Augusta Elizabeth Koroma | Chief Executive Officer
Sickle cell Intervention U.K
Dr. Augusta Elizabeth Koroma Chief Executive Officer Sickle Cell Intervention International UK Dr. Augusta Elizabeth Koroma is a distinguished global health advocate, researcher, and the visionary leader behind Sickle Cell Intervention International UK. With a deep passion for rare diseases and equitable healthcare, she has dedicated her career to improving the lives of those living with Sickle Cell Disease (SCD) across borders. As a respected voice in the field, Dr. Koroma works tirelessly to bridge gaps in care, raise awareness, and drive policy changes that support patients and families. She is a published author and an international speaker, championing the rights of individuals with chronic conditions to live fully, thrive professionally, and access quality treatment. Her work focuses on breaking barriers, fostering global collaboration, and ensuring that no one is left behind in the fight against rare diseases. Presentation Title: Breaking the Vicious Cycle: Thriving with Sickle Cell in the Workplace About the Presentation This session addresses the unique challenges faced by individuals living with Sickle Cell Disease (SCD) in professional environments. It explores the "vicious cycle" of health complications, stigma, and workplace exclusion that often limits employment opportunities. Dr. Koroma will share insights on how to transform these challenges into strengths, advocating for a shift from mere survival to true professional thriving. The talk will highlight practical strategies, policy recommendations, and the importance of inclusive work cultures that value ability and potential over medical diagnosis. Objectives: By the end of this presentation, attendees will: 1. Understand the physical, social, and environmental barriers that affect employees with Sickle Cell Disease. 2. Recognize the economic and social value of including people with rare and chronic conditions in the workforce. 3. Learn key reasonable adjustments and supportive measures that enable individuals to perform at their best. 4. Gain insight into how organizations can create policies that protect, support, and empower patients to succeed professionally. 5. Be inspired to champion change, break stereotypes, and build workplaces where everyone has the opportunity to contribute and excel.
Appearances:
Day 1 - World Orphan Drug Congress USA 2026 @ 15:10
Sickle Cell Disease: The Past, Present & Future
In this presentation, you will gain a better understanding of what it is like for someone who lives with sickle cell disease, how their daily experiences are affected by their health, and why research and drug development are vital for promoting healthier living for people affected by this condition. This session will also examine key challenges faced by sickle cell patients navigating the rare disease landscape, including limited access to specialized care, stigma in healthcare settings, and insufficient research funding. The discussion will highlight why patient advocates should play a central role in decision making for promoting healthier living. Lastly, this session will provide stakeholders with valuable insights and practical strategies on ways they can support and advocate for improved access to treatments, care, and policies for people who live with sickle cell disease.
Objectives:
- Provide a firsthand perspective on sickle cell disease, review advocacy efforts past and present, and discuss the future of advanced therapies
- Provide strategies to stakeholders, ensuring that decisions reflect real-world needs and promote equitable access to care.
- Understanding the importance of connecting the patient advocate directly to industry can lead to meaningful changes in drug development and patient centered care
Created by
Terrapinn is proud to be a member of isla.
Working together to build sustainable events