Ben Doak | Independent Adviser
Independent Adviser

Ben Doak, Independent Adviser, Independent Adviser

Ben Doak MSc DIC, has built a significant career working in England’s National Health Service (NHS) at a national level for more than 20 years. Most recently, he was the Head of Innovative Treatments, part of NHS England’s National Specialised Commissioning Directorate. In this role, Ben’s primary role was to fulfil NHS England’s commissioning responsibility to ensure that, where applicable, specialised services were in place to deliver cell and gene therapies licensed by the UK medicines regulator, the MHRA, and recommended by NICE in the NHS in England. His achievements in post included establishing the function and setting the strategy for national adoption of cell and gene therapies. He oversaw the expansion of CAR-T services from 9 to 20 hospitals, and the introduction of several new treatments including Breyanzi and Aucatzyl for blood cancers, Zolgensma, Upstaza and Libmeldy for rare diseases and Hemgenix (for haemophilia B) and Casgevy, the CRISPR/Cas9 gene-editing therapy for beta-thalassaemia and sickle cell disease. Ben has worked in innovation through various roles in his career, including working with surgical innovations in NICE’s interventional procedures programme, overseeing the placement of innovations in treatment pathways through NICE clinical guidelines and streamlining commercial activity for new technologies in NHS England’s Commercial Medicines Directorate. Ben maintains an active interest in horizon scanning for cell and gene therapies.

Appearances:



Day 1 @ 16:40

Panel: Is the UK Now the Smarter First Launch Market for Rare Disease Therapies?

-Why should companies consider the UK as a launch market before the EU?

-What recent policy, regulatory or access changes have made the UK more flexible and open to rare disease therapies?

Day 2 @ 09:45

Keynote Panel: How are patients involved in every step of the orphan drug development and global access?

-       Patient led solutions to orphan drug development and access bottlenecks

-       How to solve the issue of small patient populations through statistical innovation, regulatory flexibility and patient-centricity

-       Utilising Real-World Data and natural history studies

-       Creating meaningful endpoints that improves patients’ quality of life

last published: 23/Oct/26 18:03 GMT

back to speakers

Get involved at World Orphan Drug Congress Europe 2026

 

 

TO SPONSOR


Steph Scanlon

Steph.Scanlon@terrapinn.com

 

TO SPEAK


Abdu Kauroo
Abdu.Kauroo@terrapinn.com

 

MARKETING & PRESS


Jasper Cameron

Jasper.Cameron@terrapinn.com