Caroline Allen | Head of Patient Advocacy
ITF Therapeutics

Caroline Allen is a dedicated and passionate leader in the field of rare diseases and orphan drugs. With over a decade of experience in patient advocacy, she currently serves as the Head of Patient Advocacy at ITF Therapeutics. Caroline is committed to improving the lives of individuals affected by rare diseases by advocating for patient-centered approaches in drug development and access.

Throughout her career, Caroline has worked closely with patient communities, healthcare providers, and industry stakeholders to drive awareness and support for orphan drug development. She is known for her strategic vision, collaborative approach, and ability to navigate complex healthcare landscapes to ensure that patient voices are heard and prioritized.

Caroline's expertise lies in developing and implementing patient advocacy strategies, fostering partnerships, and leading initiatives to enhance patient engagement and access to innovative therapies. She is a strong advocate for policies that promote patient-centered care and empower individuals with rare diseases to actively participate in their healthcare journey.

As a speaker at the World Orphan Drug Congress USA 2026, Caroline will share her insights and experiences in patient advocacy, highlighting the importance of collaboration, innovation, and patient-centricity in advancing orphan drug development and improving outcomes for individuals with rare diseases. Her dedication to making a difference in the lives of patients sets her apart as a valuable leader in the orphan drug and rare disease community.