Elizabeth Wood | President & Founding Member
The MYT1L Project

Liz is President and a co-founder of The MYT1L Project Foundation. The MYT1L Project is a parent-led, scientist-supported foundation established in 2025 to advance research into evidence-based interventions for MYT1L Neurodevelopmental Syndrome, a rare genetic condition marked by developmental disabilities, behavioral challenges, and obesity. Its mission is to foster collaboration between families, patients, and researchers to develop effective treatments that improve the quality of life for individuals and their families. Liz is also mom to a 30-year-old daughter with a deletion that includes the MYT1L gene. She has experienced firsthand both the joys and the challenges of raising a child with special needs, from early intervention through K-12 education, post-secondary education, and transition to adulthood. Liz holds a Bachelor of Science degree in Health Sciences, a Master of Science degree in Internet Technology, and a graduate certificate in Health Analytics. While raising her daughter, she has spent her career immersed in academic clinical and translational research. She is Co-Director of Informatics at the Weill Cornell Medical College Clinical and Translational Science Center where she oversees a team of research IT professionals and teaches a graduate course in Research Data Management. She has written or contributed to multiple NIH grants and research publications, and is the primary architect of a software platform used at more than 20 academic medical centers across the country. Liz is committed to bringing together families impacted by MYT1L differences, establishing a high-quality and accessible MYT1L registry, forging productive relationships with research teams, and working together to improve treatment options for all affected families.