Manca Povsic | Market access lead
Amiculum

Manca Povsic, Market access lead, Amiculum

Manca has over 9 years’ experience in health economic outcomes research and market access consultancy across global and local markets. She specializes in innovative approaches to value demonstration, including how best to use new and emerging technologies to expedite market access.

Appearances:



Day 1 @ 11:30

Invisible patients or visible impact? Examining patient involvement and influence in Europe’s Joint Clinical Assessments (JCAs) of new medicines - Room E102

 

-Europe’s first JCAs, which examine how well new medicines work and how well they’re tolerated, compared with existing treatment options, have now been published. This provides an initial opportunity to examine how rare disease patient and caregiver perspectives are incorporated into the assessments. However, while patient voices are present in the reports, is there evidence that they influence the assessment itself?

In this working session, participants will:-

-Examine what the published rare disease JCAs reveal about the transparency and impact of patient and caregiver involvement

-Assess what "meaningful impact" looks like for patients involved in JCA decision-making during a roundtable discussion with our expert clinician and patient representative speakers

-Co-create recommendations to support meaningful representation of patient and caregiver perspectives in Europe’s JCA process for rare diseases and paediatric conditions 

Session led by: Amiculum

Day 1 @ 11:30

Invisible patients or visible impact? Examining patient involvement and influence in Europe’s Joint Clinical Assessments (JCAs) of new medicines - Room E102

 

-Europe’s first JCAs, which examine how well new medicines work and how well they’re tolerated, compared with existing treatment options, have now been published. This provides an initial opportunity to examine how rare disease patient and caregiver perspectives are incorporated into the assessments. However, while patient voices are present in the reports, is there evidence that they influence the assessment itself?

In this working session, participants will:-

-Examine what the published rare disease JCAs reveal about the transparency and impact of patient and caregiver involvement

-Assess what "meaningful impact" looks like for patients involved in JCA decision-making during a roundtable discussion with our expert clinician and patient representative speakers

-Co-create recommendations to support meaningful representation of patient and caregiver perspectives in Europe’s JCA process for rare diseases and paediatric conditions 

Session led by: Amiculum
last published: 15/Oct/26 12:27 GMT

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Get involved at World Orphan Drug Congress Europe 2026

 

 

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MARKETING & PRESS


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