Deborah Requesens | Founder
Society of Hispanic Rare Diseases
Deborah Requesens, PhD, is the Director of the Orphan Disease Center’s JumpStart Program. This program serves to establish and progress research agendas in emerging and neglected diseases. She partners with patient groups and scientists to encourage scientific collaboration and drive therapeutic development for rare diseases. Deborah is also the co-founder and President of SHER (Hispanic Society for Rare Diseases), an organization that promotes awareness about rare diseases in the Hispanic population and aims to increase the participation of this community in rare disease research and advocacy.
Appearances:
Day 2 - World Orphan Drug Congress USA 2025 @ 14:20
Panel: Inclusivity in clinical trials and product planning to support access and commercialization
As the healthcare landscape becomes more global and inclusive, ensuring diversity in clinical trials and product planning is crucial for developing orphan drugs that are safe, effective, and accessible to all populations. This panel will address the importance of incorporating diverse patient populations in clinical trials and how such efforts impact product development, regulatory approval, and commercialization—particularly in later-stage drug development.
Panelists will explore how diverse representation in clinical trials—including age, gender, race, ethnicity, and socio-economic status—can lead to more reliable data, better health outcomes, and ultimately, broader market access. The discussion will also highlight how inclusive product planning and real-world evidence collection play a critical role in supporting market entry and improving commercialization strategies, especially for products targeting underserved or minority communities.
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