The European Rare Disease Research Alliance (ERDERA) has the ambition to improve the health and well-being of the 30 million people living with a rare disease in Europe.
Over 170 organisations from the public and private sectors are working hand in hand in this new partnership to make Europe a world leader in rare diseases research and innovation and bring concrete health benefits to patients, through better prevention, diagnosis and treatment.
ERDERA is championed by the European Union, under the Horizon Europe Program, and members states and led by the French National Institute of Health and Medical Research (INSERM).
ERDERA has received funding from the European Union’s Horizon Europe research and innovation programme under grant agreement N°101156595.
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