Dr. Carolyn Schwartz is President & Chief Scientist at the not-for-profit DeltaQuest Foundation; and Adjunct Research Professor of Medicine and Orthopaedic Surgery at the Tufts University School of Medicine. A Harvard-trained behavioral scientist, Dr. Schwartz specializes in patient-reported outcome measurement development, and real-world evidence for evaluating medical treatments. Her interdisciplinary and methodological research focuses on understanding what patients can do to have an impact on the course of their disease and their well-being. In addition to development of theory and methods for response-shift research in quality of life, her work has spanned a number of rare and orphan diseases and conditions, and she has developed over 20 patient-reported outcome measures.