & Founder
  • AVLT/Eurordis
    Scientist
  • AxTalis
    Chief Medical Officer
  • AxTalis
    EU Market Access Director
  • Azafaros
    Head of Business Development
  • Azafaros
    CEO
  • Azafaros
    CEO
  • Azafaros
    CEO
  • Azafaros
    Head Patient Engagement
  • BANC DE SANG I TEIXITS
    Tissue Bank Operations & Lean Manager
  • BAP Pharma
    Business Development Manager
  • BAP Pharma
    Project Manager - Medicines Access
  • BAP Pharma
    Marketing Manager
  • BAP Pharma
    Commercial Manager - Medicines Access
  • Barcelona Children's Hospital Sant Joan de Deu, Research foundation
    Clinical Research Director
  • Barcelona Children's Hospital Sant Joan de Deu, Research foundation
    Clinical Research Director
  • Barcelona University
    Research collaborator
  • Beacon for Rare Diseases
    Foundations and Trusts Volunteer
  • Beacon for Rare Diseases
    Co-founder & Trustee
  • Beacon: for rare diseases
    Senior Fundraising Officer
  • Beigene
    Market Access Director Iberia
  • Bellvitge University Hospital
    MD
  • BfArM
    Head of Unit
  • BIH / Charité
    Research assistant
  • Bioclever
    Business Developer
  • Biocodex
    Portfolio Manager Orphan
  • Biocodex
    VP Business Development & Licensing
  • Biocryst
    Market Access Director
  • BioCryst Pharmaceuticals
    Vice President, Value & Access
  • BioCryst Pharmaceuticals
    General Manager, UK, Ireland, Nordics
  • Biogen
    Director, Value and Access
  • Biogen
    Director
  • Biolizard
    Director of Scientific Engagement
  • BioMarin
    Market Access Lead
  • BioMarin
    VP Global Head, Value, Access & Strategic Pricing
  • Biomarin
    Executive Director, Health Economics & Outcomes Research
  • BioMarin
    Sr Director Market Access
  • Biomedica EE, s.r.o.
    Head Global Medical and Patient Access
  • BioMedica SE & Black Sea OOD
    Marketing Director
  • Biopharma Group
    Joint Head of Sales
  • Biotechnology Business Insitute
    Institutional Affairs Manager
  • BIOVIS PHARMA
    Chief Executive Officer
  • Blueprint Medicines
    Director of International Patient Affairs
  • Blueprint Medicines
    Director of International Patient Affairs
  • BOOST Pharma ApS
    CEO
  • BOOST Pharma ApS
    CEO
  • BridgeBio Pharma
    Head Of Patient Advocacy
  • BROMOLOGOS
    Patient advocate
  • Caidya
    Senior Director Clinical Development
  • CAIDYA
    Director, Account Management
  • CAIDYA
    Vice President, Rare Disease and Pediatrics
  • Cambridge Healthcare Research
    Manager
  • CamRARE
    Managing Director
  • Canadian Organisation for Rare Disorder & Rare Diseases International
    President, Chief Executive Officer
  • Casa Hunter
    President
  • Cascador Health
    Business Development Director
  • Castilla-la Mancha Regional Government
    Head of the Social and Health Care and Resources Service
  • Catalan Health Service
    Pharmacotherapeutic Harmonization Technician
  • Catenion GmbH
    Manager
  • CatSalut
    drug evaluation technician
  • Cauda Equina Foundation, Inc.
    President & CEO
  • CCDR/Pathways Telehealth Nurse Service
    Chief Executive
  • CDKL5 Canada
    Board Member
  • CEBIS International SAGL
    Business Director Europe – Patient Experience
  • Cellbyte GmbH
    Co-Founder
  • Cellbyte GmbH
    Co-Founder
  • Cellbyte GmbH
    Co-Founder
  • Cellbyte GmbH
    Co-Founder
  • Cellbyte GmbH
    Co-Founder
  • Centogene
    VP Business Development
  • Centogene
    Sales Manager Spain France
  • Centogene
    SVP Head of Int. BD & Strategic Delivery Mgmt.
  • Centogene
    GM Pharma
  • Centogene
    GM Pharma
  • CENTRE-ALLIANCE FOR RARE DISEASES IN RWANDA
    Chairman
  • CENTRE-ALLIANCE FOR RARE DISEASES IN RWANDA
    Executive Director
  • CENTRE-ALLIANCE FOR RARE DISEASES IN RWANDA
    Chairman
  • Cepheid
    EMEA HEOR Lead
  • Cepheid
    EMEA HEOR Lead
  • Certara Germany GmbH
    Enterprise Account Manager
  • Certest Pharma
    Business Development Specialist
  • Certest Pharma
    Business Development Manager
  • Certest Pharma
    Business Development Specialist
  • Certest Pharma
    Marketing and Business Developer
  • CEVIDRA
    Business Development Manager
  • CFT
    Patient advocate
  • CGD Association of America
    Founder and Executive Director
  • Charcot Marie Tooth Association
    Chief Research Officer
  • Charles River Associates
    Principal
  • Chemotargets
    Senior Project Manager
  • Chiesi
    Medical advisor rare diseases
  • Chiesi
    Market Access Intern EU&International Markets
  • Chiesi
    Medical Advisor
  • Chiesi
    Head of Access, EU & International, Global Rare Diseases
  • Chiesi
    national Patient Advocacy Manager
  • Chiesi
    Pricing&Market Access
  • Chiesi
    Health Equity Lead
  • Chiesi España
    Public Affairs Manager
  • Chiesi España
    Market Access Specialist
  • Chiesi España SAU
    Medical Advisor
  • Chiesi Farmaceutici
    Market Access Lead
  • Chiesi Farmaceutici S.p.A.
    Market Access Specialist, EU&Int, Rare Diseases
  • Chiesi Farmaceutici SpA
    Head Of Pipeline and Portfolio Leadership, Global Rare Diseases R&D
  • Chiesi Farmaceutici SpA
    Market Access Lead EU&EM, Global Rare Disease
  • Chiesi Farmaceutici SpA
    Business Development
  • Chiesi Global Rare Diseases
    Social Media Specialist
  • Chiesi Global Rare Diseases
    Rare Communication Jr Specialist
  • Chiesi Global Rare Diseases
    Head of Communications Rare Diseases
  • Chiesi Global Rare Diseases
    Patient Advocacy Lead LSDs, Europe & International Markets
  • Chiesi Global Rare Diseases
    Global Head Patient Advocacy, LSD
  • Chiesi Global Rare Diseases
    Public Affairs Lead, EU & Int'l, Rare Diseases
  • Chiesi Global Rare Diseases
    Public Affairs Lead, EU & Int'l, Rare Diseases
  • Chiesi GmbH
    Head Medical Affairs Rare Diseases
  • Chiesi Group
    Senior Vice President, EU & International, Rare Diseases
  • Chiesi S.p.A
    Market Access Specialist EU&IntL
  • Chiesi Spain
    Medical Manager Rare Diseases Iberia
  • Child and Youth Care
    Director
  • Child and Youth Care
    Director
  • Children's Clinical University Hospital
    Optometrist
  • Children's Tumor Foundation Europe
    Managing Director
  • Chinese Organization for Rare Disorders
    Assistant Researcher
  • Chugai Pharmaceutical - Roche Group
    Business Development and M&A Manager
  • CIBER-BBN
    Senior researcher
  • CIBERER
    Scientific Manager
  • Clinigen
    Vice President Market Access
  • Clinigen Group
    Global Business Development
  • Clinigen Group
    Global Communications Manager
  • Clinigen Group
    Proposals Development Associate
  • Clinigen Group
    Global Business Development
  • Clinigen Group
    Senior Regulatory Affairs Strategist
  • Clinigen Group
    Senior Regulatory Affairs Manager
  • Clinigen Group
    Global Business Development Lead, Real World Data
  • Clinigen Group
    Director of Strategic Consulting
  • Clinigen Group
    Global Patient Engagement Lead
  • Clinigen Group
    VP and Head, Pricing and Commercial Strategy
  • Clinigen Group
    VP and Head, Pricing and Commercial Strategy
  • Clinigen Group
    Global Business Development
  • Clinigen Group
    Global Business Development
  • Clinigen Group
    Vice-President of Business Development
  • Clinigen Group
    MA Senior Program Manager
  • Clinigen Group
    MA Program Manager
  • Clinigen Group
    Vice-President of Business Development
  • CML Advocates Network
    Director
  • CML Advocates Network
    Director
  • Cogentia Healthcare Consulting
    Senior Research Analyst
  • Colombian Foundation for Cystic Fibrosis FIQUIRES
    Patient Coordinator for Rare Diseases.
  • Colombian Foundation for Rare Diseases FUNCOLEHF
    Patient Coordinator for Rare Diseases
  • ConEckt Consulting
    Managing Director
  • conect4children
    Head of operations and expert services
  • conect4children
    Chief Executive Officer
  • CONSEJERÍA DE SANIDAD
    COORDINADORA UNIDAD EERR
  • Consejería de Sanidad de Castilla-La Mancha
    Jefa de Servicio de Bioética e Innovación
  • Consorci de Salut i Social de Catalunya
    Director of pharmacy
  • Consorci Salut i Social Catalunya
    pharmacist
  • Conversis
    BD Director
  • COOSALUD EPS
    MEDICO
  • Copenhagen Economics
    Senior Economist
  • Copenhagen Economics
    Partner
  • Copenhagen Economics
    Managing Economist
  • Costello Medical Consulting
    Senior Analyst
  • CRA, Charles River Associates
    Marketing & Business Development Specialist
  • CRA, Charles River Associates
    Principal, Life Sciences Strategy Consulting
  • CRA, Charles River Associates
    Senior Associate
  • CRA, Charles River Associates
    Senior Associate
  • CRA, Charles River Associates
    Events & Marketing
  • CSL Behring
    Head of Market Access & Public Affairs
  • CTI Clinical Trial & Consulting
    Senior Director Business Development
  • CTI Clinical Trial & Consulting
    Manager, Client Relationships and Sales Lead Generation
  • CTI Clinical Trial & Consulting
    Director Business Development
  • CTI Clinical Trial & Consulting
    Executive Director, Business Development & Client Management
  • CTI Clinical Trial and Consulting Services
    Associate Director, Business Development
  • Cure Anna
    Co-founder, CEO
  • Cure GABA-A Variants
    Ambassador Cure GABA-A Spain
  • Czech Republic State Institute for Drug Control
    Medical evaluator, MoCA coordinator
  • Dacro Research Group
    Head of Department
  • Dalian Medical University
    Dr.
  • Danish Medicines Agency
    EMA project lead
  • Debiopharm international
    Head of Global Value and Access
  • DEBRA Singapore
    President
  • DEBRA South Africa
    Patient & NPO Co Founder
  • DEBRA South Africa
    Patient & NPO Co Founder
  • DEBRA Spain
    Research Manager
  • Decisive Consulting Ltd
    Associate Principal
  • Decisive Consulting Ltd
    CEO
  • Decisive Consulting Ltd
    CEO
  • Decisive Consulting Ltd.
    Principal
  • Dendrite Clinical Systems
    Manager
  • Dendrite Clinical Systems
    Manager
  • Dendrite Clinical Systems Ltd.
    Medical Advisor
  • Direct Relief
    Senior Manager Corporate Engagement Europe
  • Direct Relief
    Director, Specialty Programs
  • DOIG (German Osteogenesis Imperfecta society), ERN BOND
    European Patient Advocate, Health policy officer (DOIG)
  • Dolon
    Managing Director
  • Dolon
    Director
  • Dolon
    Senior Consultant
  • Dolon
    Director
  • Dolon
    Marketing & Communications Manager
  • Dolon
    Director
  • Dompé farmaceutici
    Associate Director
  • Dompé farmaceutici
    early Development Director
  • Dr Falk
    Senior Manager Market Access
  • Dravet Syndrome Foundation
    President
  • Dravet Syndrome Foundation Spain
    Member of Scientific Committee
  • Dravet Syndrome Foundation Spain
    Scientific Director
  • Dravet Syndrome Foundation Spain
    Scientific Director
  • Dravet syndrome Foundation, Deleg. España
    Fundraising
  • DREAMSICKLE KIDS FOUNDATION,INC
    EXECUTIVE DIRECTOR
  • Duchenne Australia / WA DOH
    Principal Midwifery Advisor/Rare Disease Advocate
  • Duchenne Parent Project Spain
    Director of Research
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    Director of Research
  • Duchenne U.K.
    Patient Advocate
  • EATRIS
    Innovation Manager
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    Senior Scientific Program Manager
  • EATRIS
    Scientific Project Manager
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    Sr. Rare Disease Innovation Officer
  • EATRIS ERIC
    Operations Director
  • EB House Austria
    Research Coordinator
  • EB House Austria
    Research Coordination and Clinical Trial Management
  • Ecker + Ecker GmbH
    Senior Manager Market Access
  • Ecker+Ecker GmbH
    CEO, Lead EU HTA
  • Edelman Global Advisory
    Program Manager, Health & Wellbeing
  • EFPIA
    Director Public Affairs
  • EFPIA
    EFPIA - Public Affairs Manager
  • EFPIA - European Federation of Pharmaceutical Industries and Associations
    Market Access, Associated Director
  • Egetis Therapeutics
    Global Patient Advocacy Director
  • e-health innovation center
    Advisor
  • Einstok born
    CoB
  • ELA Deutschland e.V.
    member of the board
  • Elsevier
    Publisher
  • Emotive
    VP Client Engagement
  • Encoded Therapeutics
    Vice President, Clinical & Medical Affairs
  • Endo-ERN
    PhD Researcher & Project Manager
  • Enfermedades Raras en el Caribe y América Latina (ERCAL)
    President
  • ENTRI / Boost-Biotech bv
    Managing Partner
  • Envoya Inc.
    Founder and Chief Executive Officer
  • Erasmus MC (Erasmus Universiteit Rotterdam)
    Clinical Geneticist, MD PhD
  • Erasmus University of Rotterdam
    Student
  • ERCAL
    Director of Public Affairs
  • ERCAL Enfermedades raras del Caribe y América Latina
    Co-Chair of education, training and divulgation
  • ERDERA
    Head of Comms
  • Ergomed
    Director, Operational Strategy
  • Ergomed
    Senior Marketing Associate
  • Ergomed
    Senior VP Strategic Solutions and Patient Centricity
  • Ergomed
    Senior VP Strategic Solutions and Patient Centricity
  • Ergomed
    Sales Development Account Manager
  • ERICA - European Rare Diseases Coordination and Support Action
    ERICA (European Clinical Research in Rare Diseases) Project Manager
  • ERN ITHACA
    Project Manager
  • ERN ITHACA
    Project Manager
  • ERN RITA - UMC Utrecht
    Project Manager
  • Essential Pharma
    Associate Director, Business Development
  • EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
    Secretary General
  • Euraxi Pharma
    Dir Strategic and International Development
  • EuropaBio
    Healthcare Policy Senior Manager
  • EuropaBio
    Director General
  • European Brain Council
    Manager, Public Health And Policy, Research Project
  • European Children’s Hospitals Organisation (ECHO)
    Deputy Chief Executive Officer, International Affairs, Secretary General
  • European Confederation of Pharmaceutical Entrepreneurs
    Government Affairs Manager
  • European Parliament
    MEP
  • European University Hospital Alliance
  • EURORDIS
    Patient Engagement Manager – HTA, EURORDIS
  • EURORDIS
    Chair of Council RDI & Board Member, EURORDIS
  • EURORDIS
    Patient Engagement Senior Manager
  • EURORDIS
    Mental Health Lead & Healthcare Advisor
  • EURORDIS
    Patient Engagement Manager
  • EURORDIS
    CEO
  • EURORDIS
    Founder and past-CEO
  • EURORDIS
    Director of Communications
  • EURORDIS
    ERN & Healthcare Director
  • Eurordis - Rare Diseases Europe
    Patient Engagement Manager
  • Eurordis - Rare Diseases Europe
    President
  • EveryONE Medicines
    Chief Executive Officer
  • EveryONE Medicines
    Chief Scientific Officer
  • EveryONE Medicines
    Chief Strategy Officer
  • EveryONE Medicines
    Chief Medical Officer
  • EveryONE Medicines
    SVP, Development Opertions
  • Evidera
    Executive Director
  • Evidera part of ThermoFisher
    Director
  • Ex - Biogen
    Associate Marketing Director
  • exceed orphan
    Country Manager
  • F.A.M.H.P
    Clinical Assessor Efficacy and Safety & Chair of COMP EMA
  • Faculty of medicine, University of Coimbra, Portugal
    researcher / student
  • FamilieSCN2A Foundation
    Executive Director
  • FARA
    PhD
  • Farmacon
    Senior Medical Advisor
  • Farmaindustria
    Medical Director
  • FEDER
    VOCAL
  • FEDER
    VOCAL
  • FEDER
    VOCAL
  • FEDER
    Direct Care Technician (Biologist)
  • FEDER
    Board Member of FEDER
  • FEDER
    TESORERO JUNTA DIRECTIVA
  • FEDER
    VOCAL
  • FEDER
    PRESIDENTE
  • FEDER
    Responsable del área de Transformación social
  • FEDER
    Board Member of FEDER
  • FEDER - FEDERACION ESPAÑOLA DE ENFERMEDADES RARAS
    CEO
  • Federacion Ecuatoriana de enfermedades raras o poco frecuentes FERPOF
    Executive President
  • Federacion Espanola De Hemofilia
    President
  • Federación Peruana de enfermedades raras
    Directiva
  • Federal University of Alagoas
    Professor
  • Federation of groups of patients affected by a rare and genetic kidney diseases
    Federg president
  • FEMEXER
    IT&SpecialProjects Director
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    President
  • FENPOF CHILE
    PRESIDENTE
  • Ferrer
    Head of Neurology and Cardiology Franchise - Global Medical Affairs
  • Ferrer
    Head of Corporate PA&PA & Customer Onboarding
  • Ferrer
    LICENCIAS
  • Ferrer
    Senior Regulatory Affairs officer
  • Ferrer
    Global Branding
  • Ferrer
    Regulatory Affairs
  • Ferrer
    Medical Head of the PV-ILD Franchise
  • Ferrer
    Head of Field Medical Excellence
  • Ferrer
    Senior Regulatory Affairs Manager
  • Ferrer
    Chief Medical Officer
  • Ferrer
    Senior Global Market Access Manager
  • Ferrer
    Senior Corporate Market Access Manager
  • Ferrer
    Sr Licencing Manager
  • Ferrer
    Corporate Medical Advisor
  • Ferrer
    Medical Lead
  • Ferrer
    Sr Business Development Manager
  • Ferrer
    Head of BDL & AM
  • Ferrer
    Senior Corporate Marketing Manager
  • Ferrer Farma SA
    Chief Quality, Regulatory & PV Officer
  • Ferrer Internacional
    BD Alliance Manager
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    Corporate Marketing Customer Engagement Advisor
  • Ferrer Internacional
    Senior Regulatory Affairs Manager
  • Ferrer Internacional
    Corporate Public Affairs & Patient Advocacy Manager
  • Ferrer Internacional
    Chief Scientific Officer
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    BD & Alliance Management
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    Ambassador Programme Project Manager
  • FIBROMUNDO
    Médico
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    Director
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    Director of Healthcare
  • FIPRA
    Senior Advisor
  • FIPRA
    Senior Advisor
  • FIPRA/ Together for rare diseases
    Account Director
  • FITIMA Guinea
    Head of the community development section
  • Flagella Vision
    CEO
  • Fondation Ipsen
    President
  • Fondation Ipsen
    President
  • FONDATION MALADIES RARES
    COMMUNICATION & PARTENERSHIP MANAGER
  • Fondazione Telethon
    Head of Business Development
  • Fondazione Telethon
    Translational Project Manager
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    Analyst and Global Partnerships
  • Fondazione Telethon
    Head of Business Development
  • Fondazione Telethon
    Translational Project Manager
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    IP Manager
  • Food and Drug Administration
    Super Office Director
  • Foundation 29
    Director
  • Foundation 29
    Director
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    Director
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    President
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    Presidente
  • French National Authority for Health
    Inspector General
  • Friedreich-Ataxie Förderverein e.V.
    CEO
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    Director of Patient Engagement
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    Chief Operating Officer
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    Project Mercury // European Program Manager
  • FUNCOLEHF
    Director
  • Fundació Dr. Torrent-Farnell
    Founder
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    Director
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    Consultant
  • Fundació Institut de Bioenginyeria de Catalunya
    Head of Technology Transfer & Business Development
  • Fundación Síndrome de Dravet
    Trabajadora Social
  • Gadarvy Therapeutics
    Market Access Expert
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    Chief Executive Officer
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    Preclinical and Clinical PM
  • Gemseki Inc.
    Advisor
  • GeneScape
    CEO
  • GeneScape
    CEO
  • GeneScape
    CEO
  • GeneScape
    Data Analyst
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    Director
  • Genethon
    Head Business Development Partnership
  • généthon
    Global project manager
  • Genetic Alliance U.K.
    Director of Policy
  • Genetic Support Network of Victoria
    Chief Executive
  • Georghia Michael
    Medical Writer
  • Get access consulting
    CEO
  • GET ACCESS SL
    CEO
  • Ghione Consulting
    Consultant
  • Gianni Benzi Pharmacological Research Foudation
    Head of Research and Innovation Department
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    Global Practice Director, Health & Life Sciences
  • GLOBAL MPN SCIENTIFIC FOUNDATION
    CEO
  • GlobalData Plc
    Business Development Manager
  • GlobalData Plc
    Business Development Manager
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    Director of Business Development
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    Head of Life Sciences & Market Access
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    Business Development Manager
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    President
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    Senior Associate
  • GRIN Europe
    President
  • GRIN Europe
    boardmember
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    Secretary
  • H.U. Vall d'Hebron
    Consultant. Child Neurology
  • Ha noi University of Pharmacy
    Deputy head Department of Pharmaveutical Administration and Pharmavo economics
  • HAE Junior patient organization
    Chairwoman
  • Hansa Biopharma
    VP
  • Hansa Biopharma
    Senior Global Market Access Manager
  • Hasselt University
    Professor
  • Havas Life Medicom
    Head of Strategy and Planning
  • Havas Life Medicom
    Managing Director
  • Haystack Project
    Policy advisor
  • HCRx
    Advisor EU and UK
  • Health Catalan Service
    Rare Disease Program Technician
  • Health Insurance Fund
    Inspector
  • Health Research Institute La Fe
    Principal Researcher
  • Healthcare Education Institute
    President
  • Healthcare Education Institute
    President
  • Healthcare Vertical, AWS
    Genomics Business Development
  • HealthLumen
    Senior Evidence Lead
  • Hellenic Community for Pulmonary Hypertension
    President
  • Help 4 HD
    Producer/Host, Help 4 HD Live Podcast
  • Helping Swans Co.
    Author/Advocate/Speaker
  • Helsedirektoratet
    Senior adviser
  • Hereditary Angioedema Association - HAE Serbia
    President
  • HiTT
    Chief Executive Officer
  • HiTT
    Chief Executive Officer
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    Project Manager
  • Hoffman-La Roche
    Data Scientist
  • Hoffmann La Roche
    Senior Project Manager
  • Hoffmann la Roche Ltd
    principal associate
  • Homenurse4u
    Chief Executive Officer
  • Homenurse4u
    Chief Operating Officer
  • Homenurse4u
    Head of Operations
  • Hopital Necker- Enfants Malades
    MD/PhD
  • Hospital clinic Barcelona
    Immunologist
  • Hospital clinic Barcelona
    Process Development
  • Hospital Clínic de Barcelona
    senior specialist
  • Hospital dos Raros Fortaleza
    Chief Executive Officer
  • Hospital Sant Joan de Deu
    Hospital pharmacist
  • Hospital Sant Joan de Deu
    Deputy Director of Innovation, Research and Learning
  • Hospital Sant Joan de Deu
    Director Research, Innovation and Learning
  • Hospital Sant Joan de Deu
    Head of Hospital Pharmacy Dept
  • Hospital Sant Joan de Deu
    Subgerente-Director médico
  • Hospital Sant Joan de Déu
    Project manager UNICAS
  • Hospital Sant Joan de Déu
    Paediatric Neurologist Consultant
  • Hospital Sant Joan de Déu
    Hospital Pharmacist
  • Hospital Sant Joan de Déu
    Head of the Clinical Accreditation Unit
  • Hospital Sant Joan de Déu
    Head of the Clinical Accreditation Unit
  • Hospital Sant Joan de Déu de Barcelona
    Neuropediatrician
  • Hospital Universitari Vall d'Hebron
    Rare disease coordinator
  • Hospital universitario de la Paz
    NURSE
  • Hospital Universitario Doctor Peset
    Head of Pharmacy Service
  • Hospital Vall D'Hebron
    MD
  • HRA Rare Diseases
    Senior Regulatory Affairs Manager
  • HRA Rare Diseases
    Senior Regulatory Affairs Manager
  • HRA Rare Diseases
    Senior Regulatory Affairs Manager
  • HRA Rare Diseases
    Senior Regulatory Affairs Manager
  • HTAi Rare Disease Interest Group
    Steering Committee member
  • Huashan hospital Fudan University
    Neurologist
  • HuntX Pharma
    Head of operationnal R&D
  • HuntX Pharma
    President
  • IBEC
    Technology Transfer Manager
  • IBEC
    Technology Transfer and Business Development Manager
  • IBEC
    Scientist
  • iBET: Instituto de Biologia Experimental e Tecnológica
    Professor
  • ICON PLC
    Director, Patient Advocacy Strategy, Center for Rare Diseases
  • ICON plc
    Account Executive
  • ICON plc
    Director, Therapeutic Area
  • ICON PLC
    Director, Therapeutic Area
  • ICON plc
    Director, Business Development
  • ICON plc
    Senior Director - Global Business Development
  • ICON PLC
    Global Commercial Lead, Strategic Partnership
  • ICON PLC
    Director Business Development
  • ICON PLC
    Event Manager
  • ICON PLC
    Senior Account Executive
  • IDEA Regulatory
    Regulatory Affairs Associate
  • IDEA Regulatory
    Managing Director
  • IDEA Regulatory
    Managing Director
  • IESE Businesss School
    MBA
  • IFPMA
    Manager Global Health and Access
  • Ikris Pharma Network
    Global Project Manager
  • Ikris Pharma Network
    Global Account Manager
  • Ikris Pharma Network
    CEO
  • Ikris Pharma Network
    Market Access
  • Illingworth Research
    Director Of Business Development
  • Illness challenge foundation
    Director of information research
  • IMMUNOCORE
    Senior Manager, Market Access, Pricing & HEOR
  • In transition, previously Rhythm Pharmaceuticals
    General Manager
  • Inceptua Early Access
    Director, Business Development
  • Inceptua Group
    Senior Director, Global Strategy, Early Access
  • Inceptua Group
    Senior Director, Business Development, Early Access
  • Independent Market Access Expert
    Managing Partner
  • Indian Organisation for Rare Diseases
    Secretary & Managing Editor
  • Indo-US Organization for Rare Diseases (IndoUSrare)
    Associate Director
  • Initiate
    Senior Consultant
  • Initiate
    Business Development and Marketing Analyst
  • Initiate
    Senior Consultant
  • Initiate
    Senior Consultant
  • Initiate
    Head of Business Development
  • Initiate
    Senior Consultant
  • Initiate
    Director, Global Market Access Strategy
  • Initiate Consultancy
    Chief Executive Officer
  • iniuva GmbH
    CEO and Founder
  • Instituto Jô Clemente
    Research and Innovation Manager
  • Instituto Unidos pela Vida
    Operations Manager
  • intermedix Deutschland GmbH
    KAM
  • intermedix Deutschland GmbH
    Medical Communication Consultant
  • International Federation Of Psoriasis Associations
  • International Gaucher Alliance (IGA)
    Director
  • International Horizon Scanning Initative
    CEO
  • International Market Access Consulting, GmbH
    President & Chief Executive Officer
  • International Market Access Consulting, GmbH
    Vice President
  • International Market Access Consulting, GmbH
    Vice President
  • International MPS Network
    Executive Director
  • International Society for Neonatal Screening
    President
  • Invivo Partners
    Partner
  • IPOPI
    Health Policy and Advocacy Manager
  • Ipsen
    Global Patient Affairs Director of Rare Diseases
  • IPSEN
    Global
  • IPSEN
    Patient Advocacy Lead Iberia
  • Ipsen
    Global Brand Lead
  • IPSEN
    Global Regulatory Affairs Rare Diseases - Senior Manager
  • IPSEN
    Director, Head of Global Public Affairs and Advocacy
  • Ipsen
    SVP, Global Head Rare Diseases
  • IPSEN
    Vice President, Regulatory Excellence
  • Ipsen
    Vice President, Regulatory Excellence
  • Ipsen
    SVP Global Value & Access
  • IPSEN
    Market Access, Pricing & Public Affairs Director
  • IPSEN
    Associate Director, Clinical Scientist
  • IPSEN
    Global Director of Market Access & Pricing
  • Ipsen
    EVP Communications & External Affairs
  • IPSEN
    VP Global HEOR
  • IPSEN
    Head of Government Affairs and Policy
  • IPSEN
    VP Global Value and Access Rare Diseases
  • IPSEN
    CEE Market Access
  • Ipsen Pharma
    PV DIRECTOR
  • Ipsen Pharma GmbH
    Market Access & HEOR Manager
  • IPSEN PHARMA S.A.
    Medical Lead
  • IPSEN PHARMA SAU
    Regulatory Lead Iberia
  • IQVIA
    Senior Principal
  • IQVIA
    Manager
  • IQVIA
    Tallis
  • IQVIA
    Associate Principal
  • IRB Barcelona
    Senior Tech Transfer Manager
  • IRB Barcelona
    Tech Transfer Officer
  • IRDiRC
    Assistant Director, Thematic Institute of Genetics, Genomics & Bioinformatics
  • IRDiRC – International Rare Diseases Research Consortium
    Scientific Project Manager
  • IROS CRO
    General Manager
  • IROS CRO
    Marketing Executive
  • Italfarmaco
    Value, Access & External Affairs Director
  • Italfarmaco
    Patient Advocacy and Communication Lead Rare Diseases
  • Italfarmaco
    Rare Disease Country lead, Spain
  • Italfarmaco
    CLINICAL R&D MANAGER
  • Italfarmaco
    Clinical Research and Development Director
  • Italfarmaco
    CLINICAL R&D MANAGER
  • Italfarmaco
    Business development
  • Italfarmaco
    Senior PM
  • ITALFARMACO S.P.A.
    Global Value Access, Public Policy and Government Affairs Lead -Rare Disease
  • ITALFARMACO S.P.A.
    Business & Portfolio Development Senior Manager
  • JBL pharmaceuticals & packaging Fz LLC
    MD
  • JG Zebra Consulting
    Director
  • John Radcliff Hospital
    BDM
  • Johns Hopkins Bloomberg School of Public Health
    Post Doctoral fellow
  • Josep Carreras Institute for Leukaemia Research
    Emeritus Professor
  • Junta de Andalucía
    Researcher
  • Junta de Andalucía
    Postdoctoral Researcher
  • Justin Stindt Consulting
    Managing Director
  • Keen Access Insights
    CEO
  • Komtur Pharmaceuticals
    Global Insights & Strategy Manager
  • Komtur Pharmaceuticals e.K.
    Commercial Director – Special Distributions
  • Komtur Pharmaceuticals Iberia, S.L.
    Commercial Operations Area Head Komtur Pharmaceuticals Iberia, S.L.
  • Komtur Polska Sp. z o.o.
    Chief Commercial Officer
  • Krishnan Family Foundation
    Executive Director
  • Kymos
    Business Development Director
  • KYMOS, S.L.U.
    Business Developer
  • KYOWA KIRIN
    Global I&A director
  • KYOWA KIRIN
    Market Access Director
  • KYOWA KIRIN
    global market access head nephrology franchise
  • La Salle - Universitat Ramon Llull
    Researcher
  • La Salle - Universitat Ramon Llull
    Researcher
  • LABORATORIOS BAGO
    portfolio manager
  • LatticePoint Consulting
    Senior Consultant
  • LatticePoint Consulting
    Principal
  • LatticePoint Consulting
    Consultant
  • LeadPath Healthcare Innovations
    Founder & Managing Director
  • Leanbio, S.L
    Head of Business Development
  • LEITAT/ EEBA
    EXECUTIVE MEDICAL DIRECTOR
  • LELEK'S FOUNDATION
    Patient representative
  • Lenis farmacevtika
    Regional Market Access Manager
  • Les Laboratoires Servier
    Global Value & Access TA Head Oncology & Neurology
  • LGMD CAB
    President
  • LGMD CAB/stichting SpierKracht
    coördinator
  • Licentis
    Director
  • Licentis
    Medical Director
  • LifeArc
    Head of Rare Disease
  • LifeArc
    Clinical Development Manager
  • LifeArc
    Alliance Manager - Rare Disease
  • LifeArc
    Analyst, Opportunity Assessment Group
  • Lithuanian University of Health Sciences hospital Kauno klinikos
    Cordinator of Rare and Undiagnosed disease Coordination center and pediatric endocrinologist
  • Lithuanian University of Health Sciences Hospital of Kaunas
    Clinical pharmacologist, MD
  • Living in the Light of Rare Diseases
    Videographer
  • Living in the Light of Rare Diseases
    Project and Office Manager
  • Lovexair Foundation
    CEO Founder
  • LSC LifeSciences Consultants
    Partner
  • Lviv Polytechnic National University
    PhD
  • Lyfegen HealthTech AG
    VP Sales & BD
  • Lyfegen HealthTech AG
    VP Sales & BD
  • Magnetar Access
    Market Access Director
  • Makhankov Consulting
    Consultant
  • Malaysian Rare Disorders Society
    President
  • Manchester Royal Infirmary
    Consultant Haematologist
  • MaRaVaud
    Co- President
  • Maria Hall Consulting Ltd.
    Director
  • Marken
    Business Development Director
  • Marken
    Business Development Manager
  • Marken
    Business Development Manager
  • Marken
    Head of Global DCT Market Development
  • Marken
    Head of Global DCT Market Development
  • Marken
    Marketing Events Specialist
  • MASS Team
    Principal Consultant
  • medac
    Senior Global Market Access Manager
  • medac GmbH
    Director Global Market Access & Health Economics
  • Medac pharma
    Medical Affair Head
  • Medac pharma
    Head of Commercial
  • MedBioinformatics
    CEO
  • MedBioinformatics
    Co-Founder & Scientific Director
  • MedBioinformatics
    Head of Bioinformatics & Co-Founder
  • MedBioinformatics
    Marketing Manager
  • MedBioinformatics
    Marketing Manager
  • Medicina Cardiovascular Asociada
    Health Psychologist
  • Medicines and Healthcare products Regulatory Agency
    Chief Safety Officer
  • Medicines Evaluation Board
    Chair of Committee for Orphan Medicinal Products
  • Medico Distribution DMCC
    GM
  • Medico Distribution DMCC
    CEO
  • Medico Distribution DMCC
    Head of Procurement
  • Medics4RareDiseases
    Chief Executive Officer
  • Medigenio
    Medical head
  • Med-Life Discoveries
    Chief Executive Officer
  • Med-Life Discoveries
    Exec VP, Innovative Therapies
  • Med-Life Discoveries
    Exec VP, Innovative Therapies
  • Med-Life Discoveries
    Chief Executive Officer
  • MEGALABS URUGUAY S.A.
    HEAD OF MEDICAL DEPARTMENT
  • MEGALABS URUGUAY S.A.
    MARKETING MANAGER
  • Memo Therapeutics
    VP
  • Mendel Partners
    Partner
  • Mendel Partners
    Chief Business Officer
  • Mendelian
    Clinical Lead and Data Scientist
  • Mendelian
    Data scientist
  • Mendelian
    Head of Commercial and Product
  • Mendelian
    Chief Executive Officer
  • Mendelian
    Chief Executive Officer
  • Mendelian
    Head of Industry Partnerships
  • MetabERN
    Director, Coordinating Center For Rare Diseases
  • Metabolic Support UK
    Associate Consultant
  • Metabolic Support UK
    Head of Insight & Advocacy
  • MHRA
    PV scientist
  • MHRA
    Head of International Recognition
  • Ministère provinciale de la Santé Publique, Hygiène et Prévention/KINSHASA
    DOCTOR
  • Minoryx Therapeutics
    Senior R&D manager
  • Minoryx Therapeutics
    Director of Biology
  • Minoryx Therapeutics
    CMO
  • Miramoon Pharma
    CEO
  • Moderna
    VP, Global Medical Affairs, Rare Disease
  • Moderna, Inc.
    Senior Director - Rare Diseases
  • MPS Society
    Group CEO
  • MPS Society
    Group CEO
  • MPS Society
    Senior Head of Patient Services and Clinical Liaisons
  • Muscular Dystrophy Association
    Director, Data Analytics
  • Muscular Dystrophy Association
    Director Clinical Operations
  • MuSigmas
    Founder and Chief Statistical Scientist
  • MuSigmas Consultants S.L
    Head of Business Development
  • MuSigmas Consultants S.L
    Head of Business Development
  • MuSigmas Consultants S.L
    Senior Data Scientist
  • MYOS Colombian Foundation for Muscular Dystrophy and other Neuromuscular Diseases
    President and Legal Representative
  • myTomorrows
    Medical Affairs Manager
  • myTomorrows
    Chief Commercial Officer
  • myTomorrows
    Director Partnerships
  • Napo Therapeutics
    Chief Market Access Officer
  • Napo Therapeutics SpA
    CEO
  • Napo Therapeutics SpA
    CFO
  • National Alliance for Rare Diseases Support - Malta
    Secretary
  • National Alliance for Rare Diseases Support - Malta
    Patient Advocate
  • National Alliance for Rare Diseases Support - Malta
    Executive Secretary
  • National Alliance for Rare Diseases Support - Malta
    President
  • National Alliance of People with Rare Diseases
    Chairman
  • National Association of Porphyrias Serbia
    President
  • National Institute for Health and Care Excellence
    Senior Public Involvement Adviser
  • National Organisation for Rare Diseases of Serbia
    Project Coordinator
  • National Organization for Rare Disorders
    Manager Info. Sec., Risk & Compliance
  • National PKU Alliance
    Preaident
  • Neil Bertelsen Consulting
    Patient Engagement Specialist
  • Neil Bertelsen Consulting
    Patient Engagement Specialist
  • Neuropathy Action Foundation (NAF)
    Founder/President
  • Neuropatias Autoinmunes- GBS|CIDP España
    President
  • Neurophth Therapeutics
    Chief Technical Operations Officer
  • Neuropsynchro
    Clinical Outcomes Assessment Senior Specialist
  • Newcastle University
    Senior Project Manager
  • Newcastle University
    Rare Disease Policy Manger
  • Newcastle University
    Communication and Dissemination Project Manager
  • NHS
    Healthcare Scientist
  • NHS
    Director of Medicines and medical devices department
  • NHS/ Eu2P
    Doctor
  • NHSBT
    BD Manager
  • NICE
    HTA Analyst
  • NORD
    Health Policy Fellow
  • Norgine
    Senior Director, Commercial Evaluation
  • Norgine
    Unknown
  • Norgine
    Global Brand Director
  • Norgine
    Commercial Evaluation Manager
  • Norgine
    Associate Director, Programme Management
  • Norwegian medical products agency
    COMP member/ Clinical assessor
  • Novartis
    Data Scientist
  • Novartis
    investing manager
  • Novartis
    ED PNH and Renal, RE
  • Novartis
    Corporate Affairs Head Spain
  • Novartis
    Senior Director
  • Novartis
    Head of Patient Advocacy and Public Affairs
  • Novartis
    Associate Director, Translational Research DS
  • Novartis
    Global Insights Executive Director
  • Novartis
    Market Access Associate Director
  • Novartis
    Study Start up Lead
  • Novartis
    Head of Business Operations International, Gene Therapies
  • Novartis
    Global RMP Group Head
  • Novartis
    Global Customer Experience Strategy Director
  • Novartis
    CFO, Europe, Novartis Gene Therapies
  • Novartis
    R&D Finance Manager
  • Novartis Gene Therapies
    Director Evidence Generation
  • Novartis Pharma
    Global Access Director
  • Novartis Pharma GmbH
    CRMA
  • Novartis Pharma GmbH
    CRMA
  • Novo Nordisk
    Global Manager Public Affairs
  • NurExone Biologic
    Director of QA, RA
  • NurExone Biologic
    Chief Executive Officer
  • NurExone Biologic
    Chief Executive Officer
  • OBJETIVO DIAGNOSTICO
    Presidenta
  • OMAKASE CONSULTING
    CEO&Owner
  • Omakase Consulting
    Market Access Senior Consultant
  • Omakase Consulting
    Director
  • Omakase Consulting
    Market Access Consultant
  • Omakase Consulting
    Market Access Consultant
  • Omakase Consulting
    Pricing, reimbursement and market acess senior consultant
  • Omakase Consulting
    Senior Consultant and Project Manager
  • OMAKASE CONSULTING
    Chief Executive Officer & Partner
  • Omakase Consulting
    CEO&Owner
  • Omakase Consulting
    Director
  • Omakase Consulting
    Administration and Finance Assistant
  • Oncolize BV
    Director, Drug Development Operations
  • Oniria Therapeutics
    Preclinical and Regulatory Project Manager
  • Oniria Therapeutics
    Junior Regulatory and Development Manager
  • Only Orphans Cote
    Business Development Lead
  • Only Orphans Cote
    Business Development Associate
  • Only Orphans Cote
    CEO
  • Only Orphans Cote
    Business Development Lead
  • Onyx Scientific
    Business Development Manager
  • Onyx Scientific
    Business Development Manager
  • Onyx Scientific
    Business Development Manager
  • OPEN Health
    Senior Research Consultant Strategic Market Access
  • OPEN Health
    Senior Director, Market Access
  • OPEN Health
    Scientific Office lead - market access
  • OPEN Health
    Associate Director, Real-World Evidence
  • OPEN Health
    Director of preference research and scientific lead Patient centered outcomes
  • OPEN Health
    Director Business Development
  • OPEN Health
    Associate Director, Real-World Evidence
  • OPEN Health
    Marketing Director
  • Open Source Imaging Consortium
    Executive Director
  • Open Source Imaging Consortium
    Executive Director
  • Open Source Imaging Consortium
    Executive Director
  • Openflex Ltd
    Life Science Advisor in Rare Diseases & Special Advisor
  • Optimal Therapies
    President
  • Optimapharm
    Business Development Director
  • Oranda Therapeutics
    CCO & Co-Founder
  • Oranda Therapeutics
    CMO
  • Orchard Therapeutics
    Director Global Diagnostics
  • Orchard Therapeutics
    SVP Global Market Access and International Geographic Expansion
  • Orchard Therapeutics
    HTA, Value and Access Director for EMEA
  • Orchard Therapeutics
    Associate Director, Global Technical Development
  • Orchard Therapeutics Ltd
    Head of EMEA Market Access
  • Orchard Therapeutics Ltd
    Head of EMEA Market Access
  • Organization for Rare Diseases India
    Chief Operating Officer
  • Organization for Rare Diseases India
    Corporate Relations & Alliance
  • Orphanet / INSERM US14
    Director
  • Orphanet / INSERM US14
    Director
  • Orphannow
    MD , Ph D paediatrics
  • Orthostatic Tremor UK Support Group
    Chairperson
  • OT Pharmaceuticals AB
    CEO
  • Ot4b
    Regulatory director
  • Ot4b
    CEO
  • P4ML
    CEO / Founder
  • PAC3/LIYFE
    Managing Director
  • PACS2 Research Foundation
    President
  • Palobiofarma S.L.
    Clinical Development Director
  • Palobiofarma S.L.
    CEO
  • Palobiofarma S.L.
    COO
  • PANCYPRIAN ASSOCIATION FOR RARE GENETIC DISEASES UNIQUE SMILES
    PRESIDENT BOARD
  • PANCYPRIAN ASSOCIATION FOR RARE GENETIC DISEASES UNIQUE SMILES
    DIRECTOR
  • Pandion SciMed
    Medical Communications Consultant
  • Parexel
    Integrated Solutions Strategy Director
  • Parexel
    Senior Manager, Market Development Team Leader
  • Parexel
    Associate Launch Excellence Director
  • Parexel
    Associate Director, Rare Disease CoE
  • Parexel
    Senior Business Development Director
  • Parexel
    Senior Director Business Development
  • Parexel
    Vice President, Launch Excellence Strategy
  • Parexel
    Client Relationship Director
  • Parexel
    paul.bridges@parexel.com
  • Parexel
    Global Head, Rare Disease
  • Parexel
    Client Relationship Director
  • Parexel
    Senior Events Manager
  • Parexel
    Vice President, Marketing Strategy
  • Parexel
    Vice President, Technical PC
  • Partners4Access
    Global Digital Lead
  • Partners4Access
    Senior Analyst
  • Partners4Access
    Associate Consultant
  • Partners4Access
    Associate Consultant
  • Partners4Access
    Senior Director
  • Partners4Access
    Senior Director
  • Partners4Access
    Managing Partner
  • Partners4Access
    Head of Operations
  • Partners4Access
    Head of Operations
  • Partners4Access
    Global Digital Lead
  • Partners4Access
    Managing Partner
  • Pathways to Trust
    Board Member
  • Patient Focused Medicines Development
    Executive Director
  • Patient73
    Accountant
  • Patient73
    President
  • Patient73 Foundation
    Trustee
  • PCM Trials
    Director Business Development
  • PCM Trials
    Senior Director, In-Home Solutions, Decentralized Clinical Trials
  • PCM Trials
    Vice President Business Development • Business Development
  • PCM Trials
    Conference Marketing Specialist
  • PCM Trials
    Conference Marketing Specialist
  • PDC CRO
    Director Business Development
  • Perrigo
    Sr. Director Global BD and Market Access
  • Perseo pharma AG
    CEO
  • Pfizer
    Patient Experience Partner
  • Pfizer
    HEOR Team Leader, Hemophilia
  • Pfizer
    Vice President, Global Franchise Lead, Rare Disease
  • Pfizer
    HEOR Therapeutic Area Lead, Specialty Care
  • Pfizer
    Public Affairs Director
  • Pfizer
    HEOR Team Leader, Hemophilia
  • Pfizer Ltd
    Gene Therapy Partner
  • Pharma Business Partners
    Founding Partner
  • Pharma Business Partners
    Founding Partner
  • pharma.be
    European Policy and Market Access Advisor
  • PharmaLex
    VP Market Access & Healthcare Consulting Europe
  • Pharmanovia
    AVP Global Product Innovation
  • Pharming Group
    Market Access Director Europe, APAC, MENA & LATAM
  • Pharming Group NV
    VP, Scientific Business Strategy
  • Pharming NV
    Director Business Development
  • Pharming Technologies
    VP R&D
  • Pharvaris
    Global head patient access and policy
  • PHD Lifescience
    Country Manager
  • Phenaros Pharmaceuticals AB
    CSO
  • Phenaros Pharmaceuticals AB
  • Phoenix CR
    Medical Director
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    CEO
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    Business Development Manager
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    Business Development Manager
  • Pierre Fabre
    Business development
  • Pierre Fabre SA
    Associate BD Director, Medical Care
  • Pivotal
    Biotech BD
  • Poolbeg Pharma plc
    CEO
  • Pratia
    International Operations Director
  • Pratia
    Executive Director, Portfolio Management
  • Precigen
    VP, Market Access and Distribution
  • Precigen
    Chief Commercial Officer
  • Premier Research
    Executive Director, Program Delivery
  • Premier Research
    Medical Director II
  • Premier Research
    Medical Director
  • Premier Research
    Executive Director, Business Development
  • Premier Research
    Director, Business Development
  • Premier Research
    Vice President, Rare Diseases and Pediatrics
  • Premier Research
    Senior Manager, Marketing
  • Premier Research
    Senior Director, Marketing
  • Prime
    Senior Consultant, Market Access
  • Prime Global
    Business Development Account Manager
  • Prime Global
    Business Development Account Manager
  • Prime Global
    Health Economics Manager
  • Prime Global
    Associate Director Market Access
  • Prime Global
    Executive Vice President, Evidence and Access
  • Prime Global
    Principal Health Economist
  • Prime Global
    Executive Director, Strategy and Innovation
  • Prime Global
    Executive Vice President, Evidence and Access
  • ProtForge
    CEO
  • Prothya Biosolutions
    VP Medical
  • Proyecto Alpha
    Nurse
  • Proyecto Alpha
    Secretaria
  • PTC Therapeutics
    SVP and GM EMEA
  • PTC Therapeutics
    Head of Government Affairs and Patient Advocacy, EMEA
  • PureSpring Therapeutics
    Senior Director Clinical Operations
  • QIAGEN
    Marketing Manager
  • Quebec coalition of orphan diseases
    Executive director
  • QuickSTAT A Kuehne + Nagel Company
    Director of Commercial Operations
  • QuickSTAT A Kuehne + Nagel Company
    Director of Commercial Operations
  • QuickSTAT A Kuehne + Nagel Company
    QuickSTAT Lead
  • QuickSTAT A Kuehne + Nagel Company
    Commercial support
  • Rallybio
    Global Head of BD
  • Raramente
    Administrator
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    Head of Corporate Affairs, Partnerships and Resource mobilization
  • Rare Disease Ghana initiative
    Program Coordinator and Lead
  • Rare Disease Ghana initiative
    Executive Director
  • Rare Disease Hong Kong
    Chairman
  • Rare Disease Lesotho Association
    Founder and CEO
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    Global Policy Coordinator
  • Rare Diseases International
    Chief Executive Officer
  • Rare Diseases International
    Senior Executive Assistant
  • Rare Diseases International
    Intern
  • Rare Diseases International
    Strategic Engagement Manager
  • Rare Diseases International
    Communication Assistant
  • Rare Diseases International
    Global Programme Director
  • Rare Diseases International
    Global Programme Junior Manager
  • Rare Diseases International
    Strategic Engagement Manager
  • RARE DISEASES UGANDA
    CEO
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    Co-Founder
  • Rare Patient Voice LLC
    Business Development Associate – EU
  • Rare STRIDES/Rare Wish
    Founder
  • Raregivers.global
    Chief Growth Officer
  • Raregivers™ by ANGEL AID
    Founder & CEO
  • Rareminds
    Operations Manager
  • Rareminds
    Head of Development
  • Rareminds
    Head of Development
  • Rareminds
    Specialist Counsellor / Clinical Manager
  • Rarus Health
    Partnership Lead
  • Rarus Health
    Development Partner
  • Rarus Health
    CEO
  • RD-Portugal (Rare Diseases Portugal)
    PRESIDENT
  • Realise Advocacy
    Co-CEO
  • Recordati
    Group Procurement Head VP
  • Recordati
    Strategic Marketing Manager
  • Recordati Rare Diseases
    EMEA Patients Engagement Lead
  • Red de Enfermedades Raras de Costa Rica
    Director Ejecutivo
  • Red Nucleus
    Partner
  • Red Nucleus
    Sr. Director Business Development
  • Red Nucleus
    Associate Director, Business Development
  • Red Nucleus
    Senior Director, Pricing & Market Access
  • Red Nucleus
    Director, Pricing & Market Access
  • Red Nucleus
    Director, Global Strategy
  • Red Nucleus
    Senior Director, Pricing & Market Access
  • Red Nucleus
    Senior Director, Business Development
  • Red Nucleus
    Senior Director, Business Development
  • Red Nucleus
    Senior Product Director
  • Red Thread Market Access Ltd
    Head of Scientific Services
  • Red Thread Market Access Ltd
    Senior Consultant
  • Red Thread Market Access Ltd
    Founder
  • Red Thread Market Access Ltd
    Founder
  • REGENXBIO Inc.
    Cheif Legal Officer
  • REIMEX PHARMA LTD
    CEO
  • REIMEX PHARMA LTD
    COMMERCIAL DIRECTOR
  • Remap Consulting
    Senior Consultant
  • Remap Consulting
    Associate Director
  • Remap Consulting
    Head of Marketing
  • Remap Consulting
    Head of Marketing
  • Remap Consulting
    Practice Lead
  • Remap Consulting
    Practice Lead
  • Remap Consulting
    Analyst
  • Remap Consulting
    Analyst
  • Research Professionals Ltd.
    Clinical Operations Director, Managing Partner
  • Reventus Pharma
    CEO
  • Rezolute, Inc.
    Senior Director of Medical & Patient Affairs
  • Rhizome Strategy
    Consultant
  • Richmond Council
    Planning Officer
  • Ridnova
    CEO
  • Ring20 Research and Support UK CIO
    CEO
  • Ring20 Research and Support UK CIO
    CEO
  • RLM Consulting
    Senior Business Development Manager
  • RLM Consulting
    Regulatory Affairs Manager
  • RMG
    Managing Director
  • ROCHE
    Sr. R&D Ops Lead
  • ROCHE
    Research Associate
  • Roche
    Site Head Risk and Business Continuity
  • ROCHE
    Medical Director
  • ROCHE
    Hematology Insights Manager
  • ROCHE
    Product Manager
  • ROCHE
    Global Patient Partnership Group Leader
  • Roche
    Principal Leader
  • Roche Glycart AG
    Intern
  • Ruth Nasr
    Market Access
  • SAI Med Partners
    Vice President Global Market Access & Pricing
  • Salford Care Organisation
    Team Lead
  • Sanford Health
    Chair
  • Sanience
    Managing Partner
  • Sanofi
    Head, Global Rare Diseases Medical Scientific Advocacy
  • Sanofi
    Head of Global Public Affairs, Rare Diseases and CGT Policies
  • Sanofi
    Medical Governance
  • SANOFI
    Global Rare Diseases Franchise Head
  • SANOFI
    Global Rare Medical Affairs, Scientific Advocacy Lead
  • Sanofi
    Global Rare Medical Affairs, Scientific Advocacy Lead
  • Sanofi
    Head of Managed Access Program & Pre Registration Import License
  • Sanofi
    Public Affairs
  • Sanofi
    Medical - SAI
  • SANOFI
    Medical - SAI
  • Sanofi
    Head, Global Rare Diseases Medical Scientific Advocacy
  • Sanofi
    Head of Global Public Affairs, Rare Diseases and CGT Policies
  • sanofi
    Global Pricing
  • Sanofi
    Global Public Affairs Lead
  • Sanofi
    Value and Access Manager
  • Sanofi
    Head of Transformation
  • Sant Pau Hospital Research Institute
    Director
  • Santhera Pharmaceuticals
    Global Market Access Manager
  • Santhera Pharmaceuticals
    Chief Medical Officer
  • Santhera Pharmaceuticals
    Patient Advocacy Group Manager
  • Santhera Pharmaceuticals
    General Manager, Spain
  • Savana
    Chief Medical Officer
  • Savana
    Head of Life Sciences
  • Save Sight Now Europe
    Senior Engineer Manager
  • Save Sight Now Europe
    cofounder and president
  • Saventic Health GmbH
    Global Chief Business Officer
  • Saventic Health GmbH
    Global Chief Business Officer
  • Saventic Health GmbH
    Global Chief Business Officer
  • Scendea Ltd.
    Regional Business Development Manager – UK & Nordics
  • Scenic Biotech
    Business Development & Alliance Manager
  • SCF
    gm
  • Schwarzhaupt Pharma
    CEO
  • Schwarzhaupt Pharma
    COO
  • Sciensus
    Vice President Business Development
  • Sciensus Rare
    Account Director
  • Semmelweis University
    Professor of Neurology, Psychiatry, Clinical Genetics and Clinico-pharmacology
  • Sentinus Pharma
    Director of Business Development & Licensing
  • Seqera
    senior product manager
  • Servier
    Market Access/P&R
  • Servier
    Senior Value & Access Manager
  • Servier International
    Project Director
  • Shionogi
    Associate Director Market Access
  • Shionogi
    Global Market access Lead
  • Shionogi Inc
    Global MA Lead
  • Shionogi Inc
    Senior Director, Global Market Access & Pricing Governance
  • Simbec-Orion
    Senior Business Development Director
  • Singela
    Président
  • SJD Barcelona Children's Hospital
    Senior Advisor, International Department
  • SJD Children's Hospital
    Patient Engagement in Research Coordinator
  • SJD Children's Hospital
    Patient Engagement in Research Coordinator
  • SJD Hospital
    Advanced Practice Nurse in Pediatric Palliative Care
  • SJOGREN EUROPE
    President
  • SKC Beratungsgesellschaft mbH
    Managing Director
  • SKC Consulting
    Head of Business Development
  • SKC Consulting
    Business Development Director
  • SKC Consulting
    Director Market Access
  • SKC Consulting
    Senior Medical Writer
  • SKC Consulting
    Online Marketing Manager
  • SLC6A1-SPAIN
    Parent
  • Sligo University Hospital
    Doctor
  • SMA Europe
    Delegate
  • SMA Europe
    Executive Committee Member
  • SMA Ireland
    Trustee
  • SMA Screening Alliance
    Advocate and Advisor
  • Smartway Pharmaceuticals Limited
    EVP Medicines Access
  • Snoball
    Customer Success
  • Snoball
    customer success
  • Sobi
    VP, Portfolio Strategy & New Product Planning
  • Sobi
    Global Head of Pricing
  • Sobi Inc
    Head of Global Regulatory Affairs
  • Sociedade Portuguesa de Esclerose Múltipla
    Vice-President
  • Sol-Gel
    VP Business Development
  • Solo
    Researcher
  • Solutions for Rare Diseases
    Executive Consultant
  • Solutions for Rare Diseases
    Public Affairs/ Business Development Director
  • Sophie's Hope Foundation
    Executive Director
  • Source Health Economics
    Director
  • Source Health Economics
    Senior HTA Manager
  • Spanish Agency of Medicines and Medical Devices
    HTA Project Manager
  • Spanish Ministry of Health
    General Director of Pharmacy
  • SpliceBio
    Chief Business Officer
  • SpliceBio
    Associate BD
  • St. Jude Children's Research Hospital
    Instructor & Senior Research Scientist (Health Economics)
  • St. Jude Children's Research Hospital - Memphis, TN
    Director, Office of Strategy & Alliances PTNI
  • STADA Arzneimittel AG
    Senior Manager Portfolio Management Specialties
  • Stemnovate Limited
    CEO
  • Suvoda
    Director, Sales
  • Swedish Orphan Biovitrum
    SVP International
  • Synklino
    Clinical Director
  • Takeda
    Corporate Communications & Public Affairs Manager
  • Takeda
    Head Pipeline & Portfolio Europe & Canada
  • Takeda
    Head of Regulatory Policy and Innovation
  • Takeda
    Head of Regulatory Policy and Innovation
  • Takeda
    Head of Corporate Communication, Public Affairs & Patient Advocacy, Belgium
  • Takeda
    Medical Lead
  • Takeda
    Head, Public Affairs & Public Policy, Europe & Canada
  • Takeda
    Public Affairs Lead, Rare Diseases, Eucan
  • Takeda
    EU Public Affairs Lead
  • Takeda
    Head of Regional Access
  • Tandvards och Lakemedelsformansverket
    Coordinator and Project Leader
  • Tanner Pharma Group
    Business Development Associate
  • Teamit
    Scientific Communications Officer
  • Teamit Institute
    Medicines research & regulatory science advisor
  • Teamit Research
    CEO
  • TECH MANAGE CORP.
    Director
  • TECH MANAGE CORP.
    Manager
  • Techniker Krankenkasse
    Pharmacist
  • TEDDY European Network of Excellence for Paediatric Research
    Board Member
  • Tekkare
    Rare Diseases Project Manager
  • Tekkare
    Directrice Marketing & Communication
  • Tekkare
    Marketing Director
  • Tekkare
    CTO
  • Telethon
    Public Affairs and Market Access
  • Terrapinn
    Marketing
  • Terrapinn
    Speaker Guest
  • Terrapinn Holdings Ltd
  • Terrapinn Holdings Ltd
    Commercial Director
  • TFS Healthscience
    Head of RWE
  • The Americas Health Foundation
    President
  • The Cauda Equina Foundation
    Director of Operations
  • The Ehlers-Danlos Society
    President and CEO
  • The Ehlers-Danlos Society
    President and CEO
  • The Global Foundation for Peroxisomal Disorders
    Board Member
  • The Healthcare Navigation Project
    Founder and Executive Director
  • The KAT6A Foundation
    Research And Scientific Director
  • The Labalaba Foundation
    Co-Founder
  • The Labalaba Foundation
    Medical Advisor
  • The National Alliance for Rre Diseases Support - Malta
    Representative / Advisory Board Member
  • The POLG Foundation
    Chief Strategy Officer
  • The Synergist
    Senior Program Director
  • The Synergist
    Founder and Executive Director
  • Theriva Biologics
    General Director
  • Thermosome
    CMO
  • Thermosome
    VP, Head of BD
  • Thiogenesis Therapeutics, Corp
    CEO
  • TMC Pharma Services
    Senior Director of Business Development
  • TMC Pharma Services
    Director, Regulatory Services
  • TNA Therapeutics
    Chief Executive Officer
  • Transcription Diagnostics, Inc
    President
  • TREAT-NMD
    Chief Executive Officer
  • TriNetX
    Director Business development
  • Trisk Bio
    R&D Production Manager
  • Trisk Bio
    CTO
  • Trisk Bio
    Chief Executive Officer
  • Turkey SMA Foundation
    Translator
  • Turkey SMA Foundation
    Employee
  • Turkey SMA Foundation
    Chairman of the Board
  • UCB
    Global Head of Epilepsy Patient Engagement
  • UCB
    External Engagement Lead
  • UCB
    Policy and public affairs lead
  • UCB
    Head of Policy and Public Affairs, Rare Diseases
  • UCB
    Public Affairs & Patient Advocacy Lead Germany
  • UCB
    Public Affairs & Patient Advocacy Lead Germany
  • UCB
    Global Payer Strategy Solutions Lead
  • UCB
    Patient Engagement & Policy Lead, UK & Ireland
  • UCB
    Patient Engagement & Policy Lead, UK & Ireland
  • UCB
    Global Payer Strategy Solutions Lead
  • UCB
    Head of Access, pricing and External Engagement SEE
  • UCB
    Head GT Research Platform
  • UCB
    Access Lead Rare Disease EU/IC
  • UCB
    Intercontinental Region, External Engagement Lead
  • UCB
    External Engagement & Sustainability Lead
  • UCB
    Global Policy and Public Affairs Lead - Rare Disease
  • UCB
    Global Policy and Public Affairs Lead - Rare Disease
  • UCB
    Policy and public affairs lead
  • UCB
    Chief of Staff
  • UCB
    VP, Head Evidence Generation, Global Marketing
  • UCB
    Senior Director, Early Commercial Lead
  • UCB
    Drug product lead
  • UCB
    Global Head of Epilepsy Patient Engagement
  • UCB
    Global Medical Head Neurology & Rare TA
  • UCB
    GM for MEA and Latina
  • UCB
    Patient Engagement Lead Europe
  • UCB
    Global Head WoCBA program
  • UCB
    Gobal Policy & Public Affairs Lead
  • UCB
    Head of Medical Europe
  • UCB Biopharma
    Head of Neurodegeneration
  • UCB Biopharma Srl
    Global Pricing Analyst
  • UCB, Inc.
    Global Head of Market Access
  • UCL
    Professor of Clinical Neurology and Mitochondrial Medicine
  • UCL x Orchard Therapeutics
    EngD Student
  • UCLB
    Senior Business Manager
  • UFSC
    PhD candidate
  • UHM Hospital
    Consultant
  • Ultragenyx
    Director, Patient Advocacy
  • Undiagnosed Diseases Network Foundation
    CEO
  • Uniphar
    Medical Director
  • Uniphar
    Director
  • United Arab Emirates University. College of Medicine and Health Sciences
    Prof Dr
  • United Language Group
    Business Development Manager
  • United Language Group
    Business Consultant, Life Sciences
  • Universal Health Insurance Authority-UHIA
    Health Economist
  • Universidad Carlos III de Madrid
    Associate Professor
  • Universitat de Barcelona
    Student
  • Universitat de Barcelona
    Student
  • Universitat de Barcelona
    Student
  • Universitat de Barcelona
    Student
  • Universitat de Barcelona
    Master's student
  • Universitat de Barcelona
    Professor
  • University College Dublin
    Associate Professor
  • University Hospital Zurich
    Patient Expert (EUPATI), Study Coordinator
  • University Medical Center Utrecht
    Program manager European Reference Networks
  • University of Barcelona
    PhD Researcher
  • University of Barcelona
    Associate Professor
  • University of Glasgow
    HTA Programme
  • University of Manchester
    Honarary Professor of HTA
  • University of Manchester & Roche
    PhD Student
  • University of MILAN
    Researcher Scientist
  • University of Namur
    Student
  • University of Oxford NDORMS
    Senior Researcher in Pharmacoepidemiology
  • University of Sheffield
    Research Fellow
  • University of Sheffield
    Msc student
  • University of Twente
    Rare Disease Therapy Researcher
  • University of Waikato
    Dean of Pharmacy
  • Valencia University
    Dr.
  • Valid Insight
    Managing Director
  • Valid Insight
    Consultant
  • Valid Insight
    Senior Account Director
  • Valid Insight
    Associate Director
  • Valid Insight
    Business Development Lead
  • Vall d hebron
    Clínicas geneticist
  • Vall d’Hebron Institute of Research
    Epileptologist
  • Vall d'Hebron Institut de Recerca
    Project manager Internal Strategy
  • Vall d'Hebron Institut de Recerca, VHIR
    Project Manager registries
  • Vall d'Hebron Research Institute
    Biostatistician
  • Vall d'Hebron University Hospital / Research Institute
    ENROL Registry coordinator / ERN-EuroBloodNet Scientific Director
  • Veristat
    Senior Markting Campaign Manager
  • Veristat
    Business Development Director
  • Veristat
    Business Development Manager
  • Veristat
    Europe Strategy Advisor
  • Veristat
    Chief Commercial Officer
  • Veristat
    Medical Monitor
  • Vertex
    Pharmacist
  • Vertex
    Market Access Head
  • VHIO
    Clinical Project Manager
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