Supporting Partners

The Americas Health Foundation (AHF) is an independent 501( c)(3) non-profit organization based in Washington DC. We focus on evidence-based initiatives designed to address barriers to healthcare access by integrating multi-stakeholder perspectives...

BioPharma Asia aims to keep its readers abreast of all developments in Manufacturing, Development, Quality Assurance, Outsourcing and Regulatory Affairs, with only the highest quality articles and webinars written and presented by the most respected ...

CDKL5 Canada is a registered charitable organization, dedicated to finding a cure for CDKL5 disorder.

The Center for Innovation & Value Research is an independent nonprofit research organization working to make sure that all patients have access to the right care at the right time. Their Goal: To support the use of...

CheckRare is the only publisher and learning platform focused exclusively on rare diseases and rare cancers. We bring physicians and patients the best science, research, and clinical practice information and present it in understandable and...

The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading science-driven policy and regulatory research, activating the community to...

Gene Therapy Net is the information resource for basic and clinical research in gene therapy, and the site serves as a network for the exchange of gene therapy information and breaking news items. Visitors can keep track of the latest scientific...

Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients, their families and disease communities globally. Global Genes was founded in 2008 to help build and unite the...

The International Rare Diseases Research Consortium (IRDiRC) unites national and international governmental and non-profit funding bodies, companies. Their vision: Enable all people living with a rare disease to receive an accurate...

Our mission is to unite LMNA experts, key opinion leaders, and patients in order to accelerate research and development, aiming to discover an effective treatment for LMNA-related cardiac diseases. LMNA is a gene that produces proteins essential...

Market Access Today is the premier platform dedicated to providing comprehensive coverage on the ever-evolving landscape of Market Access and Health Economics and Outcomes Research (HEOR). As the healthcare industry undergoes rapid...

NPC serves patients and society with policy-relevant research on the value of patient access to innovative medicines and the importance of scientific advancement. We envision a world where advances in medicine are accessible to patients, valued by...

Pathways To Trust is a non-profit organization building trust in healthcare for rare disease patients facing high hurdles to care by bringing stakeholders together to develop healthcare provider and patient communication training.

Pathways for Rare and Orphan Solutions PROS Foundation is a 501(c)(3) non-profit organization dedicated to helping bring treatments to patients living with rare diseases worldwide. PROS supports rare disease patient organizations with: ...

From founding the first U.S. hospital and medical school more than two centuries ago to pioneering today’s mRNA vaccines and cancer treatments, Penn Medicine has always shown the world what comes next. Today, their 49,000+ team members forge...

Founded in 2024, Rareatives is a patient-led, patient-focused digital publication dedicated to amplifying the lived experiences of the rare disease community. Rareatives provides a centralized community for community members to share what...

At Rare Rebels™, we use photojournalism, filmmaking, and podcasting to share the deeply personal stories of rare disease patients and the rebels standing beside them to make a difference. By capturing these stories, we raise awareness to show the...

Founded in 2018 as the philanthropic arm of RTW Investments, LP, RTW Foundation powers rare disease research, medical innovation, and local community collaborations to improve the health of underserved communities. We provide capital, expertise, and ...

The Evidence Base® is a leading online platform curating the latest news, expert opinion, and multimedia content on real-world evidence (RWE), market access and the broader aspects of health economics and outcomes research. We provide in-depth...

At touchENDOCRINOLOGY, we push the boundaries of online medical education to bring you innovative formats and valuable insights into learning behaviours. Our educational content enhances your ability to provide better patient care and drive positive ...

At touchHAEMATOLOGY, we push the boundaries of online medical education to bring you innovative formats and valuable insights into learning behaviours. Our educational content enhances your ability to provide better patient care and drive positive...

At touchOPHTHALMOLOGY, we push the boundaries of online medical education to bring you innovative formats and valuable insights into learning behaviours. Our educational content enhances your ability to provide better patient care and drive positive ...