2026 Early Confirmed Speakers
26-28 October 2026
RAI Convention Center, Amsterdam
Dariusz Adamczewski, Managing Director, Children’s Tumor Foundation Europe
Anjan Aralihalli, President & Founder, Raya Therapeutic, Inc.
Alexis Arzimanoglou, Coordinator of the European Reference Network for Rare and Complex Epilepsies, EpiCARE
Annette Bakker, CEO, Childrens Tumor Foundation
Fabienne Bartoli, Inspector General, French National Authority for Health
Stefano Benvenuti, Head of Public Affairs and Market Access, Fondazione Telethon
Stine Bosse, MEP Renew Group Europe, European Parliament
Thomas Broekhoff, Program Manager Medicines, hollandbio
P.J. Brooks, Deputy Director, Division of Rare Diseases Research Innovation, Member of IRDiRC Funders Constituent Committee (FCC), NIH/NCATS
Thomas Butt, Executive Director, Health Economics & Outcomes Research, Biomarin
Giorgia Crimi, Patient Adovacacy and engagement manager, Fondazione Telethon
Magdalena Daccord, Chief Executive Officer, FH Europe Foundation
Toon Digneffe, Head Public Affairs, Takeda
Elsie Evans, Ambassador Programme Project Manager, FH Europe Foundation NGO
Karen Facey, Chair HTAi Rare Disease Interest Group, University of Edinburgh
Pedro Franco, Senior Director, Head of Europe Global Regulatory & Scientific, Merck
Viviana Giannuzzi, Head of Research and Innovation Department, Fondazione per la ricerca farmacologica Gianni Benzi onlus
Adrian Goretzki, President, Healthcare Education Institute
Marcus Guardian, CEO, International Horizon Scanning Initative
Niklas Hedberg, Head Of Pharmacy, Tandvards och Lakemedelsformansverket
Debbie Hellenbrand, Patient advocate and Professional Speaker, Pathways To Trust
Anneliene Jonker, Rare Disease Therapy Researcher, University of Twente
Kaja Kantorska, Health and Food Safety Directorate General, European Commission
Manohar Katakam, Chief Executive Officer, SteroTherapeutics
Matthew Klein, Chief Executive Officer, PTC Therapeutics
Kristina Larsson, Head of Orphan Medicines, Division for Human Medicines Evidence Generation, EMA
Yann Le Cam, Advisor, VOZ Advisors
James Levine, President, Foundation Ipsen, James Levine - Ipsen
Caroline Ling, Vice President, Value & Access Europe, RTI Health Solutions
Veronica Lopez Gousset, DrPH candidate, Harvard T.H. Chan School of Public Health
Michelle Mellion, Chief Medical Officer, Everyone medicines
Alexander Natz, Secretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
Jonathan Neal, Head of Central, South and Eastern Europe Takeda and EFPIA European Markets Committee, Takeda
Daniel O'Connor, Director, Regulatory Policy & Early Access, ABPI
Francesc Palau, Distinguished Investigator, SJD Barcelona Children's Hospital
Francis Pang, SVP Global Market Access and International Geographic Expansion, Orchard Therapeutics
Samantha Parker, Patient Engagement Lead Rare Diseases and Vice Chair of IRDiRC, italfarmaco
Sonia Pulido Sánchez, Co-Chair of the Subgroup for Joint Scientific Consultations of the HTACG, AEMPS
Kit Roes, Professor, Radboudumc
Solange Roumengous, Head of partnerships, Banque Nationale de Données Maladies Rares (BNDMR) - Assistance Publique - Hôpitaux de Paris (APHP)
Christopher Rudolf, Founder & CEO, Volv Global
Ruchi Sharma, CEO, Stemnovate Limited
Claire Skentelbery, Director General, EuropaBio
Rachel Smith, Vice President, Rare and Genetic Diseases, Parexel International LLC
Violeta Stoyanova-Beninska, Senior Scientific Specialist at Human Division EMA, Chair of Regulatory Science Committee, IRDiRC, former Chair of COMP at EMA, EMA
Kwee Lan TAN, Head of team, Boehringer Ingelheim
Ishaan Tewarie, EQT Life Sciences
Sheela Upadhyaya, Life Science Advisor in Rare Diseases, Openflex Ltd
Leon van Wouwe, Clinical Innovation Director, Volv Global
Miriam Wagner Long, Program lead, FSHD World Alliance
Anne Willemsen, Co-chair JCA Subgroup, Zorginstituut Nederland
Sorrel Wolowacz, Head European Health Economics, R.T.I. Health Solutions
Dr. Durhane Wong-Rieger, President, Chief Executive Officer, Canadian Organisation for Rare Disorder & Rare Diseases International
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