Annette Maughan | CEO/Co-Founder
KBG Foundation

Annette Maughan, CEO/Co-Founder, KBG Foundation

Annette Maughan is a seasoned CEO, entrepreneur, and brand builder with a history of establishing and leading a range of mission-driven organizations.    Earlier in her career, Annette established Digital Aces, an international neutral host operator and digital infrastructure company.   In 2010, Annette joined the Epilepsy Association of Utah as board member before assuming the CEO position in 2012.  Co-Founder of Hope 4 Children with Epilepsy, and Professional Advisory Board Member of the Rare and Undiagnosed Network. Annette successfully led the political lobbying efforts of the Epilepsy Association of Utah to the passage of the first restrictive cannabis legislation in the country 2014 - HB105 - Charlee's Law and 2016 - Rescue Medication in Public Schools.   Over her six-year tenure, she was able to develop a clear and formalized organizational structure, triple annual income, pass new legislation around Cannabis epilepsy treatments, and generate a 25% increase in membership growth in one year.   In 2015, Annette co-established the KBG Foundation.  She is listed as co-author on the KBG syndrome research papers: KBG syndrome involving a single-nucleotide duplication in ANKRD11 and Tethered cord syndrome in KBG syndrome

Appearances:



Day 2 - World Orphan Drug Congress USA 2024 @ 15:35

How caregiver and patient driven medical discoveries impact rare diseases

last published: 25/Apr/24 18:55 GMT

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