Jennifer Siedman | Director of Community Engagement
Courageous Parents Network Inc

Jennifer is the Director of Community Engagement for Courageous Parents Network (CPN), a non-profit whose mission is to orient and empower parents and others caring for children with serious medical conditions by providing resources and tools that reflect the experience and perspective of families and clinicians. She brings her experience as an educator and development professional to her role in engaging patient and caregiver organizations, industry partners and healthcare clinicians. A bereaved mom, she serves as president of Ben’s Dream: Sanfilippo Research Foundation and has worked with researchers and patient advocacy groups worldwide to fund and advance gene therapies to the clinical trial stage. In addition to co-authoring Supporting Families Considering Participation in a Clinical Trial,( AAP Journal PEDIATRICS) and NeuroJourney,  she has been recognized with a Boston Celtics Heroes Among Us award, Global Genes RARE Champion of Hope, and Sanofi TORCH Award.