THE WORLD'S LEADING ORPHAN DRUG EVENT

 

2,000+

Attendees

250+

Speakers

130+

Exhibitors

4

Days

What is World Orphan Drug Congress?


The World Orphan Drug Congress is the largest and most established orphan drugs & rare diseases meeting of its kind across the globe.

Conference

Covering cell & gene therapy, genetic testing, market access, real world evidence, orphan drugs policy and much more
 

Exhibition

100+ leading solution providers from across the globe, featuring new ways of thinking and novel partnerships to generate solutions.
 

APPLY TO SPONSOR/EXHIBIT

Networking

Networking is at the heart of World Orphan Drug Congress. Our congress allows you to connect directly with thousands of pharma experts across 3 days of built-in 1-2-1 networking  

GET YOUR TICKET NOW

The Start-to-Finish of Orphan Drugs

From regulation and policy to global pricing and gene therapy

Cell & Gene Therapies
Genetic Testing
Gene Editing
Partnering & Investment 
Global Market Access
Expanded Access Programs
Real World Evidence
Global Patient Advocacy
Value Based Pricing & Reimbursement
Epidemiology & Forecasting
Orphan Drugs Policy
Gene Therapy Development
Clinical Trials
Payers, HTA and Pricing
Manufacture

Super Early Bird Offer – Save €2,300

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2024 Speakers

 

  • Alicia Gil at World Orphan Drug Congress 2024
    Alicia Gil
    Chief Executive Officer
    Omakase Consulting
    Christopher Rudolf at World Orphan Drug Congress 2024
    Christopher Rudolf
    Founder and Chief Executive Officer
    volv global
  • José Ángel Aibar at World Orphan Drug Congress 2024
    José Ángel Aibar
    President
    Dravet Syndrome Foundation
    Fabienne Bartoli at World Orphan Drug Congress 2024
    Fabienne Bartoli
    Inspector General
    French National Authority for Health
  • Anne-Sophie Chalandon at World Orphan Drug Congress 2024
    Anne-Sophie Chalandon
    Head of Global Public Affairs, Rare Diseases and CGT Policies
    Sanofi
    Charlotte Chanson at World Orphan Drug Congress 2024
    Charlotte Chanson
    Director Global Diagnostics
    Orchard Therapeutics
  • Toon Digneffe at World Orphan Drug Congress 2024
    Toon Digneffe
    Head, Public Affairs & Public Policy, Europe & Canada
    Takeda
    Karen Facey at World Orphan Drug Congress 2024
    Karen Facey
    Senior Research Fellow
    University of Edinburgh
  • Pedro Franco at World Orphan Drug Congress 2024
    Pedro Franco
    Senior Director, Head of Europe Global Regulatory and Scientific Policy
    Merck
    Josie Godfrey at World Orphan Drug Congress 2024
    Josie Godfrey
    Director
    JG Zebra Consulting
  • Marcus Guardian at World Orphan Drug Congress 2024
    Marcus Guardian
    Chief Operating Officer
    EUnetHTA
    Alexandra Heumber Perry at World Orphan Drug Congress 2024
    Alexandra Heumber Perry
    Chief Executive Officer
    Rare Diseases International
  • Daria Julkowska at World Orphan Drug Congress 2024
    Daria Julkowska
    Assistant Director, Thematic Institute of Genetics, Genomics & Bioinformatics
    EJP RD - IRDiRC
    Yann Le Cam at World Orphan Drug Congress 2024
    Yann Le Cam
    Chief Executive Officer
    EURORDIS
  • Paolo Martini at World Orphan Drug Congress 2024
    Paolo Martini
    Chief Scientific Officer Rare Diseases, Hematology and External R&D
    Moderna, Inc.
    Lucy Mckay at World Orphan Drug Congress 2024
    Lucy Mckay
    Chief Executive Officer
    Medics4RareDiseases
  • Alexander Natz at World Orphan Drug Congress 2024
    Alexander Natz
    Director General
    EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
    Daniel O'Connor at World Orphan Drug Congress 2024
    Daniel O'Connor
    Director, Regulatory Policy & Early Access
    ABPI
  • Samantha Parker at World Orphan Drug Congress 2024
    Samantha Parker
    Chief Patient Officer
    Innoskel
    Kacper Rucinski at World Orphan Drug Congress 2024
    Kacper Rucinski
    Executive Committee Member
    SMA Europe
  • Adrien Samson at World Orphan Drug Congress 2024
    Adrien Samson
    Healthcare Policy and Public Affairs Senior Manager
    EuropaBio
    Maurizio Scarpa at World Orphan Drug Congress 2024
    Maurizio Scarpa
    Director, Coordinating Center For Rare Diseases
    MetabERN
  • Sophie Schmitz at World Orphan Drug Congress 2024
    Sophie Schmitz
    Managing Partner
    Partners4Access
    Nick Sireau at World Orphan Drug Congress 2024
    Nick Sireau
    Chair and Chief Executive Officer
    AKU Society
  • Claire Skentelbery at World Orphan Drug Congress 2024
    Claire Skentelbery
    Director General
    EuropaBio
    Violeta Stoyanova-Beninska at World Orphan Drug Congress 2024
    Violeta Stoyanova-Beninska
    Chair of Committee for Orphan Medicinal Products
    Medicines Evaluation Board
  • Rick Thompson at World Orphan Drug Congress 2024
    Rick Thompson
    Chief Executive Officer
    Beacon
    Sheela Upadhyaya at World Orphan Drug Congress 2024
    Sheela Upadhyaya
    Life Science Advisor in Rare Diseases & Special Advisor
    Fipra International
  • Anton Ussi at World Orphan Drug Congress 2024
    Anton Ussi
    Operations Director
    EATRIS ERIC
    Leon van Wouwe at World Orphan Drug Congress 2024
    Leon van Wouwe
    Clinical Innovation Director
    volv global
  • Mary Wang at World Orphan Drug Congress 2024
    Mary Wang
    Programme Director
    Rare Diseases International
    Laura Webber at World Orphan Drug Congress 2024
    Laura Webber
    Chief Operating Officer
    HealthLumen
  • Durhane Wong-Rieger at World Orphan Drug Congress 2024
    Durhane Wong-Rieger
    President, Chief Executive Officer & Chair
    Canadian Organisation for Rare Diseases & Rare Diseases International
    Heidi Livingstone at World Orphan Drug Congress 2024
    Heidi Livingstone
    Senior Public Involvement Adviser
    National Institute for Health and Care Excellence
  • Martine Zimmermann at World Orphan Drug Congress 2024
    Martine Zimmermann
    Senior Vice President, Head of Regulatory, R&D Quality
    IPSEN
    Wills Hughes-Wilson at World Orphan Drug Congress 2024
    Wills Hughes-Wilson
    Chief Patient Access & Commercial Planning
    Mereo Biopharma

 

In Partnership with

Beacon World Orphan Drug Congress 2023 Supporting Partner

Dravet World Orphan Drug Congress 2023 Supporting Partner

EURORDIS World Orphan Drug Congress 2023 Supporting Partner

FEDER World Orphan Drug Congress 2023 Supporting Partner

CataloniaBio & HealthTech World Vaccine Congress Europe 2023 Supporting Partner

RRM World Orphan Drug Congress 2023 Supporting Partner


“Always a great conference, where key players in the rare disease field come together and share ideas and, more importantly, agree on some concrete actions.”


- IPSEN



“Great networking opportunities, great panels and discussions!”


- EURORDIS
“Great access to important colleagues, ability to connect or book time slots on swapcard was great, varied sessions and good opportunities to network outside of the sessions.”

- Metabolic Support UK


“Good mix of plenaries and workshops, lots of meeting opportunities, relevant topic selection, very friendly and supportive organizer staff“


- Cerner Enviza

 

Join the Global Orphan Drug Community in Barcelona

22 - 25 October 2024, Barcelona
 

 

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