Paula Orandash | Director, Patient Engagement
Ergomed

Paula Orandash, Director, Patient Engagement, Ergomed

Paula Orandash is a dedicated and passionate Director of Patient Engagement at Ergomed, a leading global clinical research organization specializing in orphan drug development. With over three decades of experience in the pharmaceutical and non-profit healthcare industry, Paula is a seasoned expert in patient-centric approaches to drug development and rare disease advocacy.

Paula's commitment to improving the lives of patients with rare diseases is evident in her work, where she leads initiatives to ensure that the patient voice is integrated into every stage of the drug development process. Her strategic mindset and collaborative approach have been instrumental in driving patient engagement strategies that prioritize empathy, empowerment, and inclusivity.

With a background in healthcare communications and patient advocacy, Paula brings a unique perspective to her role, bridging the gap between patients, researchers, and industry stakeholders. She is known for her ability to build strong relationships within the rare disease community and her unwavering dedication to amplifying patient voices in research and development.

Paula is a sought-after speaker and thought leader in the orphan drug and rare disease space, regularly sharing her insights at conferences and events such as the World Orphan Drug Congress USA. Her expertise in patient engagement, advocacy, and clinical research make her a valuable asset to any organization striving to make a meaningful impact in the rare disease landscape.

Appearances:



Day 1- World Orphan Drug Congress USA 2025 @ 11:25

Presentation: Facilitating a sponsor’s engagement with a rare disease patient advocacy organization: A case study

Sponsored by Ergomed

last published: 24/Apr/25 11:35 GMT

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