Elise Hoover | Vice President of Research
Foundation for Sarcoidosis Research

Elise Hoover joined the Foundation for Sarcoidosis Research in May of 2024. She is a strategic leader with a decade of experience in rare disease research initiatives and national collaborative partnerships. As VP of Research, she convenes clinicians, researchers, patients and their families, and other stakeholders to elevate FSR’s research agenda and the initiatives that support acceleration of sarcoidosis research discoveries. Elise is dedicated to supporting the researcher pipeline to encourage collaboration and mentorship between established researchers and younger investigators, addressing the unmet needs in the diagnostic journey, and ensuring patient-centered research priorities. She worked at the Polycystic Kidney Disease Foundation for six years, launching both patient registry and centers of excellence programs, and bringing patient stakeholder reviewers into the grant review process. Elise has also held an epidemiology fellowship at the NIH and worked in clinical research coordination for clinical trials. Elise received her bachelor’s degree from New York University and her master’s degree in public health from Boston University. She currently serves as the Co-Chair of the Health Research Alliance’s Registry and Biorepository Community. Elise lives in Denver, CO.