Juliet Romeo | Filmmaker
Unstoppable at Slamdance

Juliet Romeo, Filmmaker, Unstoppable at Slamdance

Juliet Romeo is an award-winning writer, director, and patient advocate whose work sits at the intersection of storytelling, disability inclusion, and healthcare equity. Raised in Brooklyn and rooted in her Trinidadian heritage, Juliet has lived with sickle cell disease her entire life, transforming her personal experiences into powerful narratives that educate, inspire, and drive change. As the founder of the Unstoppable program at the Academy-qualifying Slamdance Film Festival, Juliet has helped create one of the most accessible and inclusive initiatives in the film industry, empowering disabled filmmakers from around the world. Her films include the PBS-aired documentaries J.U.L.E.S and Art of a Warrior, as well as Uncomplicated, which was featured on Delta Airlines Inflight Entertainment. She is currently developing the documentary Blood Bias, which examines the intersection of healthcare disparities, systemic bias, and sickle cell disease. Beyond filmmaking, Juliet serves as Chairperson of the Advisory Board for Advancing Sickle Cell Advocacy Project Inc., where she works to advance education, advocacy, and policy initiatives that improve outcomes for individuals and families affected by sickle cell disease. A frequent speaker for organizations including Google, Disability Belongs, and healthcare advocacy groups, Juliet is passionate about using the power of authentic patient stories to influence policy, improve healthcare experiences, and build stronger partnerships between patients, providers, researchers, and industry leaders. Through her work in film, advocacy, and public engagement, Juliet continues to champion a future where lived experience is recognized as expertise and where every voice has the power to create meaningful change.

Appearances:



Day 1 - World Orphan Drug Congress USA 2026 @ 13:40

Working Group 2: Building Authentic Partnerships in the Age of AI Algorithms Media, Patient Storytelling, and the Problem of Performative Advocacy

AI, algorithms, and social media are increasingly shaping healthcare conversations, but how can Industry responsibly validate patient community information, separate insight from misinformation, and build authentic partnerships rooted in trust?

In this discussion, Oscar-qualified filmmakers Donna Sullivan and Juliet Romeo, alongside longtime advocate Jon Rodis, explore why rare-disease and marginalized patient communities have built their own media ecosystems in response to decades of medical bias, diagnostic delays, and barriers to care.

Drawing on their work in film and decades of advocacy within the Ehlers-Danlos, Marfan, Sickle Cell, and Disability communities, the panel will explain why performative advocacy is failing patients in the AI era and why authentic engagement grounded in lived experience matters more than ever. Learn more about how patient storytelling can drive meaningful engagement and create alignment for research and progress.

last published: 01/Jun/26 09:55 GMT

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