Rare Patient Voice, LLC

Bronze Sponsor

Rare Patient Voice, LLC is a leading patient-focused organization dedicated to amplifying the voices of individuals affected by rare diseases. With a strong emphasis on strategy, advocacy, and partnering within the orphan drug industry, Rare Patient Voice provides valuable insights and perspectives to pharmaceutical companies, researchers, and healthcare stakeholders. By connecting with patients and caregivers, they facilitate meaningful collaborations that drive innovation, improve patient outcomes, and advance the development of orphan drugs. Through their unique approach, Rare Patient Voice plays a crucial role in shaping the future of rare disease treatment and healthcare.



Get involved at World Orphan Drug Congress Europe 2025

 

 

TO SPONSOR


Steph Scanlon

Steph.Scanlon@terrapinn.com

 

TO SPEAK


Abdu Kauroo
Abdu.Kauroo@terrapinn.com

 

MARKETING & PRESS


Jasper Cameron

Jasper.Cameron@terrapinn.com

 

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