Durhane Wong-Rieger | President, Chief Executive Officer
Canadian Organisation for Rare Disorder & Rare Diseases International

Day 1 @ 15:00

Keynote panel: Pushing Boundaries for the future – What’s next for Rare?

-       Assessing a policy roadmap towards an EU and Global Action Plan for Rare Diseases (GAPRD)

-       How will the WHO UN Resolution impact rare diseases in 2026 and what progress has been made?

-       How can regions come together to harmonise, collaborate and put patients’ needs at the forefront of decision making?

Day 1 @ 16:40

Panel: The diagnostic odyssey of patients with rare diseases

Day 2 @ 12:15

Panel: The Regulatory "Tri-Divergence”: The divergence of regulatory pathways in the U.S., EU and China

Day 2 @ 15:00

Closing Keynote Panel: Pushing Boundaries for the future – What’s next for Rare?

-      Assessing a policy roadmap towards an EU and Global Action Plan for Rare Diseases (GAPRD)

-      How will the WHO UN Resolution impact rare diseases in 2026 and what progress has been made?

-      How can regions come together to harmonise, collaborate and put patients’ needs at the forefront of decision making?