My name is Brad Dickerson and I work for a company called iECURE, Inc. iECURE is a small biotechnology company based in the US that is doing research in metabolic disorders including Urea Cycle Disorders and Phenylketonuria. iECURE is currently running a global study specifically for newborn boys with Ornithine Transcarbamylase Deficiency(OTC). I have spent a majority of my professional career working in life sciences developing and launching new therapies for people with rare diseases. Many of these therapies were the first and only approved therapies for specific rare diseases. At iECURE, I wear two hats. One of my responsibilities is to lead our project management function and lead our cross functional development teams. The other hat I wear and the one that I am most passionate about is responsible for engaging with advocacy communities supporting people with inborn errors of metabolism. In this role I am responsible for insuring that our organization listens to the advocacy stakeholders that are impacted by the conditions we aim to treat to make sure we are designing our research and supporting collateral in ways that are meaningful to those who are impacted.
Sponsored by GeneDx.