Christian Rubio | Executive Director
EverythingALS

Christian Rubio is Executive Director at EverythingALS, a digital biomarkers and endpoints research non-profit serving the ALS/ MND community through the validation of new measures via remote tracking of disease progression and the lived experience. An experienced advocacy leader who has worked on the non-profit and biopharma sides of the drug research and development collaboration space, Christian leads the organization’s pre-competitive digital health technology consortium of biopharma companies and community engagement.   Prior to this role, Christian served as Vice President and Global Head of Advocacy at Praxis Precision Medicines, overseeing patient, advocacy and policy engagement across the company’s epilepsy and movement disorder franchises. Prior to his role at Praxis, Christian served as the Vice President of Strategic Advancement at Global Genes, where he led strategic partnerships, advocacy engagement and digital transformation. As leader of the organization’s health equity, diversity, and inclusion programming, he launched the Global Genes’s Rare Health Equity Summit, and led the formation of a strategic partnership with the Black Women’s Health Imperative’s Rare Disease Diversity Coalition, co-chairing their Addressing Delays in Diagnosis Working Group. Prior to his leadership at Global Genes, Christian was a Marketing executive overseeing patient and HCP engagement at PlatformQ Health and SERMO. His mobile and consumer technology experience extends from his years as head of Community and Platform Operations in mobile gaming and social networking apps, where he oversaw global support operations and customer insights teams. Christian received his undergraduate degree in Political Science and Philosophy from Williams College, a Masters in Political Management from the George Washington University and his MBA in technology entrepreneurship from the Olin School of Business at Babson College. He now splits his time between Boston, Massachusetts, Palo Alto and Washington, DC and continues to volunteer with a number of rare neurodevelopmental disorder organizations on building their data collection and insight collection strategies.