Naomi Litchfield | Director Patient Advocacy
Bionical Emas

Naomi Litchfield, Director Patient Advocacy, Bionical Emas

Naomi has extensive experience working in clinical research and with the rare disease community. She spent many years working at Great Ormond Street Hospital as a clinical research nurse caring for patients and families including those living with rare conditions. As Director, Patient Advocacy at Bionical Emas, Naomi’s role is fundamental to the company mission of bringing life changing medicines to patients around the world. Naomi works closely with patient advocacy groups to understand the unique needs and complexities of the patients they represent.  Naomi is passionate about amplifying the patient voice and ensuring it is always represented in our early access programs, promoting a positive patient journey, and where possible reducing burden and co creating with patient communities. This enables Naomi to train and educate around early access programs in a compliant and ethical manner.

Appearances:



Day 1- World Orphan Drug Congress USA 2025 @ 14:00

Roundtable 5: Co Creating a patient advocacy engagement plan for early access programs (EAPs)

  • A collaborative discussion on how to engage patient advocacy groups when planning early access programs – covering frameworks, educational resources, compliance considerations and communication strategies.
  • Case studies involving rare disease patient advocacy groups including examples of how to tailor your specific engagement plans
  • Opportunity to develop practical early access patient engagement plan to be provided as an industry resource.

Sponsored by Bionical Emas.

last published: 24/Apr/25 11:35 GMT

back to speakers

Get Involved At World Orphan Drug Congress USA

 

Connect with us

 
 
 
 

 

To Sponsor Or Exhibit

 
 

Justin Franks
justin.franks@terrapinn.com
t/ +1 914 819 3506

 

 

 

To Speak

 
 

Kaylee Nguyen
kaylee.nguyen@terrapinn.com
 

 

 

 

Marketing & Press

 
 

Kaylie Brogan
kaylie.brogan@terrapinn.com