Connie Lee | Chief Executive Officer
Alliance to Cure Cavernous Malformations

Connie Lee, Chief Executive Officer, Alliance to Cure Cavernous Malformations

Dr. Connie Lee is the founder and CEO of the Alliance to Cure Cavernous Malformation, the patient research foundation representing those affected by cavernous malformation. Dr. Lee is a licensed clinical psychologist and the mother of a daughter with multiple cavernous malformations. Dr. Lee founded Angioma Alliance, the original name of the Alliance to Cure, in 2002 after the diagnosis of her infant daughter. She has guided the organization from its beginnings as a support group to its current role as the driving force for research, legislation, and patient care.

Appearances:



Day 1- World Orphan Drug Congress USA 2025 @ 11:45

Fireside Chat: Understanding and evaluating PAG capabilities

Reserved for Julianne Mills, Senior Director, Therapeutic Strategy Lead, Rare Disease, Worldwide Clinical Trials

last published: 10/Jan/25 15:25 GMT

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