Julien Delaye | Patient Engagement Manager – HTA, EURORDIS
EURORDIS
Julien Delaye joined EURORDIS in September 2019 as an intern and moved to the position of Public Affairs Assistant on the Rare 2030 project. He then became Public Health Policy Junior Manager and now holds the position of Patient Engagement Manager in HTA. Julien is responsible for organizing the participation (awareness, training, monitoring) of people living with a rare disease and their representatives in the European Cooperation on HTA and in national HTA procedures, as well as participating in research activities in the HTA field where EURORDIS is invited to take a role. Prior to EURORDIS, he worked as an event coordinator for European Calcified Tissue Society (ECTS), was a volunteer for Osteogenesis Imperfecta Federation Europe (OIFE) and was a marketing intern at Sanofi – Copenhagen. Julien holds two bachelor’s degrees, in Marketing (Liège – Campus Guillemins) and in European Public Health (Maastricht University), and a master’s degree in Public Policy and Administration (Dublin – UCD).
Appearances:
Day 1 - Wednesday 23 October @ 11:30
Working Group 5: Enhancing Patient Involvement in HTAs: Practical Strategies for Stakeholder Collaboration
This working group aims to encourage collaboration among stakeholders in the HTA process to improve patient outcomes through enhanced engagement strategies. We will explore key issues surrounding patient involvement in HTAs, with a focus on how pharmaceutical companies can actively contribute to this critical activity.
Key discussion areas:
- Implications of the new HTA Regulation in the EU, effective January 2025, and how they affect patient participation
- Best practices and ethical considerations in partnerships between pharmaceutical companies and patient advocacy organizations
- Strategies for ensuring that patients receive clear and understandable information about pharmaceutical products during the HTA process
- Patient training programs to enhance their participation in HTAs while maintaining ethical boundaries
If you are a stakeholder in the healthcare ecosystem, we invite you to contribute your perspectives and engage in this crucial conversation.
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