Patient Worthy

Supporting Partner

Patient Worthy® is an online publication that provides relevant information to rare disease patients, caregivers and advocates alike.

We connect those impacted by rare conditions with educational resources, advocacy groups, and news updates regarding rare disease research from across the globe. Our goal is to amplify the voices of those in the rare disease community, feature the institutions that serve them, and foster solidarity across diagnoses.

Here at Patient Worthy, if we are not learning to live with a chronic illness or rare disease ourselves, we are loving or working with someone who is. It is through this perspective, research and our passion for rare disease awareness that we bring you Rare Patient News. Well Done.®

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