World Orphan Drug Congress 2018

Strategy, advocacy and partnering for the orphan drug industry

6th–8th November 2018, Pre-Congress Workshops 6th November
Hotel Crowne Plaza, Barcelona, Spain

 

2018 Key Speakers

  • Dr Segolene Ayme at World Orphan Drug Congress 2018
    Dr Segolene Ayme
    Founder of Orphanet & Rare Disease Expert in Residence
    Inserm
    Sophia Brodin at World Orphan Drug Congress 2018
    Sophia Brodin
    Deputy Head of Department, Department of Value Based Pricing
    The Dental and Pharmaceutical Benefits Agency T.L.V.
    Anna Bucsics at World Orphan Drug Congress 2018
    Anna Bucsics
    Project Advisor
    Mechanism of Coordinated Access to orphan medicinal products (MoCA)
  • Dr Andreas Busch at World Orphan Drug Congress 2018
    Dr Andreas Busch
    Chief Scientific Officer, Head of Research and Development
    Shire Pharmaceuticals
    Avril Daly at World Orphan Drug Congress 2018
    Avril Daly
    CEO
    Retina International
    Karen Facey at World Orphan Drug Congress 2018
    Karen Facey
    Senior Research Fellow
    University of Edinburgh
  • Pamela Gavin at World Orphan Drug Congress 2018
    Pamela Gavin
    Chief Strategy Officer
    National Organization for Rare Disorders
    Edmund Jessop at World Orphan Drug Congress 2018
    Edmund Jessop
    Medical Adviser
    National Health Service
    Dr Panos Kanavos at World Orphan Drug Congress 2018
    Dr Panos Kanavos
    Associate Professor in International Health Policy, Department of Social Policy Deputy Director, LSE Health
    London School of Economics and Political Science
  • Rabia Khan at World Orphan Drug Congress 2018
    Rabia Khan
    Health Division, Directorate for Employment, Labour and Social Affairs
    O.E.C.D.
    Dr Greg Larosa at World Orphan Drug Congress 2018
    Dr Greg Larosa
    Senior Vice President & Head of Scientific Strategy, Rare Disease RU
    Pfizer
    Yann Le Cam at World Orphan Drug Congress 2018
    Yann Le Cam
    Chief Executive Officer
    EURORDIS
  • Alastair Mackinnon at World Orphan Drug Congress 2018
    Alastair Mackinnon
    CMO
    Mereo BioPharma
    Nathalie Moll at World Orphan Drug Congress 2018
    Nathalie Moll
    Director General
    EFPIA
    Luca Sangiori at World Orphan Drug Congress 2018
    Luca Sangiori
    Head of Medical Genetics and Rare Orthopedic Diseases
    Rizzoli Orthopaedic Institute
  • Ad Schuurman at World Orphan Drug Congress 2018
    Ad Schuurman
    Senior Advisor International Affairs
    National Health Care Institute (ZIN), the Netherlands
    Dr Josep Torrent-Farnell at World Orphan Drug Congress 2018
    Dr Josep Torrent-Farnell
    Medicines Department
    Catalan Health Service
    Sheela Upadhyaya at World Orphan Drug Congress 2018
    Sheela Upadhyaya
    Associate Director Highly Specialised Technologies
    National Institute For Health and Care Excellence
  • Dr Sander Van Deventer at World Orphan Drug Congress 2018
    Dr Sander Van Deventer
    Chief Scientific Officer And General Manager
    uniQure
    Dr Andreas Vogel at World Orphan Drug Congress 2018
    Dr Andreas Vogel
    Head of European Regulatory
    Bluebird Bio
    Till Voigtlander at World Orphan Drug Congress 2018
    Till Voigtlander
    Vice-President of the Board of Members States on ERNs
    Medical University of Vienna

What is World Orphan Drug Congress?

 

World Orphan Drug Congress is Europe's meeting place for the rare disease community. The Conference offers strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to really tailor the event to the needs of your day-to-day role.
 

Exhibitors have a unique opportunity to put their business products and services in front of potential buyers looking to source the latest technologies in the orphan drugs industry. Meet and listen to biotech start-ups and investors in our Pitch & Partner track where the most promising companies showcase their orphan drug technology and pipeline.
 

Enjoy discussions on: 

Cell & Gene Therapies

Genetic Testing

Gene Editing

Partnering & Investment 

Global Market Access

Expanded Access Programs

Real World Evidence

Global Patient Advocacy

Value based pricing & reimbursement

Epidemiology & forecasting

Orphan Drugs Policy

Gene Therapy Development 

Together with:

Supported by:

 

 

 

 

 

 


Generate new business


Get your brand, your message and your sales people in front of your customers.

The congress opens doors to fantastic opportunities to form lucrative partnerships and source new ground-breaking solutions.

 

DOWNLOAD PROSPECTUS

World Orphan Drug Congress 2018  sponsorship prospectus

Who Attends

 

AANORA Actelion Pharma Ltd Action Duchenne Addmedica Adelphi Values AGSD (UK) AirLiquide

AKU Society Alcimed Alexion Pharmaceuticals Allaysis LLC Alliance Life Sciences ALS Liga Belgi

Alstrom Syndrome U.K. AMICULUM Anticancer Fund AOP Orphan Pharmaceuticals AG

ArmaGen Technologies, Inc. Atacsia a Fi / Ataxia and Me Ataxia UK aTyr aTyr Pharma

BioBlast Pharma Ltd Biopontis Alliance Blackswan Foundation Brace Pharma Capital

Caligor Rx, Inc. Calypso Biotech SA  Capsugel Celgene Centogene AG

Charity Association Neurohereditary Diseases Chiesi Farmaceutici Spa Clear Pharma

Clinart MENA Clinerion Clinigen Global Access Programs Comradis Concenter BioPharma/Silkim Ltd.

Cote Orphan Coulter Partners   Covance UK CRF Health CureDuchenne Cures Within Reach

Cydan Development  Cytokinetics Daiichi Sankyo Europe GmbH Dipharma SA Diurnal Limited

Dravet Syndrome Foundation Durbin E.C.R.I.N. ECRIN-ERIC ELA Suisse

Emmaus Life Sciences, Inc Ergomed EspeRare Euromedica EuropaBio

European Huntington's Disease Network EURORDIS  Euticals Spa EvaluatePharma Ltd

Evidera F.Hoffmann-La Roche Ltd. Facio Therapies BV Federal Joint Committee

F Hoffmann-La Roche French Association Against Friedreich Ataxia Gaucher Disease Russia

Genesis Pharma Genetic Alliance U.K. Genkyotex Innovation Sas Genpharm Genzyme Europe BV

Gerson Lehrman Group Giddi Pharma GlaxoSmithKline  Greenovation Biotech GmbH

Grünenthal GmbH GSK Rare Diseases GW Pharmaceuticals   Haute Autorite De Sante

Horizon Pharma Inc I.M.S. Health Idis Managed Access Idis Pharma

Imagine - Institut des Maladies génétiques IMS Health INC Research Index Ventures INSERM

 Lysogene M3 Pharma S/A Mapi Consultancy Midas Pharma GmbH Minoryx Therapeutics

MPS Society N.O.R.D. National Institute for Health and Care Excellence

National Institutes of Biomedical Innovation, Health and Nutrition

National organisation for rare diseases of Serbia  NephCure Kidney International Niemann-Pick UK Novartis

 

FIND OUT MORE

Join leading companies already benefiting from sponsorship & exhibiting

 

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PerkinElmer at World Orphan Drug Congress 2018

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Quotient Sciences Ltd at World Orphan Drug Congress 2018

 
 
 
 
 
 
 
 
 
 
 
 
 
 

Join us in Barcelona this November
 

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Get Involved At World Orphan Drug Congress 2018

 

To Sponsor Or Exhibit

 

Andrew Mears
andrew.mears@terrapinn.com
t/ +44 20 7092 1228

 

To Speak

 

Wing-Yun Cheung
wing-yun.cheung@terrapinn.com
t/ +44 20 7092 1172

 

To Register

 

Issa Mauthoor
issa.mauthoor@terrapinn.com
t/ +44 20 7092 1257