Nadiah Hanim Abdul Latif | President
Malaysian Rare Disorders Society

Nadiah is the President of the Malaysian Rare Disease Society, the Regional Representative for Southeast Asia, Qatar, Oman, UAE, Jordan, Algeria, Iraq & South Korea of the Phelan McDermid Syndrome Foundation and a Council Member of Rare Disease International. She has over 2 decades of experience in the field of social impact, disability advocacy & inclusion, with over 15 years focusing on rare disease advocacy. Through the Malaysian Rare Disease Society and her other roles both in corporate & non-profit, she has been involved in multi-stakeholder collaborations & negotiations, from engagements with policymakers to body corporates, media, IOs, patient groups and civil society at local, regional & international level pushing for equity and rights for persons living with RD & their families.