Policy

 

Policy, Wednesday 24 April 2024

last published: 25/Apr/24 19:55
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Policy, Thursday 25 April 2024

Alexander Natz
Policy
11:59

Chair's Remarks

Alexander Natz, Director General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
Panel discussion
Policy
12:00

New research examining the patient impact of the FDA accelerated approval program

Annie Kennedy, Chief of Policy, Advocacy, & Patient Engagement, EveryLife Foundation for Rare Diseases
Peter Pitts, President, C.M.P.I
Sue Peschin, President and Chief Executive Officer, Alliance for Aging Research
Silas Martin, Head, Access & Policy Research, Johnson & Johnson
Panel discussion
Policy
12:20

Understanding the implications of state policies on patient access

Moderator: Michael Eging, Executive Director, Rare Access Action Project
Melanie Lendnal, Senior Vice President, Policy and Advocacy, The ALS Association
Jayson Slotnik, Partner, Health Policy Strategies, LLC
Panel discussion
Policy
13:00

360 view: How do we improve access while we continue to promote innovation

Moderator: Felicitas Colombo, Director of Government and Public Affairs, Americas Health Foundation
Dick Salvatierra, President, Americas Health Foundation
Alexander Natz, Director General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
Durhane Wong-Rieger, President, Chief Executive Officer & Chair, Canadian Organisation for Rare Disorder & Rare Diseases International
Oxana Iliach
Policy
15:15

Changing landscape for drug repurposing

Oxana Iliach, Member of Regulatory Science Committee, International Rare Diseases Research Consortium (IRDiRC)
Panel discussion
Policy
15:35

How policy moves forward with patients at the center

Morgan Boname, Senior Director, Public Policy, Neurocrine Biosciences
Neha Gandhi, Consultant, Advocacy and Policy
Kara Berasi, Chief Executive Officer, Haystack Project
last published: 25/Apr/24 19:55
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