World Orphan Drug Congress USA 2026 Post Event Report

Access the complete summary of America's largest rare disease event. This comprehensive report outlines the metrics, participant profiles, and key track themes from across the three-day event.

What is included:

• Event Metrics & Demographics: A full attendee breakdown by industry sector and geographic data from the 50+ countries represented.
• Pre-Congress Workshops: Summaries of the pre-congress workshops: health insurance coverage policies, international reference pricing, FDA engagement plans for patient groups, and venture capital strategies for rare disease startups.
• Keynote & Plenary Sessions: Insights from panels featuring leading organizations such as NORD, EveryLife Foundation, J&J, RTI Heath Solutions, Parexel, Sarepta Therapeutics, Global Genes, and the Reagan-Udall Foundation for the FDA.
• Track Stream Summaries: Core takeaways spanning the entire asset lifecycle across Clinical Development & Regulatory, Commercialization, AI & Digital Health, and Rare Advocacy streams.
• Exhibition & Poster Zone: Highlights from the exhibition floor featuring over 60 exhibitors and startups, alongside research presentations from the 35+ posters zone.

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