2024 Partners

The UDNF aims to foster collaboration among patients, clinicians, and scientists to enhance the quality of life of undiagnosed and ultra-rare disease patients. We do this by mitigating barriers to equity and access in healthcare; setting standards...

ARM is the leading international advocacy organization championing the benefits of engineered cell therapies and genetic medicines for patients, healthcare systems, and society. As a community, ARM builds the future of medicine by convening the...

Americas Health Foundation is a 501 (c)(3), non-profit foundation. We are a unique bridge between the industry and governments. We strive to create multi-stakeholder collaboration for the future of healthcare. Although specialized in the Latin...

BioNews is a health media company focused on rare diseases and rare patient experiences. BioNews provides an insider’s view into disease and treatment news, condition management information, and community across more than 60+ diseases.A fierce...

CheckRare is a website and learning platform for health care professionals and patients. Our platform allows users to gain insight and learn about rare diseases, current and emerging therapies, clinical trials, and the BioPharma companies behind...

Cushing's Support and Research Foundation (CSRF) is a US 501c3 non-profit organization that will celebrate its 30th anniversary in 2025.  Patient-led from inception, CSRF's focus has support, education, and quality of life research at its...

Enterprise Viewpoint (EV) creates high-quality content to improve businesses. Our platform offers unique insights and valuable networks to support the growth of young and ambitious entrepreneurs. Our special edition features stories of successful...

ERCAL is a multi-stakeholder Foundation in Latin America and the Caribbean (LAC) consisting of expert individuals and organizations that promote and work to improve the lives of people living with rare diseases and their families.Formed by experts...

Gene Therapy Net is the information resource for basic and clinical research in gene therapy, and the site serves as a network for the exchange of gene therapy information and breaking news items. Visitors can keep track of the latest scientific...

ICON Outlook Magazine is a hub for businesses around the world using technology to transform our world. Our seasoned researchers, analysts, and writers spot global trends and the latest tech marvels poised for disruption. As a team with the most...

Medhealth Outlook offers insights into the latest technologies and trends in the healthcare, pharma, and medical industries. Our publication provides a balanced perspective through an inside/outside approach, showcasing interviews, features, and...

Mediaplanet delivers best-in-class content marketing campaigns for more than 8,000 clients around the globe. We make branding easy for our clients by taking care of the entire value chain – from concept to production and distribution, and by...

Global pricing and market access news without all of the noise. NAVLIN Daily connects the dots on how the day’s biggest stories affect your business and keeps you up-to-date and informed, so you can make better, smarter decisions. We provide...

n-Lorem Foundation is a non-profit organization established to apply the efficiency, versatility and specificity of antisense technology to charitably discover, develop, and provide personalized experimental antisense oligonucleotide (ASO) medicines ...

Since 2015, Patient Worthy has been helping rare disease patients around the world to tell their stories. Whether it’s the latest in rare disease news, courageous patient profiles or heartfelt interviews on our award-winning podcast, Patient Worthy...

Personalize my Medicine is a platform for medical innovation. We keep you informed about the latest advancements in medical innovation with a focus on personalized and precision medicine approaches to healthcare. PMM aims to place people and...

Pharma Tech Outlook is a monthly publication that has been a pioneer in bringing forth real-world solutions, news, product trends, solutions, and many more to subscribers. The unique learn-from-peers approach is creating a difference since the...

RAAP, the Rare Access Action Project, is a coalition of life sciences and patient stakeholders that explore creative policy solutions to address structural issues in access and coverage. Our priority is to help ensure rare disease patients have...

Rare Disease Advisor is a leading online resource for healthcare providers who treat rare diseases. RDA publishes timely news, exclusive features, expert opinions, and valuable resources across 40+ rare disease areas with the goal of helping reduce...

RARE Revolution Magazine is an independent not-for-profit publication dedicated to elevating the voice of the rare disease community through its website, digital magazine, patient engagement services and RARE Youth Revolution. It produces...

TREAT-NMD works in partnership with organisations and individuals globally to transform diagnosis, treatment and care for people living with neuromuscular diseases.