Connie Lee | Chief Executive Officer
Alliance to Cure Cavernous Malformations

Connie Lee, Chief Executive Officer, Alliance to Cure Cavernous Malformations

Cornelia Lee, PsyD, is the founding Chief Executive Officer of the Alliance to Cure Cavernous Malformation (formerly Angioma Alliance), the leading international patient advocacy organization for individuals and families affected by cerebral cavernous malformation (CCM), a rare neurovascular disorder. Since founding the organization in 2002, Dr. Lee has built it into a globally recognized nonprofit with a broad portfolio spanning research, clinical trials, patient support, education, and public policy.

Appearances:



Day 2 - World Orphan Drug Congress USA 2026 @ 12:20

Accelerating Rare Disease Diagnosis: Leveraging Health Claims Data Early in Clinical Development

last published: 06/Mar/26 21:05 GMT

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