Vera Luxner | Director of Advocacy Relations
Rare Disease Advisor

Hello WODC USA 2025! I’m truly honored to be here at WODC USA! As the Director of Advocacy Relations at Rare Disease Advisor (RDA), I’m excited to connect with so many dedicated voices in the rare disease community. At RDA, our mission goes beyond delivering news—we’re here to empower. Through education, storytelling, and strategic media partnerships, we aim to amplify patient voices, foster collaboration, and spark meaningful, lasting change. RDA is a trusted multimedia platform that brings together patients, caregivers, healthcare providers, scientists, government, and industry leaders—bridging the gaps that often slow progress. In my role, I’m focused on creating advocacy-driven media efforts that elevate awareness and drive real-world impact. I warmly invite you to join us for the Rare Advocacy session led by RDA on April 24, 2025, at 3:40 PM EST. Let’s explore how media can be a powerful catalyst for change in our shared mission. Please don’t hesitate to reach out—I’d love to connect. With gratitude, Vera vera.luxner@haymarketmedia.com c: 301-520-1050