Kristin McKay | President/Executive Director
Project Alive

Kristin is a well-known and lifelong member of the Hunter syndrome community. Her late brother, Zachary, gave her the drive to spread awareness about MPS II from a young age. The diagnosis of her son, Charlie, just three years after the passing of her brother kickstarted her passion for fighting for a cure. Kristin has seen Hunter Syndrome through much of its medical development with her brother receiving ERT after 10 long years of a lack of available treatment, to her son receiving a stem cell transplant at four months old. Kristin has served on the Board of Project Alive since January 2020. She has worked on several committees including Marketing, the Hunter Syndrome Community Conference Planning, and Fundraising. Kristin served as Project Alive’s Secretary prior to accepting her position as Executive Director. Since joining the staff in 2022, Kristin has jumped headfirst into advocacy and program development at Project Alive. Kristin lives in Crestline, CA with her husband, Matthew, their son, Charlie, and their rambunctious puppy. She enjoys all opportunities to make Charlie giggle, watching far too many medical related television dramas after bedtime, and volunteering for Charlie's school.