Patroski Lawson | Co-founder
The Just Society

Patroski Lawson Founder & CEO A veteran advocate on healthcare and other mission-critical issues, Patroski Lawson has been effectively advising senior executives and leading advocacy efforts in the United States and Europe for more than 20 years. His track record of accomplishment spans both the private and public sectors and he is an experienced navigator of Brussels, D.C. and in state capitols across the United States. Previously, Patroski spent 15 years building and leading successful U.S. and E.U. government affairs initiatives for global companies such as Solvay Pharmaceuticals, Abbott and Lundbeck. He has extensive experience at developing and managing government affairs budgets, building effective political programs (e.g. corporate PACs) and providing strategic guidance to senior executives in the U.S. and around the globe. Patroski currently serves on the Board of Directors of Biogene Therapeutics.

Appearances:

Day 1- World Orphan Drug Congress USA 2025 @ 15:50

Panel: Driving the future of rare disease R&D: A multi-stakeholder perspective

"Driving the Future of Rare Disease R&D: A Multi-Stakeholder Perspective" brings together a diverse group of experts to discuss the evolving landscape of research and development in rare diseases. Featuring insights from pharmaceutical companies, healthcare providers, patient advocacy groups, and policymakers, the panel will explore the challenges and opportunities in accelerating breakthroughs for rare diseases. Key topics will include the role of innovation, patient-centered approaches, regulatory frameworks, and collaborative efforts across sectors. The discussion will highlight how multi-stakeholder engagement can drive more efficient, targeted solutions to meet the unique needs of rare disease patients, while addressing the financial, logistical, and ethical complexities of rare disease research.

Moderator: Patroski Lawson, Co-founder, The Just Society

Peng Lu, Chief Medical Officer, Pharvaris