Rare Diseases Greece / RDG is a non-profit Association based in Athens covering the entire Greek territory, with 33 members – associations, unions, and civic, non-profit organizations representing patients with rare diseases throughout the country.
It is the largest body representing rare patients and their needs in Greece, with members in committees and working groups, such as the Committee for Rare Diseases, the Registry Working Group for Rare Diseases and Treatment Protocols, as well as the Pharmaceutical Expenditure Committee of the Greek Ministry of Health.