Through strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to really tailor the event to the needs of your day-to-day role.

Attend the Pre-Congress Workshop on the 13th November to learn from interactive presentations and make new contacts during the networking breaks. 


Speakers already confirmed for 2017 include:

Adam Hutchings, Managing Director, Dolon
Andrea Spezzi, Chief Medical Officer & R&D Head, Orchard Therapeutics
Andrew Storey, Vice President, Global Regulatory Strategy, AbbVie
Anja Kladar, Rare Diseases Croatia Executive Director
David A Pearce, President, Sanford Health and Senior Scientist, Children’s Health Research Center and Professor, Department of Pediatrics, Sanford School of Medicine of the University of South Dakota
David Elvira, Director General, Catalonia Medicines Agency, Spain
Diana Ribeiro, Director of Research, Action Duchenne
Dr Ana Mingorance, Principal, Dracaena Consulting
Dr Edmund Jessop, Medical Advisor, Specialised Commissioning Team, NHS England
Dr Elia Stupka, Director, Genomics & Computational, Biology, Boehringer Ingelheim
Dr Frederic Revah, Chief Executive Officer at Genethon & President at Yposkesi
Dr Heide Stirnadel-Farrant, Director Epidemiology, Real World Evidence and Epidemiology, R&D Projects Clinical Platforms and Sciences, GSK
Dr Hywel Williams, Senior Research Associate, The Centre for Translational Omics – GOSgene, Genomics and Systems Medicine, UCL, GOS Institute of Child Health
Dr Lucia Faccio, Head of Research Development Office, Fondazione Telethon, Italy
Dr M. Kengatharan, President & iCEO, Armetheon, Inc.
Dr Marco Petschulies, Scientific Advisor, G-BA 
Dr Mathieu Simon, Executive Vice President and Chief Operating Officer, Cellectis Therapeutics
Dr Michael Linden, Vice President Gene Therapy, Pfizer and Head, Genetic Medicine Institute
Dr Michael Luttgen, Vice President of International Alliance Management, Horizon Pharma
Dr Omar Khwaja, Head of Rare Diseases, Roche
Dr Paul Robinson, Executive Director, Medicine & Patient Perspectives, Merck Sharp & Dohme
Dr Raghuram Selvaraju, Managing Director, Head of Healthcare Equity Research
Dr Renato Dellamano, President, MME Europe
Dr Rick Thompson, Scientific Officer, Findacure
Dr Ségolène Aymé, Founder of Orphanet, Emeritus Research Director, INSERM
Dr Stephen Yoo, Chief Medical Officer, ReGenXBio
Dr Will Maier, Chief Scientific Officer, Mapi Group
Emiliangelo Ratti, SVP, Global Head of CNS TAU, Takeda
Emily Crossley, Co-founder, Duchenne UK
Emily Culme-Seymour, External Strategy Manager, Gene Therapy, GSK
Francois Meyer MD, Advisor to the President, International Affairs, HAS*
Gottfried Endel, Department for Evidence Based Economic Health Care, Main Association of Austrian Social Insurance Institutions, Austria 
Jan Span, Member of the Cross-Committee Task Force on Registries and Senior Clinical Assessor, Medicines Evaluation Board, The Netherlands
Jim Green, President of the International Niemann-Pick Disease Registry, UK
Joseph Musumeci, BluePrint Orphan
Julie Walters, Founder, Raremark
Kay Parkinson, CEO, Cambridge Rare Disease Network, Director, Alstrom Europe, Founder, Alstrom Syndrome UK
Matthias Schönermark, Chief Executive Officer, SKC Beratungsgesellschaft
Michelle Berg, VP Patient Advocacy, Abeona Therapeutics 
Patrick Hopkinson, Executive Director WWHEOR Markets, BMS
Pawel Wozniak, Managing Director, Komtur Polska
Pierre Laurin, CEO, Prometic 
Samantha Parker, SVP, Chief Patient Access Officer, Lysogene
Scott Schliebner, Vice President, Scientific Affairs, PRA Health Sciences
Sheela Upadhyaya, Associate Director Highly Specialised Technologies, NICE
Sven Kili, Vice President and Head of Gene Therapy Development, GSK
Thomas Hach, Director Healthcare Systems from Group Global Strategy, Novartis
Timothy J. Miller, President and CEO, Abeona Therapeutics
Wills Hughes-Wilson, Senior Vice President, Chief Patient Access Officer and Head of Corporate Communication, Sobi
Yann Le Cam, Chief Executive Officer, EURORDIS





World Orphan Drug Congress Europe Agenda Overview