Colin Werth | Pharma Consultant
Patient Advocate

Colin Werth is a lifelong resident of Farmville, Virginia and has a degree in IT from Southside Virginia Community College. He works as an IT Specialist for Letterpress Communications. In addition to his work in the IT and marketing field, Colin is a patient advocate for the rare disease community. He was diagnosed with Duchenne Muscular Dystrophy at age 3 in 1998. Colin became involved with patient advocacy organization Parent Project Muscular Dystrophy in 2016 by joining their Adult Advisory Committee to help provide guidance on Duchenne related programs as an individual living with the disease. He has worked with multiple pharmaceutical companies to integrate the perspective of the adult community in their drug development process. Colin is a passionate patient advocate and strives to educate others about Duchenne and the science behind the disease.