ORPHANET-AISBL

Startup

The Orphanet-AISBL is a newly established non-profit spinoff from Orphanet, dedicated to turning the more than five million combined data from the Orphanet Databse into actionable knowledge, thereby serving all stakeholders in the rare disease ecosystem.

Through customized services based on expert curated data, the AISBL is aimed at supporting faster innovation and evidence-based decision-making at all levels, within a broad range of stakeholders operating in an increasingly data driven environment. 

 



website

Get involved at World Orphan Drug Congress Europe 2025

 

 

TO SPONSOR


Steph Scanlon

Steph.Scanlon@terrapinn.com

 

TO SPEAK


Abdu Kauroo
Abdu.Kauroo@terrapinn.com

 

MARKETING & PRESS


Jasper Cameron

Jasper.Cameron@terrapinn.com

 

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