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    30 October 2023 | Pre-Congress Workshops (InterContinental Barcelona - next to Fira de Barcelona)
    31 October - 2 November 2023 | Main Congress Days (Fira de Barcelona Montjuic)

     

    Strategy, Advocacy & Partnering For
    The Global Orphan Drug Industry

     

    SPONSOR NOW

    TICKETS FROM €795
    Offer closes 29 SEPTEMBER

EUROPE'S MOST EXCITING ORPHAN DRUG EVENT

 

1,500+

Attendees

300

Speakers

100+

Exhibitors

3

Days

What is World Orphan Drug Congress?


The World Orphan Drug Congress is the largest and most established orphan drugs & rare diseases meeting of its kind across the globe.

Conference

Covering cell & gene therapy, genetic testing, market access, real world evidence, orphan drugs policy and much more
 

Exhibition

130+ leading solution providers from across the globe, featuring new ways of thinking and novel partnerships to generate solutions.
 

SEE EXHIBITOR LIST

Networking

Networking is at the heart of World Orphan Drug Congress. Our congress allows you to connect directly with thousands of pharma experts across 3 days of built-in 1-2-1 networking  

GET YOUR TICKET NOW

The Start-to-Finish of Orphan Drugs

From regulation & policy to global pricing to gene therapies

Cell & Gene Therapies
Genetic Testing
Gene Editing
Partnering & Investment 
Global Market Access
Expanded Access Programs
Real World Evidence
Global Patient Advocacy
Value Based Pricing & Reimbursement
Epidemiology & Forecasting
Orphan Drugs Policy
Gene Therapy Development
Clinical Trials
Payers, HTA and Pricing
Manufacture

NEW exclusive €1200 discount ends in

 
 
countdownmail.com
 

Title Sponsor

 

 

Alexion

 

Our incredible line-up for 2023
Over 300 speakers

 

Josie Godfrey
Rare Diseases, Market Access
JG Zebra Consulting
Yann Le Cam at World Orphan Drug Congress
Sheela Upadhyaya
Life Science Advisor in Rare Diseases & Special Advisor
FIPRA
Sheela Upadhyaya at World Orphan Drug Congress
Daniel O’Connor
Deputy Director, Innovation Accelerator and Regulatory Science
Medicines and Healthcare products regulatory Agency
Daniel O’Connor at World Orphan Drug Congress
Durhane Wong-Rieger
President & CEO
Canadian Organization for Rare Disorders
Durhane Wong-Rieger at World Orphan Drug Congress
Alexander Natz
Secretary General
EUCOPE
Alexander Natz at World Orphan Drug Congress
Karen Facey
Senior Research Fellow
University of Edinburgh  & RWE4Decisions Secretariat
Karen Facey at World Orphan Drug Congress
Martine Zimmermann
Senior VP, Head of Regulatory & Quality Affairs
Ipsen
Martine Zimmermann at World Orphan Drug Congress
Veronica Lopez Gousset
President & Founder
VLG Consulting
Veronica Lopez Gousset at World Orphan Drug Congress
Wills Hughes-Wilson
Chief Patient Access Officer
Mereo BioPharma
Wills Hughes-Wilson at World Orphan Drug Congress
Louis Boon
CSO
JJP Biologics
Louis Boon at World Orphan Drug Congress
Claire Skentelbery
Director General
EuropaBio
Claire Skentelbery at World Orphan Drug Congress
Rick Thompson
CEO
Beacon
Rick Thompson at World Orphan Drug Congress
Dr Arjon Van Hengel
Deputy Head of Unit, Health Innovations & Ecosystems
European Commission 
Dr Arjon Van Hengel at World Orphan Drug Congress
Annemieke Aartsma-Rus
PhD. Professor of translational genetics
LUMC 
Annemieke Aartsma-Rus at World Orphan Drug Congress
Charlotte Chanson
Director, Global Diagnostics & Newborn Screening
Orchard Therapeutics 
Charlotte Chanson at World Orphan Drug Congress
Samantha Parker
Chief Patient Access Officer
InnoSkel 
Samantha Parker at World Orphan Drug Congress
Jon Neal
Head Pipeline & Portfolio Europe & Canada
Takeda & EFPIA Patient Access Board-Sponsored Committee
Jon Neal at World Orphan Drug Congress
Yann le Cam
CEO
EURORDIS - Rare Diseases Europe   & RWE4Decisions Secretariat
Yann le Cam at World Orphan Drug Congress
Christian Jervelund
Partner
Copenhagen Economics
Christian Jervelund at World Orphan Drug Congress
Dr Violeta Stoyanova-Beninska
Chair of Committee for Orphan Medical Products, EMA, Policy, Regulatory and International Affairs
CBG -MEB
Dr Violeta Stoyanova-Beninska at World Orphan Drug Congress
Toon Digneffe
Head Public Affairs & Public Policy, Chair
Takeda, EUCOPE Incentives Steering Group and EUCOPE Board member
Toon Digneffe at World Orphan Drug Congress
Tomas Dolezal
Director, Founder
Institute for Health Economics, COGVIO
Tomas Dolezal at World Orphan Drug Congress
Dr Hannah Brühl
Policy Advisor
Federal Ministry of Health, Germany
Dr Hannah Brühl at World Orphan Drug Congress
Diane Kleinermans
President of the Commission of Drugs Reimbursement
INAMI – RIZIV
Diane Kleinermans at World Orphan Drug Congress

 

SEE ALL SPEAKERS

Proud to announce our 2023 sponsors and exhibitors

 

  • Title Sponsorship

    Alexion – AstraZeneca Rare Disease at World Orphan Drug Congress 2023

    Diamond Sponsor

    Clinigen Group at World Orphan Drug Congress 2023

  • Diamond

    Eversana at World Orphan Drug Congress 2023

    Platinum Sponsor

    Copenhagen Economics at World Orphan Drug Congress 2023

  • Platinum Sponsor

    Ipsen at World Orphan Drug Congress 2023

    Platinum Sponsor

    Sanofi at World Orphan Drug Congress 2023

  • Platinum Sponsor

    Ucb at World Orphan Drug Congress 2023

    Platinum Sponsor

    volv global at World Orphan Drug Congress 2023

  • Gold Sponsor

    Allucent at World Orphan Drug Congress 2023

    Gold Sponsor

    CRA, Charles River Associates at World Orphan Drug Congress 2023

  • Gold Sponsor

    Partners4Access at World Orphan Drug Congress 2023

    Gold Sponsor

    Pfizer at World Orphan Drug Congress 2023

  • Gold Sponsor

    Red Nucleus at World Orphan Drug Congress 2023

    Gold Sponsor

    Takeda at World Orphan Drug Congress 2023

  • Silver Sponsor

    Ascenian at World Orphan Drug Congress 2023

    Silver Sponsor

    Chiesi Group at World Orphan Drug Congress 2023

  • Silver Sponsor

    Aparito at World Orphan Drug Congress 2023

    Silver Sponsor

    OPIS at World Orphan Drug Congress 2023

  • Silver Sponsor

    CSL Behring at World Orphan Drug Congress 2023

    Silver Sponsor

    DECISIVE CONSULTING LTD at World Orphan Drug Congress 2023

  • Silver Sponsor

    Durbin Plc at World Orphan Drug Congress 2023

    Silver Sponsor

    Fortrea at World Orphan Drug Congress 2023

  • Silver Sponsor

    ICON at World Orphan Drug Congress 2023

    Silver Sponsor

    Initiate at World Orphan Drug Congress 2023

  • Silver Sponsor

    Marken at World Orphan Drug Congress 2023

    Silver Sponsor

    myTomorrows at World Orphan Drug Congress 2023

  • Silver Sponsor

    Omakase Consulting at World Orphan Drug Congress 2023

    Silver Sponsor

    Orphan Drug Consulting at World Orphan Drug Congress 2023

  • Silver Sponsor

    Parexel at World Orphan Drug Congress 2023

    Silver Sponsor

    Tanner Pharma Group at World Orphan Drug Congress 2023

  • Silver Sponsor

    TriNetX at World Orphan Drug Congress 2023

    Silver Sponsor

    WEP Clinical at World Orphan Drug Congress 2023

  • Silver Sponsor

    Worldwide Clinical Trials at World Orphan Drug Congress 2023

    Bronze Sponsor

    Alira Health at World Orphan Drug Congress 2023

  • Bronze Sponsor

    Bionical Emas at World Orphan Drug Congress 2023

    Bronze Sponsor

    Costello Medical at World Orphan Drug Congress 2023

  • Bronze Sponsor

    Jaguar Health, Inc. at World Orphan Drug Congress 2023

    Bronze Sponsor

    Novo Nordisk at World Orphan Drug Congress 2023

  • Bronze Sponsor

    PharmaBlue at World Orphan Drug Congress 2023

    Bronze Sponsor

    Premier Research at World Orphan Drug Congress 2023

  • Company Showcase Sponsor

    Healthlumen at World Orphan Drug Congress 2023

    Company Showcase Sponsor

    Ikris Pharma Network at World Orphan Drug Congress 2023

  • Company Showcase Sponsor

    Terebellum / AscellaHealth at World Orphan Drug Congress 2023

    Exhibitor

    Specialty Scripts RX at World Orphan Drug Congress 2023

  • Exhibitor

    Only Orphans Cote LLC at World Orphan Drug Congress 2023

    Exhibitor

    AXIS Consulting at World Orphan Drug Congress 2023

  • Exhibitor

    Ergomed at World Orphan Drug Congress 2023

    Exhibitor

    Homenurse4u at World Orphan Drug Congress 2023

  • Exhibitor

    IDEA Regulatory at World Orphan Drug Congress 2023

    Exhibitor

    Illingworth Research at World Orphan Drug Congress 2023

  • Exhibitor

    Intexo Società Benefit at World Orphan Drug Congress 2023

    Exhibitor

    PCM Trials at World Orphan Drug Congress 2023

  • Exhibitor

    Precision for Medicine at World Orphan Drug Congress 2023

    Exhibitor

    Rare Patient Voice, LLC at World Orphan Drug Congress 2023

  • Exhibitor

    Remap Consulting at World Orphan Drug Congress 2023

    Startup

    Alder Therapeutics at World Orphan Drug Congress 2023

  • Startup

    Aptadel Therapeutics at World Orphan Drug Congress 2023

    Startup

    Aspire Biosciences at World Orphan Drug Congress 2023

  • Startup

    Crisp-hr Therapeutics at World Orphan Drug Congress 2023

    Startup

    CVGenome at World Orphan Drug Congress 2023

  • Startup

    CureRare at World Orphan Drug Congress 2023

    Startup

    EveryONE Medicines at World Orphan Drug Congress 2023

  • Startup

    Gate2Brain at World Orphan Drug Congress 2023

    Startup

    GeneScape at World Orphan Drug Congress 2023

  • Startup

    Geneial at World Orphan Drug Congress 2023

    Startup

    Gencc GmbH at World Orphan Drug Congress 2023

  • Startup

    Haltex Therapeutics at World Orphan Drug Congress 2023

    Startup

    Jenthera Therapeutics at World Orphan Drug Congress 2023

  • Startup

    Little Journey at World Orphan Drug Congress 2023

    Startup

    Lyfegen at World Orphan Drug Congress 2023

  • Startup

    Mendelian at World Orphan Drug Congress 2023

    Startup

    MDVerse at World Orphan Drug Congress 2023

  • Startup

    Medace at World Orphan Drug Congress 2023

    Startup

    Mendel Partners at World Orphan Drug Congress 2023

  • Startup

    Navega Therapeutics at World Orphan Drug Congress 2023

    Startup

    Neurospear at World Orphan Drug Congress 2023

  • Startup

    Phormulate at World Orphan Drug Congress 2023

    Startup

    Prizm therapeutics at World Orphan Drug Congress 2023

  • Startup

    REACH Market Research at World Orphan Drug Congress 2023

    Startup

    Red Thread Market Access Ltd at World Orphan Drug Congress 2023

  • Startup

    The Salve Healthcare at World Orphan Drug Congress 2023

    Startup

    TMA Precision Health at World Orphan Drug Congress 2023

  • Startup

    Transmineo at World Orphan Drug Congress 2023

    Startup

    Vidium SAS at World Orphan Drug Congress 2023

 

See full exhibitor list
Enquire to exhibit

 

 

Remaining marketing opportunities for world-class solution providers are selling fast.
Contact: Michael.Hodge@terrapinn.com

 

Get the sponsorship
and exhibition brochure

In Partnership with

Beacon World Orphan Drug Congress 2023 Supporting Partner

Dravet World Orphan Drug Congress 2023 Supporting Partner

EURORDIS World Orphan Drug Congress 2023 Supporting Partner

FEDER World Orphan Drug Congress 2023 Supporting Partner

CataloniaBio & HealthTech World Vaccine Congress Europe 2023 Supporting Partner

RRM World Orphan Drug Congress 2023 Supporting Partner

SEE ALL PARTNERS


“Always a great conference, where key players in the rare disease field come together and share ideas and, more importantly, agree on some concrete actions.”

- IPSEN



“Great networking opportunities, great panels and discussions!”

- EURORDIS
“Great access to important colleagues, ability to connect or book time slots on swapcard was great, varied sessions and good opportunities to network outside of the sessions.”

- Metabolic Support UK


“Good mix of plenaries and workshops, lots of meeting opportunities, relevant topic selection, very friendly and supportive organizer staff“

- Cerner Enviza

 

Join the Global Orphan Drug Community in Barcelona

30 OCTOBER - 2 NOVEMBER 2023 | FIRA DE BARCELONA - MONTJUÏC, BARCELONA
 

TICKETS FROM €795

 

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2023 Speakers

2023 Agenda

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