Patient Data Seminars

 

 

Patient Data Seminar, Tuesday 23 April 2024

Jason Colquitt
Patient Data Seminar
14:59

Chair's Remarks

Pamela Gavin
Patient Data Seminar
15:00

Patient Data

Pamela Gavin, Executive Vice President, National Organization for Rare Disorders (NORD)
Huong Huynh
Patient Data Seminar
15:20

Revolutionizing care: Unlocking the value of patient data

Huong Huynh
Patient Data Seminar
15:20

Unlocking the value of patient data (draft)

Melissa Kennedy
Patient Data Seminar
15:40

Clinical and caregiver data collection in Rett Syndrome: A successful registry launch

Benjamin Forred
Patient Data Seminar
16:20

Coordination of Rare Diseases at Sanford (CoRDS): Centralized international patient registry for all rare diseases

Jason Colquitt
Patient Data Seminar
16:40

Co-Producing data for daily care and regulatory submissions

last published: 20/Apr/24 16:35

 

 

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