Al Freedman, PhD, is a psychologist, educator, and rare disease advocate with more than two decades of experience working with individuals and families affected by rare diseases and disabilities. As one of the world’s leading therapists specializing exclusively in the rare disease patient space, Dr. Al is uniquely equipped to support families navigating complex medical conditions and the professionals who serve them. Inspired by his personal journey as the father of Jack, who lived with spinal muscular atrophy for 26 years, Dr. Al draws upon the invaluable lessons Jack taught him, alongside his professional training and early experience as an educator, to provide counseling and consultation. He works with families, advocacy organizations, pharmaceutical companies, healthcare organizations, and schools to create meaningful support systems and impactful change within the rare disease community.
We will discuss what technology can bring to healthcare from three perspectives: patient, pharma and healthcare. How AI gives us capabilities to shine a new lens on understanding patients and the personalisation of care. Uncovering its impact on decision-making for all stakeholders.