Katie Waller | Head of Patient Programmes
The Lily Foundation

Katie Waller is Head of Patient Programmes at The Lily Foundation, the UK's leading mitochondrial disease patient organisation. Before joining the Lily team, she trained as a paediatric nurse and then worked as a research nurse, working on early phase clinical trials with patients with neuromuscular diseases including Duchenne Muscular Dystrophy. She currently works across patient support, research and policy and is a passionate advocate for the mito community. She is passionate about meaningful patient involvement in research, is the Patient and Public Involvement Lead for the LifeArc Centre for Rare Mitochondrial Disorders, and leads IMPACT, the Lily Foundation's patient involvement group.

Appearances:

Day 1 - Tuesday 28 October @ 15:00

Panel: Reimagining Diagnosis in the Era of Patient-Centered Healthcare

For many patients, the path to an accurate diagnosis is long, complex, and often life-altering. This panel will explore how timely and precise diagnosis can influence patient well-being, access to care, and long-term outcomes. By bringing together perspectives from clinicians, patient advocates, and healthcare experts, we will discuss opportunities to shorten diagnostic journeys, reduce uncertainty, and ensure that the process itself supports true patient centricity.

Moderator: Kaja Zarakowska, Head of Medical Diagnosis Innovation, UCB