Cara has 20 years of experience working with biotech and life sciences companies spanning corporate, patient, product, and internal communications. Her career has encompassed leading communications and patient advocacy strategies at public life sciences companies as well as advising early-stage to commercial healthcare companies, organizations and patient groups. Cara currently serves as the Vice President of Corporate Affairs at Neurogene. Prior to Neurogene, she was Vice President of Patient Advocacy and Corporate Communications at Homology Medicines, where she led rare disease community engagement efforts, focusing on ensuring patient and caregiver needs were considered across all functions and programs. Prior to Homology, she served as Managing Director at Ten Bridge Communications, a life sciences communications consulting agency. Previously, Cara was Corporate Communications Director for OvaScience, a global fertility company, and she was a member of the Life Sciences Team at the consulting firm Feinstein Kean Healthcare (acquired by Ogilvy). She has also led public relations and internal communications efforts for a healthcare business-to-business company, worked in the corporate communications and investor relations group at Inspire Pharmaceuticals (acquired by Merck) and began her career at a boutique communications firm focused on emerging biotechnology and medical device companies. Cara holds a B.S. in Communications from Boston University.
Effective patient engagement is essential for the success of any healthcare innovation, but smaller biotechs, providers, and payers often face unique challenges in building meaningful, lasting relationships with patients. This panel will explore the practical strategies and tools these stakeholders can use to directly engage patients, gather insights, and ensure that their needs and preferences are integrated into the development, delivery, and reimbursement of orphan drugs.
Panelists will share real-world examples and actionable advice on how smaller companies and organizations can break through the noise and create a patient-centered approach that resonates with the communities they serve. Discussion will focus on building trust, ensuring transparency, and fostering collaboration with patient advocacy groups to drive better outcomes for patients, while also meeting business and regulatory objectives.