Sophia Zilber | Vice President
Cure Mito Foundation

Sophia leverages her professional background and personal story to create meaningful contributions to the rare disease community. She has over 20 years of experience with drug development, including clinical data analysis, and managing statistical programming teams to ensure successful delivery of clinical study analysis requirements. Sophia is deeply involved with and volunteers a lot of her time to the rare disease patient community. Sophia has been involved in multiple efforts with the goal of raising awareness in the mitochondrial disease community and general rare disease community regarding patient registries and what is involved with collecting high quality data that can be used for research and drug development. Sophia is proud to be a board member and a patient registry director for Cure Mito Foundation, where she is leading a global Leigh syndrome patient registry.