Anthony Fiori | Senior Managing Director
Manatt
A recognized authority on health plan regulatory and financial issues, Tony Fiori advises health care industry clients on regulations and strategy, and leads policy analyses and projects. Tony works with managed care organizations, hospitals, long-term care organizations, state Medicaid agencies, pharmaceutical manufacturers and trade associations, bringing depth and perspective to public health insurance programs. Tony has particular expertise in Medicaid pharmaceutical policy and the application of state regulations to cell & gene therapies.
Appearances:
Day 1- World Orphan Drug Congress USA 2025 @ 15:50
Panel: Access to rare disease therapies in Medicaid - Barriers and policy solutions
Medicaid covers nearly 80 million Americans, making it the largest health care program in the United States. It is therefore a critical source of coverage and access to transformational therapies for people with rare diseases. Unfortunately, people living with rare disease in Medicaid often confront significant barriers to treatment. To develop a deeper understanding of these challenges, the Manatt Cell & Gene Therapy Research Collaborative analyzed 50-state data on issues including:
· Access to testing and specialists
· Restrictive coverage policies
· Delays in care
· Support for long-distance travel
In addition to discussing key findings from the research, Manatt and the Leukemia & Lymphoma Society (LLS) will discuss potential policy solutions and implications for advocacy to reduce these obstacles to patient access.
Sponsored by Johnson & Johnson.
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